AAA
Adolescents and Adults with Autism
Recommended Resources from Families of Adolescents and
Adults with an Autism Spectrum Disorder
AAA Report #4:
Principal Investigators
Marsha Mailick Seltzer, Ph.D.
Waisman Center
University of Wisconsin - Madison
Marty Wyngaarden Krauss, Ph.D.
Heller School for Social Policy and Management
Brandeis University
Project Staff
Co-Investigators Graduate Research Assistants Research Associate
Jan Greenberg, Ph.D. Mara Glickman Jinkuk Hong, Ph.D.
Gael Orsmond, Ph.D. Heather Jacobson, M.A.
Sandra Magana, Ph.D. Paul Shattuck, M.S.
April Swe, M.S.W.
Paul Symons, M.B.A.
Project Managers Interviewers Student Assistants
Renee Makuch Sandy Evans Lynn Au
Dotty Robison Amy Sue Hartman Emily Baxter
Nancy Ishikawa Emily Beckman
Jill Levenhagen Meaghan Dolan
Tracy Mazzeo
Amy Mitchell
2002
Acknowledgements
This project is supported by grants from the National Institute on Aging (R01 AG08768) and the Rehabilitation Research and Training Center on Aging with Developmental Disabilities at the University of Illinois at Chicago (H133B30069), funded by National Institute on Disability and Rehabilitation Research. We gratefully acknowledge the support from the Graduate School of the University of Wisconsin-Madison and the Nancy Lurie Marks Foundation that helped to launch this research. Administrative support for the study is provided by the Waisman Center at the University of Wisconsin-Madison and the Starr Center at the Heller School for Social Policy and Management, Brandeis University.
We are extremely grateful to the families of the 405 adolescents and adults who have given so generously of their time and shared their lives with us.
Visit us at our website: http://www.waisman.wisc.edu/family/index.htmlx
Table of Contents
Section I: Introduction
Section II: Resources
Section I: Introduction
Since our study began in 1998, many families have asked us for advice or resources they could reference in order to help them learn more about their son or daughter's autism spectrum disorder. With over 400 families participating in our research, we decided to ask parents if there were any books, movies or other materials they have found to be particularly helpful and would recommend to other families. We have compiled that information in this booklet. The inclusion of any resource or web site link in this booklet does not imply endorsement.
Thank you for all of your suggestions! We hope you find this to be useful!
Section II: Resources
Books & Authors
Internet Sites
Videos
Thank You to all the families who participate in this research and contributed to this booklet