Adolescents and Adults with Autism



Recommended Resources from Families of Adolescents and


Adults with an Autism Spectrum Disorder



AAA Report #4:




Principal Investigators


Marsha Mailick Seltzer, Ph.D.
Waisman Center
University of Wisconsin - Madison

Marty Wyngaarden Krauss, Ph.D.
Heller School for Social Policy and Management
Brandeis University



Project Staff


Co-Investigators                   Graduate Research Assistants       Research Associate

Jan Greenberg, Ph.D.                 Mara Glickman                                      Jinkuk Hong, Ph.D.
Gael Orsmond, Ph.D.                 Heather Jacobson, M.A.
Sandra Magana, Ph.D.               Paul Shattuck, M.S.

                                                April Swe, M.S.W.
                                                    Paul Symons, M.B.A.


Project Managers                 Interviewers                                      Student Assistants

Renee Makuch                          Sandy Evans                                         Lynn Au
Dotty Robison                            Amy Sue Hartman                                 Emily Baxter

                                                Nancy Ishikawa                                     Emily Beckman
                                                Jill Levenhagen                                      Meaghan Dolan
                                                Tracy Mazzeo
                                                Amy Mitchell















This project is supported by grants from the National Institute on Aging (R01 AG08768) and the Rehabilitation Research and Training Center on Aging with Developmental Disabilities at the University of Illinois at Chicago (H133B30069), funded by National Institute on Disability and Rehabilitation Research. We gratefully acknowledge the support from the Graduate School of the University of Wisconsin-Madison and the Nancy Lurie Marks Foundation that helped to launch this research. Administrative support for the study is provided by the Waisman Center at the University of Wisconsin-Madison and the Starr Center at the Heller School for Social Policy and Management, Brandeis University.


We are extremely grateful to the families of the 405 adolescents and adults who have given so generously of their time and shared their lives with us.


Visit us at our website:




































Table of Contents


Section I: Introduction

Section II: Resources

































Section I: Introduction


Since our study began in 1998, many families have asked us for advice or resources they could reference in order to help them learn more about their son or daughter's autism spectrum disorder. With over 400 families participating in our research, we decided to ask parents if there were any books, movies or other materials they have found to be particularly helpful and would recommend to other families. We have compiled that information in this booklet. The inclusion of any resource or web site link in this booklet does not imply endorsement.

Thank you for all of your suggestions! We hope you find this to be useful!



Section II: Resources


Books & Authors

Internet Sites


Thank You to all the families who participate in this research and contributed to this booklet