Supporting Siblings and Adults with Intellectual and I/DD in Planning for the Future (R9)


Principal Investigator:
Tamar Heller, PhD
Co-Principal Investigator(s):
Donald J. Meyer, PhD
Sharon Davis, PhD

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Goals:
  • Explore the nature of the relationship, reciprocal support provided, and concerns and plans for the future among sibling pairs that include an adult with I/DD
  • Examine the impact over a one-year period of a family future planning support and advocacy program for siblings of adults with I/DD on families’ planning process and outcomes and on the relationship between the siblings
  • Examine the relationships of non-disabled siblings and their sibling with I/DD from both of their perspectives

INFORMATION ABOUT CURRENT PROJECT (2003-2008)

Supporting Adults with Developmental Disabilities and their Families in Futures Planning and Advocacy

Supporting Adults with Intellectual and Developmental Disabilities and their Families in Future Planning and Advocacy - Final Report

TRAINING ACTIVITIES (2003-2008)

Sibling/Family Workshops on Future Planning
TOPICS FOR SIBLINGS OF PERSONS WITH DEVELOPMENTAL DISABILITIES
Sibling Connections Update

RESEARCH FINDINGS AND PRODUCTS (2003-2008)

Research Brief: Research Brief: Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning

RELATED RESEARCH FINDINGS (1998-2003)

Supporting Adults with IDD and Their Families

RELATED PUBLICATIONS AND PRODUCTS

The following RRTCADD related to our Health Promotion Research Projects and additional publications related to health and health promotion for people aging with I/DD are available in the RRTCADD Clearinghouse.

Debrine, E., Caldwell, J., Factor, A., & Heller, T. (2003). The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities.

Caldwell, J., Lopez, E., DeBrine, E., Factor, A., Heller, T., & Ennis, D. (2003). Future planning resource guide for families and adults with developmental disabilities in Illinois.

Caldwell, J., & Heller, T. (2003). Management of respite and personal assistance services in a consumer-directed family support program. Journal of Intellectual Disability Research, 47(4/5), 352-366.

Heller, T., & Caldwell, J. (2001). Innovative project supports later-life planning for adults and their aging family caregivers. Maximizing Human Potential, 8(3), 4-5.

Heller, T. (2000). Supporting adults with intellectual disabilities and their families: A literature review. Aging and Developmental Disability: Current Research, Programming, and Practice Implications. The Haworth Press, 59-73.

Heller, T., Caldwell, J., & DeBrine, E. (2000). RRTC collaborates with Chicago Arc on family future planning project. ADD/Vantage, 11(2), 1,12,13,15.

Heller, T., Miller, A., Hsieh, K., & Sterns, H. (2000). Later-life planning: Promoting knowledge of options and choice-making. Mental Retardation, 38(5), 395-406.

Sterns, H.L., Kennedy, H.E., Sed, C., & Heller, T. (2000). Later life planning and retirement. In M.P. Janicki & E. F. Ansello (Eds.), Community supports for aging: Adults with lifelong disabilities (pp. 179-191). Baltimore: Brookes.

Heller, T. (2000). Aging family caregivers: Needs and policy concerns. Family Support Policy Brief #3. National Center for Family Support.

Heller, T., Hsieh, K., & Rowitz, L. (2000). Grandparents as supports to mothers of persons with intellectual disability. Journal of Gerontological Social Work, 33, 23-34.

Heller, T. (1998). Aging with intellectual disabilities and later-life family caregiving. In Edelstein, C.A. (Ed.), Comprehensive Clinical Psychology Volume 7, Clinical Geropsychology. Oxford: Pergamon/Elsevier.