Outcomes of Consumer-Directed Family Support (R8)
Principal Investigator: Alan Factor, PhD
Co-Principal Investigator(s): Joseph Caldwell, MS, Tamar Heller, PhD
Goals:
* Examine the impact over a 10-year period of a consumer-directed family support program on placement outcomes, service needs, caregiving appraisal, service satisfaction, employment, and community integration of adults with I/DD
* Conduct a cross-sectional study that examines:
o differential impact of age, single parent status on impact of consumer directed model
o the impact of consumer-directed program on choice making of individuals with I/DD, health status and healthcare utilization of caregivers, social/leisure activities of caregivers, and family out-of-pocket expenses
RESEARCH FINDINGS AND PRODUCTS (2003-2008)
Research Brief: Evaluation of a Model Consumer - Directed Program: Illinois
Research Brief: Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
Management of respite and personal assistance services in a consumer-directed family support programme
RELATED RESEARCH FINDINGS AND PRODUCTS (1998-2003)
Family Financed Housing Options
Family Financed Housing Options - Final Report
Best Practices in Pooled Trust Programs
Best Practices in Pooled Trust Programs - Final Report