Outcomes of Consumer-Directed Family Support (R8)


Principal Investigator: Alan Factor, PhD
Co-Principal Investigator(s): Joseph Caldwell, MS, Tamar Heller, PhD

Goals:

* Examine the impact over a 10-year period of a consumer-directed family support program on placement outcomes, service needs, caregiving appraisal, service satisfaction, employment, and community integration of adults with I/DD
* Conduct a cross-sectional study that examines:
o differential impact of age, single parent status on impact of consumer directed model
o the impact of consumer-directed program on choice making of individuals with I/DD, health status and healthcare utilization of caregivers, social/leisure activities of caregivers, and family out-of-pocket expenses


RESEARCH FINDINGS AND PRODUCTS (2003-2008)

Research Brief: Evaluation of a Model Consumer - Directed Program: Illinois

Research Brief: Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning

Management of respite and personal assistance services in a consumer-directed family support programme

RELATED RESEARCH FINDINGS AND PRODUCTS (1998-2003)

Family Financed Housing Options

Family Financed Housing Options - Final Report

Best Practices in Pooled Trust Programs

Best Practices in Pooled Trust Programs - Final Report