Longitudinal Health and Intellectual Disability Study (LHIDS):
Examining the Effects of Modifiable Health Behaviors on
Health and Function in Adults with ID
- To examine changes across time in the prevalence of five health behaviors (physical activity, dietary habits, smoking, alcohol intake, and oral hygiene) and their impact on health and function in adults with ID by gender, age group, level of ID, and residential setting.
- To examine the impact of baseline musculoskeletal biomarkers (i.e., bone mineral density, strength, balance) across time on health (i.e., with particular reference to falls) and function (i.e., functional limitations) in adults with ID.
- To examine the impact of health behavior changes across time on psychosocial well-being and community participation in adults with ID.
In the general population, adherence to simple health behaviors such as not smoking, maintaining a healthy weight, physical activity, alcohol in moderation, and a healthy diet, may prevent a host of negative health outcomes. Studies that track a representative group of people across time, such as the Framingham Heart Study are instrumental in establishing national guidelines on health promotion and disease prevention. Up until now, no such study has ever been undertaken for persons with ID. The lack of longitudinal data sets limits our ability to meet the health needs of people with ID.
Working in partnership with Special Olympics International (SOI) and with support from the National Institute on Disability and Rehabilitation Research (NIDRR), a research team headed by Drs. James Rimmer and Kelly Hsieh at the Rehabilitation Research and Training Center on Aging with Developmental Disabilities is conducting a longitudinal study to follow a cohort of 1,620 adults with disabilities over a four year period (2010-2013). What we learn from this study will have important implications for medical service delivery, risk prevention, and health policy for persons with ID.
Adults with ID (ages 18 years and older) were recruited through Special Olympics International (SOI) events (World Winter Games in Idaho in February 2009, the USA National Summer Games in Nebraska in July 2010, and other state SOI charters),
Geographic Distribution of LHIDS Participants
Longitudinal and Intellectual Disability Survey
Department of Disability and Human Development
University of Illinois at Chicago
Kelly Hsieh, Ph.D., Principal Investigator
Office: (312) 413-1530
Health & Function. Questions were divided into three sub-sections: (a) Health Status: informant-rated health status including healthy days and overall health; (b) 23 Chronic Health Conditions (e.g., hypertension, high cholesterol, diabetes, dental disease, heart disease, cancer, etc.) and whether or not medication was being taken for the condition; and (c) Physical Function (e.g., use of an assistive aid, performing physical tasks, falls).
Sociodemographics. Sociodemographics included age, gender, race, residential setting, etiology, level of ID, and employment/day services.
The survey was developed in three phases: pre-survey preparation, pilot testing, and survey administration. Each of these phases is described below.