National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Self-Determination and Self-Advocacy Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Self-Determination and Self-Advocacy Issue Brief, AAIDD Inclusion Journal Article, and Video
This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and the National Gateway to Self-Determination. It is also on the National Gateway to Self-Determination website http://www.aucd.org/ngsd/template/index.cfm.
Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities
Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities
Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination
Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development
Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development
This brief describes residential services in Illinois. It reports the number of people with I/DD in different types of residential settings and compares the cost of institutional care to living in small homes in the community.
This brief reports the number of people with I/DD living in state-operated institutions in each state. It also reports the total number of people with I/DD living in different types of residential settings in the United States.
Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...
Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities
Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach
Person-Centered Planning for Later Life: Death and Dying - A Curriculum for Adults with Mental Retardation
This training curriculum helps adults with mental retardation understand death, dying and loss. It covers the concept of death; experiencing and coping with grief, mourning, comfort, and support; and death-related rituals (visitations and funerals). The curriculum consists of five in-class lessons and one field trip, which emphasize active participation through both verbal and visual presentation of materials. The instructor's guide provides a script for each lesson and includes guidelines for planning and administering each lesson. Each participant has a student notebook that accompanies the instructor's training curriculum. Each participant chooses a support person to help him/her review the lessons and complete assignments.
COST PER UNIT: $35.00 + Shipping for Guide and Notebook*
(Additional Student Notebooks are $12.50 each)
This is a curriculum for training persons with disabilities and their co-trainers how to teach other adults with mental retardation about: choice making, rights and responsibilities, how to make healthy choices, and things to do in their free time. The Trainer's Guide uses a "train-the-trainer" approach so the persons with disabilities who are trainers and their co-trainers can learn how to teach effectively and how to administer each module. The Coordinator's Guide provides guidelines for administering the training program and for building support for peer trainers and the other participants who they, in turn, train.
COST PER UNIT: $55.00 for Trainer's Guide and Coordinator's Guide+Shipping
(Additional Trainer's Guides are $25.00 each)
Voices That Count prepares people with developmental disabilities to present to boards, committees and other decision-making groups about how to involve people with developmental disabilities. It empowers people to become part of the decision-making process that affects their own lives. Through Voices That Count, people with developmental disabilities will learn how to approach and present to professional and community organizations about the leadership roles and contributions people with developmental disabilities can make. Speakers will also learn how to give boards and committees ideas on how to recruit, support, and build partnerships with people with developmental disabilities.
COST PER UNIT: $85.00+Shipping
This research-based curriculum enables adults with mental retardation to actively plan for their later years by teaching aging concepts and choice making skills. The 20-week training, which includes a student notebook, provides classroom and community experiences for making choices regarding healthy aging, free-time activities, work and retirement, and improving living arrangements.
COST PER UNIT: $55.00 for Curriculum and Trainer's Guide+Shipping
(Available in English, Dutch and German)