Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities

Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities (2009). Haveman, M.J., Heller, T., Lee, L.A, Maaskant, M.A, Shooshtari, S., Strydom, A. IASSID Special Interest Research Group on Aging and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund.

This paper summarizes a review of the scientific literature over the past fifteen years on the topic of health risks associated with aging in people with an Intellectual Disability. It is a review of descriptive observational research ranging from discussion at the social ‘wellness’ end of the spectrum through to analysis of the impact of aging on the incidence of chronic physical illness.

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A Rich Mosaic: Emerging research on Asian families of persons with intellectual and developmental disabilities

A Rich Mosaic: Emerging research on Asian families of persons with intellectual and developmental disabilities. Ghosh, S., & Magaña S. (2009). In L. Glidden & M. Seltzer (Eds). International Review of Research in Mental Retardation, 37, 179-212.
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Salud en Mujeres Con Discapacidad Intellectual

Salud en Mujeres Con Discapacidad Intellectual (2009).  Heller, T. In M. A. Verdugo Alonso, T. N. Sánchez, B. J. de Urries Vega, & M. Crespo Cuadrado (Eds.)  Mejorando resultados personales para una vida de calidad:  VII jornadas científicas de investigación sobre personas con discapacidad (pp 311-322). Salmanca:  Amaru Ediciones E Inico.

Envejecimiento y Discapacidad Intellectual

Envejecimiento y discapacidad intellectual (2009). Heller, T. In M. A. Verdugo Alonso, T. N. Sánchez, B. J. de Urries Vega, & M. Crespo Cuadrado (Eds.)  Mejorando resultados personales para una vida de calidad:  VII jornadas científicas de investigación sobre personas con discapacidad (pp 57-68).  Salmanca:  Amaru Ediciones E Inico.

Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities

Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities (2009). Marks, B., Sisirak, J., Heller, T. & Cutler, A.

This Health Advocacy Curriculum was developed for the two hour Health Advocacy Workshop to improve access to quality health care for adolescents and young adults with developmental disabilities/special health care needs (DD) through improved attitudes, communication, health literacy, and health advocacy among Pediatric Residents.

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The Health Matters Assessments V.1.0

The Health Matters Assessments V.1.0 (HMA) can be completed by employees of community‚Äźbased day and residential organizations providing services for people with intellectual and developmental disabilities (I/DD). The HMA packet will help you evaluate organizational needs and capacity for developing a health promotion plan including programs, services, environmental support, resources, culture, and employee knowledge and skills to do health promoting activities.
Health Matters Assessments Coverpage

Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities

Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities (2009). Heller, T. & Schindler, A. In L.M. Glidden and M.M. Seltzer (Eds.), International review of research in mental retardation, Vol. 37, (pp. 299-333). Oxford, U.K.: Elsevier Ltd.

Though families are considered the primary provider of support to people with intellectual and developmental disabilities (I/DD), only a small amount of I/DD funding in the United States goes toward offering assistance to these families. In addition, formal interventions typically target families of children with I/DD, which are no longer available when the individual enters adulthood. This chapter reviews the literature on family support interventions for families caring for adults with I/DD. It first examines the impact of lifelong caregiving and the support needs of these families. It then draws attention to various interventions currently available for these families.

To order the hardcover book ($198.00 US), contact Elsevier at http://www.elsevier.com/.
ISBN: 978-0-12-374466-1

New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities

New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.

Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities

Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.

Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning

Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning (2009). Heller, T. & Kramer, J. Intellectual and Developmental Disabilities, 47, 208-219.

Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities

Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities (2009). Yamaki, K., Hsieh, K & Heller, T. Intellectual and Developmental Disabilities, 47(6), 425-435.

Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes

Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.

Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities

Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.