Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning

Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning (2006). Kramer, J. & Heller, T.
Little is known about the role adult siblings play in planning for the future care of their sibling with a developmental disability. This research brief presents the results of a sibling survey to find out the extent siblings are involved in future planning and designated as the future caregiver, the resources they need to assume these responsibilities, and their concerns for the future.

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Hispanic caregivers of adults with mental retardation: The importance of family functioning

Hispanic caregivers of adults with mental retardation: The importance of family functioning. Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). American Journal on Mental Retardation, 111, 250-262.
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2 Read More...

Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status

Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status. Magaña, S., & Smith, M.J. (2006). American Journal of Orthopsychiatry, 76(3), 346-357.
http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract Read More...

Geriatrics

Geriatrics (2006). Pekala Service, K., Tyler, Jr., C.V., & Janicki, M.P. , pp. 575-589.

This chapter is in the book
Medical Care for Children and Adults with Developmental Disabilities (2nd Ed.) edited by I. Leslie Rubin, M.D. and Allen Crocker, M.D. It describes the age-related health and psychosocial issues of older adults with I/DD. Topics include chronic disease, preventive health care, geriatric assessment, medication issues, dementia, end of life care, and the difficulties of medical diagnosis and treatment.

ISBN: 978-1-55766-766-3 
COST: $125.00
Order directly from Brookes Publishing Co. at
www.brookespublishing.com or 1-800-638-3775

Aging and Disability

Aging and Disability (2006). Heller, T. & Marks, B. In G. Albrecht (Ed.), Encyclopedia on Disability, Volume 1, (pp. 67-78). Thousand Oaks, CA: Sage.

ISBN: 9780761925651
COST: $945.00
Order directly from SAGE Publications

http://www.sagepub.com/books
Or Call: 1-800-818-7243

Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach

Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach (2006) Hammel, J., Jones, R., Gossett, A. & Morgan, E. Topics in Stroke Rehabilitation. 13(3), 43-58.

Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome

Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome (2006) Ailey. S.H., A.M., Heller, T. & Smith, E.V. Research and Theory for Nursing Practice. 20, 229-246.

Mother-Child Relationship Quality Among Adolescents and Adults with Autism

Mother-Child Relationship Quality Among Adolescents and Adults with Autism (2006). Orsmond, G.I., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. American Journal on Mental Retardation, 111(2), 121-137.

Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities

Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities (2006). MagaÐa, S. & Smith, M. J. Mental Retardation, 44(3), 224-234.
http://www.scopus.com/record/display.url?eid=2-s2.0-33746171747&origin=inward&txGid=9FFF4580C525FA46837496098E5A3169.y7ESLndDIsN8cE7qwvy6w%3a1

Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism

Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism (2006). Greenberg, J.S., Seltzer, M.M., & Hong, J. American Journal on Mental Retardation, 111(4), 229-249.

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2006). Heller, T., Caldwell, J. Mental Retardation. 44(3). 189-202.

Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families

Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families (2006) Caldwell, J. Mental Retardation. 44(6). 405-417.

Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being

Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being (2006). Esbensen, J., Anna, Seltzer-Mailick, Marsha, Greenberg, J. Journal of Policy and Practice in Intellectual Disabilities 3(4). 229.

Use of State Institutions for People with Intellectual Disabilities in Illinois

Use of State Institutions for People with Intellectual Disabilities in Illinois (2006). Nelis, T. & Rizzolo, M.

This brief describes residential services in Illinois.  It reports the number of people with I/DD in different types of residential settings and compares the cost of institutional care to living in small homes in the community.

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RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities

RRTCADD Disability Research Brief: Body Weight Status of Adults with Intellectual Disabilities (2006). Yamaki, K., Heller, T. & Rimmer, J.

This brief compares the rates of obesity between adults with and without I/DD from 1985 to 2000. It is based on an analysis of the National Health Interview Surveys.

Can be downloaded at no charge (doc file) (pdf)
Study Cover Page

Lessons Drawn From the Critique of the Hissom Closure Evaluation

Lessons Drawn From the Critique of the Hissom Closure Evaluation (2006). Fujiura, G.T. Mental Retardation, 44, 372-375

Future Planning Resource Guide for Families and Adults with Developmental Disabilities in Illinois

Future Planning Resource Guide for Families and Adults With Developmental Disabilities in Illinois (2006, rev.). Caldwell, J., Lopez, E., DeBrine, E., Factor, A., Heller, T. & Ennis, D.

This updated guide helps families navigate the maze of adult services and supports for individuals with developmental disabilities. It responds to families' need for a centralized source of information that describes adult services and how to access them. Content includes an overview of the service system and information on legal and financial planning, vocational and residential services, community supports, recreation and leisure opportunities, transportation, and advocacy. Information is in a user-friendly, question-and-answer format that was recommended by families. The guide is a template that other communities can follow in providing information on local services. Also available in Spanish!