Sibling Connections Newsletter, Fall 2005

Sibling Connections Newsletter (Fall 2005). Kramer, J. & Heller, T. RRTC on Aging with Developmental Disabilities.
Highlights of the RRTCADD’s first conference for siblings of people with disabilities held on October 29-30, 2004. The conference featured nationally known experts on the lifelong relationships of people with disabilities and their siblings and also provided siblings the chance to hear local experts in the field of disability and the opportunity to network with each other.

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Life Course Studies of Siblings of Individuals with Developmental Disabilities

Life Course Studies of Siblings of Individuals with Developmental Disabilities (2005). Seltzer, M.M., Greenburg, J.S., Orsmond, G.I., & Lounds, J. Mental Retardation, 43(5), 354-359.

Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project)

Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A.

A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities. Read More...

Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research

Healthy Aging and Community Participation: National Goals, Current Knowledge, and Future Research (2005). Heller, T., Janicki, M. & Hawkins, B.  In K. C. Lakin, & A. Turnbull (Eds.), National Goals and Research for Persons With Intellectual and Developmental Disabilities (pp 311-322). Washington, DC:  American Association on Mental Retardation.

Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony

Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony (2005). Factor, A.

This brief identifies the issues that aging adults with I/DD and their families face, indicating why their service and support needs should be included in the 2005 White House Conference on Aging Agenda. Read More...

Physical Activity and Fitness

Physical Activity and Fitness (2005). Rimmer, J.H. & Hiss, S. B. 87-128.

This chapter is part of a larger collection titled Health Promotion for Persons with Intellectual and Developmental Disabilities. It is published by the American Association on Mental Retardation (AAMR) in Washington DC.

ISBN: 0-940898-91-8 
COST: $39.95
Order directly from AAMR publishing at
https://bookstore.aaidd.org/index.aspx or 301-604-1340

Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease

Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease (2005). Janicki, M. P., Dalton, A. J., McCallion, P., Baxley, D. D. & Zendell, A. Dementia, 4(3), 361-385.

Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation

Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation (2005). Esbensen, A. J., Seltzer, M. M., Greenberg, J. S. & Benson, B. A. American Journal of Mental Retardation, 110, 469-481.

Promoting Physical Activity Among Older People

Promoting Physical Activity Among Older People (2005). Hughes, S.L., Prohaska, T.R., Rimmer, J.H. & Heller, T. Generations, 29(2), 54-59.

Body Weight Status Among Adults with Intellectual Disability in the Community

Body Weight Status Among Adults with Intellectual Disability in the Community (2005). Yamaki, K. Mental Retardation, 43(1), 1-10.

Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status

Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status (2005). Krauss, M.W., Seltzer, M.M.& Jacobson, H.T. Journal of Intellectual Disability Research. 49(2).111-124.

Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement

Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement (2005). Heller, T. & Caldwell, J. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 63-65.

Life Course Impacts of Mild Intellectual Deficits

Life Course Impacts of Mild Intellectual Deficits (2005). Seltzer, M.M., Floyd, F., Greenberg, J.S., et al. American Journal on Mental Retardation, 110(6), 451-468.

Use of State Institutions for People with Intellectual Disabilities in the United States

Use of State Institutions for People with Intellectual Disabilities in the United States (2005). Nelis, T. & Rizzolo, M.

This brief reports the number of people with I/DD living in state-operated institutions in each state.  It also reports the total number of people with I/DD living in different types of residential settings in the United States.

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Fact Sheets for Healthy Aging

Fact Sheets for Healthy Aging (2005). Pederson, E. & Nelis, T.

The RRTCADD's Facts for Healthy Aging educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatment of a specific health condition. These fact sheets were adapted from the "Age Pages" series for the general population developed by the National Institute on Aging. Currently available fact sheets are:
  • Foot Care
  • High Blood Pressure
  • Exercise
  • Arthritis

Can be downloaded at no charge.

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Health Promotion Pilot Programs Evaluation: Improving Athletes' Health

Health Promotion Pilot Programs Evaluation: Improving Athletes' Health (2005). Prepared by the RRTC on Aging with Developmental Disabilities & Special Olympics.

This report describes the outcomes of a health promotion program for Special Olympics (SO) athletes at 6 sites. The evaluation focused on health status and health behaviors among SO athletes, program satisfaction among coaches and SO athletes, and process and structural variables associated with implementation of health promotions within the SO organization.

For more information, contact Special Olympics at 202-824-0269 or http://www.specialolympics.org.

Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States

Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States (2005). Rizzolo, M.C., Heller, T. & Braddock, D. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 60-62.

Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies

Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies (2005). Baxley, D.L., Janicki, M.P., McCallion, P. & Zendell, A.

This technical assistance manual explains how states can develop aging and developmental disability service network partnerships to better address the needs of older adults with I/DD and the families. It is based on the outcomes of a three-year AoA National Family Caregiver Support Program demonstration the developed and conducted collaboration-building workshops in 33 states. The project was undertaken by The Arc of the United States in collaboration with the Center of Intellectual Disabilities, University at Albany and the Rehabilitation Research and Training Center of Aging with Developmental Disabilities, University of Illinois at Chicago.
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