DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability

DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. It supplements the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief examines how service use and needs vary by age, gender, and (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD].

Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief describes the experiences with public and private health insurance coverage for people with functional limitations, people with I/DD, and people who do not have I/DD or functional limitations. This Brief also examines the variations in these outcomes by gender and age.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.

Continuum of intellectual disability: Demographic evidence for the "forgotten generation"

Continuum of intellectual disability: Demographic evidence for the "forgotten generation" (2003). Fujiura, G.T. Mental Retardation, 41 (6), 420-429.

Deinstitutionalization movement across states

Deinstitutionalization movement across states (I & II) (2003). Vol. 67, 150-154 & 233-236.

Research in developmental disabilities services in the United States

Research in developmental disabilities services in the United States (I & II) (2003). Vol. 67 310-313 & 390-393.

Policy implications for services to older persons with dementia in Japan

Policy implications for services to older persons with dementia in Japan (I & II) (2003). Vol. 67. Takeda, N., Yamaki, K., Janicki, M.P., Heller, T., Suemitsu, S., & Egusa, Y. 465-469 & 556-559. Available in Japanese from the Japanese Journal of Public Health, (2003).

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age (2003). Hawkins, B.A., Eklund, S.J., James, D.R. & Foose, A.K. Mental Retardation, 41(1), 7-28.

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities (2003). Marks, B.A., & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 205-228.
http://www.sciencedirect.com/science/article/pii/S002964650200049X Read More...

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities (2003). Ailey, S.H. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 313-329.

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report (2003). Davidson, P.W., Heller, T., Janicki, M, P., & Hyer, K.

This report identifies the gaps in knowledge about the health of older persons with intellectual and related developmental disabilities. It contains a research agenda for health and mental health outcomes based on the recommendations of the 75 researchers, health professionals, older adults with disabilities, and families who participated in this international conference.

Nursing clinics of North America: Intellectual and developmental disabilities

Nursing clinics of North America: Intellectual and developmental disabilities (2003). Volume 38, No. 2. Hahn, Joan Earle & Marks, Beth A.

This quarterly journal issue reviews new diagnostic and nursing management techniques for individuals with intellectual and related developmental disabilities. Articles address a variety of adult/later life concerns including health promotion, sexuality, the nurse's role in caring for older people, nursing care resources, and support through assistive technologies.

ISSN: 0029-6465 
COST PER UNIT: $51.00
Order directly from W.B. Saunders Company at www.wbsaunders.com or 1-800-654-2452

Mental health, intellectual disabilities and the aging process

Mental health, intellectual disabilities and the aging process (2003). Davidson, P.W., Prasher, V.P., & Janicki, M, P.

Evidence suggests that mental health disorders may occur in up to half of all people with intellectual disability and that these disorders accelerate significantly with age. This book discusses the mental health and behavior needs of adults with intellectual disabilities. It is a major sourcebook on mental health conditions and treatment choices for this population.

ISBN: 1-405-101644 
COST PER UNIT: $44.95
Order directly from Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

Management of respite and personal assistance services in a consumer-directed family support programme

Management of respite and personal assistance services in a consumer-directed family support programme (2003). Caldwell, J., & Heller, T. Journal of Intellectual Disability Research, 47(4/5), 352-366.

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism (Adolescentes y adultos con autismo un estudio de cuidado familiar proyecto Latino). (2003), Magana, S., Seltzer, M.M. & Krauss, M.W.

This bilingual report presents the challenges and rewards of caregiving expressed by Latino families who were part of a national study of families caring for adolescent and adult sons or daughters with autism. Families share their thoughts about their children living at home and away from home, their perspectives on caregiving, how their lives have changed, and what they have learned from this experience.

Family Handbook on Future Planning

Family Handbook on Future Planning (2003). Davis, Sharon, (Ed.). Produced by The Arc of the United States and the RRTC on Aging with Developmental Disabilities.

This guide helps families take the initial steps to address the future personal, legal, and financial needs of their sons or daughters with intellectual and developmental disabilities. It teaches families how to review and inventory their relative's needs and strengths, determine what the plan should include, and locate qualified professionals and resources to finalize the plan. It is an update of The Arc's 1991 handbook on future planning and the 1989 publication How to Provide for Their Future.

Also available at The Arc website: www.thearc.org
To order bound copies contact Jill Fosse at The Arc: 
fosse@thearc.org, (301) 565-5476

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities? (2003). Hammel, J. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 331-349.

Promoting Health across the Lifespan for Persons with Developmental Disabilities

Promoting Health across the Lifespan for Persons with Developmental Disabilities. Hahn, J.E. & Marks, B. (Eds). (2003). Special Issue for Nursing Clinics of North America, 38(2). Read More...

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span (2003). Marks, B.A., Brown, A., Hahn, J.E. & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 373-393.
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities (2003). Ailey, S.A., Marks, B.A., Crisp, C. & Hahn, J.E. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 229-252