Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project)

Information About Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A.

A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities.
The growing number of individuals with intellectual disabilities (ID) affected by Alzheimer disease and related dementias has raised major problems for care providers. How can quality care be provided to these individuals? This paper examines group home-based care solutions adopted by a sample of care providers in five different countries. The aim is to identify trends that have emerged. Two samples of group homes for adults with intellectual disabilities (ID) affected by dementia were studied to determine: (1) what are the physical characteristics of the homes; (2) what physical environmental adaptations have been made in response to behavioral deterioration expressed by residents with dementia, (3) what are the demands on staff resulting from dementia care, and (4) what is the impact of dementia on the home environment. The first sample of group homes in five countries provided comparative international data on home designs, staffing, costs, and residents. The second sample, drawn from homes in the USA and the UK, provided data on the impact of dementia. Findings revealed staffing and design of homes varied but generally abided by general practices of dementia care; homes relied on existing resources to manage changes posed by dementia care; programmatic and environmental adaptations were implemented to address progression of dementia; and residents with dementia presented more demands on staff time with respect to hygiene maintenance and behavior management when compared to other residents not affected by dementia.

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