National Goals Conference: Families Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities

Setting a National Agenda for Family Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Families Issue Brief, AAIDD Inclusion Journal Article, and Video

Families Issue Brief: Supporting Families of People with IDD

Families Journal Article: National Goals for Supporting Families Across the Life Course
Michelle C. Reynolds, George S. Gotto, Catherine Arnold, Thomas L. Boehm, Sandra Magaña, Parthenia Dinora, Mary Lee Fay, and Robin Shaffert (2015)
National Goals for Supporting Families Across the Life Course. Inclusion: December 2015, Vol. 3, No. 4, pp. 260-266.
Abstract: As a core unit of our society, the family provides support for all its members. Due to the nature of their disabilities, people with intellectual and developmental disabilities (IDD) often receive emotional, physical, and material support from their families across the life course. During the National Goals 2015 Conference, three goals were identified that will lead to a better understanding of families and maximize their capacity, strengths, and unique abilities to support, nurture, and facilitate opportunities for family members who have a disability. The three goals are to (1) develop a better understanding of the complex family structures in the United States and the best practices for supporting them; (2) extend our knowledge on how families are or might be supported by their natural communities, outside the purview of IDD systems; and (3) synthesize support practices, implementation strategies, and outcomes for supporting families. This article describes these three goals related to supporting families across the life course and provides a rationale, areas of research to address the goals, and implications for policy and practice for each goal.

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