Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies

Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies (2005). Baxley, D.L., Janicki, M.P., McCallion, P. & Zendell, A.

This technical assistance manual explains how states can develop aging and developmental disability service network partnerships to better address the needs of older adults with I/DD and the families. It is based on the outcomes of a three-year AoA National Family Caregiver Support Program demonstration the developed and conducted collaboration-building workshops in 33 states. The project was undertaken by The Arc of the United States in collaboration with the Center of Intellectual Disabilities, University at Albany and the Rehabilitation Research and Training Center of Aging with Developmental Disabilities, University of Illinois at Chicago.
Aiding older caregivers
This tool kit has been designed as a result of three years of collaboration building workshops in 33 different states. It was made possible through a grant from the Administration on Aging to The Arc of the United States, in collaboration with the Center on Intellectual Disabilities, University at Albany, NY, and the Rehabilitation Research and Training Center on Aging with Developmental Disabilities at the University of Illinois at Chicago. Attendees at these workshops included: state and local aging agencies, state and local developmental disability agencies, family caregivers of individuals with intellectual and developmental disabilities, advocacy agencies, medical professionals and others who play a role in assisting caregivers and individuals with disabilities. The impetus of the workshops arose from the need to disseminate the latest information on aging and intellectual or developmental disabilities (I/DD) and to find ways in which agencies can collaborate to assist caregivers and care recipients maintain their family unit for as long as possible.

Although the workshops took place in very disparate geographic and political environments, there was consensus that agencies want new or enhanced collaborations, but require guidance about how to do so. This tool kit is an accumulation of the materials presented at the workshops along with a compilation of specific concerns and suggestions made by workshop participants. It is the authors’ hope that the information provided within these pages will provide state and local aging agencies with the tools to reach out to form new, or enhance existing, partnerships with state and local developmental disability agencies.

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