National Goals Conference: Long Term Supports and Services Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Long Term Supports and Services Issue Brief, AAIDD Inclusion Journal Article, and Video


Long Term Supports and Services Issue Brief:
 Long-Term Supports and Services for People with IDD

Long Term Supports and Services Journal Article: Long-Term Services and Supports
Randall Owen, Alexandra Bonardi, Val Bradley, John Butterworth, Joe Caldwell, Robin Cooper, Yochai Eisenberg, Marty Ford, Amy Hewitt, Sheryl A. Larson, Mary Kay Rizzolo, David Rotholz, Chris Stewart, Beth Terrill, and Cathy Ficker Terrill (2015).
Long-Term Services and Supports. Inclusion: December 2015, Vol. 3, No. 4, pp. 233-241.
Abstract: People with intellectual and developmental disabilities (IDD) often rely on long-term services and supports (LTSS) to live and work in the community or with their families. As policy reforms continue, it is important that we have research goals to guide the field. In August 2015, an expert panel met to discuss the future of LTSS for people with IDD and reached consensus that future work should ensure adequate funding and quality standards are in place, especially with the growth of managed long-term services and supports (MLTSS) programs, the increasing variety of Medicaid funding authorities used to finance supports for people with IDD, the changes in public policy regarding LTSS, and the application of behavioral supports, particularly positive behavior support (PBS).
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