Advocacy Resources

Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities (2012) by Tamar Heller, Tia Nelis, Sheila Collins and Esther Lee Pederson.


Staying Healthy


Fact Sheets for Healthy Aging, (2005). Pederson, E. & Nelis, T.
The RRTCADD’s Facts for Healthy Aging , educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatments of a specific health condition. These fact sheets were adapted from the “Age Pages” series for the general population developed by the National Institute on Aging.

Fact Sheets
* Foot Care
* High Blood Pressure
* Exercise
* Arthritis

Advocating for Community Living
Use of State Institutions for People with Intellectual Disabilities in Illinois. Nelis, T. & Rizzolo, M. (2006). Chicago: University of Illinois at Chicago and State of the States Project, University of Colorado.

Use of State Institutions for People with Intellectual Disabilities in the United States. Nelis, T. & Rizzolo, M. (2005). Chicago: University of Illinois at Chicago and State of the States Project, University of Colorado.

Participating in Research Studies
Research: A Guide for Self-Advocates with Disabilities. Swaine, J.G., Parish, S.L. & Luken, K. (2011). The Heller School for Social Policy and Management, Brandeis University, Waltham, MA.

Self Advocates Becoming Empowered (SABE)
Over 900 people from around the world attended the SABE 2010 Event in Kansas City to celebrate 20 years of the Self-Advocacy movement. See the video
HERE!