Research Team Sarah H. Ailey Principal Investigator Rush CON Molly Bathje Co-Investigator Rush CHS Tamar Heller Co-Investigator University of Illinois Award Period 6/1/16 – 5/31/17 Funding Source Agency for Healthcare Research and Quality (AHRQ) R13 Conference grant
2pm – 3pm CST
Presented by: Lieke van Heumen, PhD
This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.
Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.
Owen, R., Bowers, A., Heller, T., Hsieh, K. and Gould, R. (2016). The impact of support services teams: Community-based behavioral health support interventions. Journal of Policy and Practice in Intellectual Disabilities. doi:10.1111/jppi.12186.
Background: Community capacity to serve people with intellectual/developmental disabilities (IDD) and behavioral health challenges is often limited. Using interdisciplinary teams to work with stakeholders, including people with IDD, their families, providers, and agencies may help increase this capacity. One example in the United States is the Support Services Teams (SST) program of a midwestern state. Specific Aims: This research aimed to identify changes before to after referral to SST in the proportion of people who used and the total number of admissions/visits, and prescriptions; and the Medicaid liability associated with emergency room (ER), hospital, and pharmacy services for SST participants. Second, the research described the SST participants and services provided. Method: The authors used Wilcoxon and McNemar’s tests to compare hospital, ER, and pharmacy outcome measures for 109 people who were referred to SST and had 12 months of data before and after referral. Separate analyses were also conducted for the 88 people who remained in the community after referral and the 21 people who had short institutional stays. Findings: For the full population of SST participants, the proportion of people with a hospital admission, the total number of hospital admissions, and Medicaid liability for hospitalizations significantly decreased from before to after referral to SST. Medicaid liability for prescriptions significantly decreased for people with an institutional stay. Changes in the other outcomes trended downwards, although not significantly. Discussion: This study shows that the use of interdisciplinary teams for people with IDD and behavioral health challenges can be effective in reducing the use of services. These teams can help to build community capacity to work with these individuals and avoid more costly ER and hospital services and reduce the number of medications prescribed.
Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917
Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference
Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915
Aging and Developmental Disability: Current Research, Programming, and Practice Implications (2001). Hammel, J. & Nochajski, S. Binghamton: The Haworth Press
This book explores the research findings and practice implications pertaining to normative and disability-related aging. It discusses the effectiveness of specific interventions for aging adults with intellectual and related developmental disabilities, including assistive technology and environmental intervention. The book provides web site resources to disability organizations, databases, and other sites.
COST PER UNIT: $22.95 (soft cover); $39.95 (hardcover)
Order directly from The Haworth Press at www.haworthpress.com or 1-800-429-6784
Outcomes of Assistive Technology Services and Use by Adults with Developmental Disabilities (1998). Hammel, J., Heller, T., & Ying, G., RESNA 1998 Annual Conference Proceedings, pp.14-16.
A report of an outcome study of AT service delivery, use, and relationship to functional status changes over time. The study was conducted among adults specifically with cerebral palsy and mental retardation living in the community.
Aging With Developmental Disabilities: An Information Packet on Understanding Age-Related Changes and Supporting Successful Aging
Aging With Developmental Disabilities: An Information Packet on Understanding Age-Related Changes and Supporting Successful Aging (1997). Factor, A.
This packet provides a basic understanding of age-related changes and their implications for adults with developmental disabilities and their families. Topics include: the aging process and its implications; supporting individual choice and community membership; and engaging and supporting older families in making future plans for their relative with a disability. It contains guidelines and practical suggestions for supporting individual choice and community membership, healthy aging and family future planning.
Assistive Technology and You: A Guide For Families and Persons With Disabilities (1997), Hedman, G., Hooyenga, K.,Politano, P. & Sposato, B.
This guidebook provides information about the various uses of assistive technology for accessibility, activities of daily living, augmentative communication, computer access, environmental control, seating, mobility, and work site modification. It contains photographs and descriptions of devices, their applications, and guidelines to help families and users become informed consumers in selecting equipment. The guide was written by assistive technology clinicians and reviewed by consumers, families and community agency professionals. It was developed by the Assistive Technology Unit at the Institute on Disability and Human Development in collaboration with the RRTC on Aging with Developmental Disabilities.
Older Adults With Mental Retardation and Their Families (1997). Heller, T. A chapter in Bray, N. W. (Ed.) International Review of Research in Mental Retardation-Vol 20.
This chapter addresses the needs of older adults with mental retardation and their families from a psychosocial model that examines age-related changes and from the broader perspective of demographic and service trends affecting this population.
COST PER UNIT: $104.95
Order directly from Academic Press, 525 B. Street, Suite 1900, San Diego, CA 92101-4495, USA;
Or order it online here.