Health Promotion Pilot Programs Evaluation: Improving Athletes’ Health

Health Promotion Pilot Programs Evaluation: Improving Athletes’ Health (2005). Prepared by the RRTC on Aging with Developmental Disabilities & Special Olympics.

This report describes the outcomes of a health promotion program for Special Olympics (SO) athletes at 6 sites. The evaluation focused on health status and health behaviors among SO athletes, program satisfaction among coaches and SO athletes, and process and structural variables associated with implementation of health promotions within the SO organization.

For more information, contact Special Olympics at 202-824-0269 or http://www.specialolympics.org.

Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers

Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers (Rev. March, 2004). Heller, T., & Factor, A.

This fact sheet uses a question-and-answer format to present frequently requested information about aging with mental retardation. It provides an overview of demographics, age-related changes, service and support needs for older adults and their families, and new service models and resources.

Predictors of Use of Nursing Homes and State Institutions for Persons with DD

Predictors of Use of Nursing Homes and State Institutions for Persons with DD (2004). Rizzolo, M.K. 

This RRTCADD research brief explains the wide variation in states’ use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without developmental disabilities.

Predictors Banner

Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois

Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois (2004). Heller, T. & Caldwell, J. 

This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home residential placements.

Evaluation Brief Banner

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2004). Heller, T., Caldwell, J. & Factor, A. 

This brief evaluates the outcomes of an innovative training curriculum that equips adults with disabilities and their families with the communication skills and information to jointly plan for the future with the support of peer mentors who have already made plans.

Future Planning Banner

DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability

DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. It supplements the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief examines how service use and needs vary by age, gender, and (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD].

Order online from University of Minnesota, by phone 612-624-4512, or by email: publications@icimail.umn.edu.

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief describes the experiences with public and private health insurance coverage for people with functional limitations, people with I/DD, and people who do not have I/DD or functional limitations. This Brief also examines the variations in these outcomes by gender and age.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report (2003). Davidson, P.W., Heller, T., Janicki, M, P., & Hyer, K.

This report identifies the gaps in knowledge about the health of older persons with intellectual and related developmental disabilities. It contains a research agenda for health and mental health outcomes based on the recommendations of the 75 researchers, health professionals, older adults with disabilities, and families who participated in this international conference.

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism (Adolescentes y adultos con autismo un estudio de cuidado familiar proyecto Latino). (2003), Magana, S., Seltzer, M.M. & Krauss, M.W.

This bilingual report presents the challenges and rewards of caregiving expressed by Latino families who were part of a national study of families caring for adolescent and adult sons or daughters with autism. Families share their thoughts about their children living at home and away from home, their perspectives on caregiving, how their lives have changed, and what they have learned from this experience.