Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities

Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J. & Dufresne, D.

This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.  The SLN was founded by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, the Nisonger Center at The Ohio State University, the Sibling Support Project, and the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.

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A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report

A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report (2007). Heller,T., Connolly, K. & Lacey, B.  Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.

This report describes the development and outcomes of a one-stop center that meets the information and support needs of unserved and under-served Chicago area Latino families of children and adults with developmental disabilities.  The center is a unique family driven model that demonstrates how advocacy training enabled these families to obtain long-term funding to sustain the center’s operations. This report is available in English and Spanish.

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Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning

Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning (2006). Kramer, J. & Heller, T.
Little is known about the role adult siblings play in planning for the future care of their sibling with a developmental disability. This research brief presents the results of a sibling survey to find out the extent siblings are involved in future planning and designated as the future caregiver, the resources they need to assume these responsibilities, and their concerns for the future.

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Sibling Connections Newsletter, Fall 2005

Sibling Connections Newsletter (Fall 2005). Kramer, J. & Heller, T. RRTC on Aging with Developmental Disabilities.
Highlights of the RRTCADD’s first conference for siblings of people with disabilities held on October 29-30, 2004. The conference featured nationally known experts on the lifelong relationships of people with disabilities and their siblings and also provided siblings the chance to hear local experts in the field of disability and the opportunity to network with each other.

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