Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies (2005). Baxley, D.L., Janicki, M.P., McCallion, P. & Zendell, A.
This technical assistance manual explains how states can develop aging and developmental disability service network partnerships to better address the needs of older adults with I/DD and the families. It is based on the outcomes of a three-year AoA National Family Caregiver Support Program demonstration the developed and conducted collaboration-building workshops in 33 states. The project was undertaken by The Arc of the United States in collaboration with the Center of Intellectual Disabilities, University at Albany and the Rehabilitation Research and Training Center of Aging with Developmental Disabilities, University of Illinois at Chicago.
American Journal on Mental Retardation: Special Issue on Family and Service System Supports (September 2004). Heller, T. (Ed.). Volume 109, Issue 5.
Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons with intellectual disabilities in Australia, the United States, Israel, and Ireland and discusses the impact on their health and social service systems.
Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities (2004). Davidson, P.W., Heller, T. & Hyer, K. In Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1). pp. 2-9.
Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1).
Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental Disabilities
The Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522
Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers (Rev. March, 2004). Heller, T., & Factor, A.
This fact sheet uses a question-and-answer format to present frequently requested information about aging with mental retardation. It provides an overview of demographics, age-related changes, service and support needs for older adults and their families, and new service models and resources.
Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.
Predictors of Use of Nursing Homes and State Institutions for Persons with DD (2004). Rizzolo, M.K.
This RRTCADD research brief explains the wide variation in states’ use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without developmental disabilities.
Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois (2004). Heller, T. & Caldwell, J.
This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home residential placements.
Public Spending for Developmental Disabilities in the United States: An Historical-Comparative Perspective (2004). Braddock, D., Rizzolo, M.C., Hemp, R. & Parish, S. In R.J. Stancliffe and K.C. Lakin (Eds.) Cost and Outcomes of Community Services for People With Intellectual Disabilities. Baltimore: Brookes Publishing Company.
This book provides a comprehensive analysis of the cost of community services for individuals with I/DD. It examines the criteria used to allocate funds, differences in outcomes and costs for various service models, and policy considerations in developing individualized services within state systems.
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Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization (2004). Merrick, J., Davidson, P.W., Morad, M., Janicki, M.P., Wexler, O. & Henderson, C.M. In American Journal on Mental Retardation, 109(5) pp. 413-420.