‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.
This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices. It provides a summary of the challenges facing the nation as we observe an increasing rate of dementia found in older people with intellectual disabilities.The Report offers recommendations for the various stakeholders in the field of intellectual disabilities and anticipates that its findings and recommendations will be considered and integrated into the annual reports and plans developed by the federal Advisory Council on Alzheimer’s Research, Care, and Services. The RRTCADD and the American Academy of Developmental Medicine and Dentistry organized the Task Group and co-authored the report (Download in PDF).
Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities (Winter, 2010). Heller, T., Stafford, P.B., Davis, L.A. & Sedlezky, L. Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living and Employment, College of Education and Human Development, University of Minnesota. Volume 23, Number 1.
Offers fresh, practical, and challenging perspectives on supporting aging individuals with disabilities and their families.
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.
State of the Science Symposium on Aging and Developmental Disabilities (December 2008). Heller, T. Janicki. M.P., Marks, B., Hammel, J. & Factor, A.
Brief report on the symposium State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living on May 21–22, 2007, in Atlanta, Georgia
Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J. & Dufresne, D.
This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. The SLN was founded by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, the Nisonger Center at The Ohio State University, the Sibling Support Project, and the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
A Community Coming Together to Support Children and Adults with Developmental Disabilities and Their Families: Project for Family Support 360 Final Report (2007). Heller,T., Connolly, K. & Lacey, B. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.
This report describes the development and outcomes of a one-stop center that meets the information and support needs of unserved and under-served Chicago area Latino families of children and adults with developmental disabilities. The center is a unique family driven model that demonstrates how advocacy training enabled these families to obtain long-term funding to sustain the center’s operations. This report is available in English and Spanish.
International Perspectives (2007). Emerson, E., Fujiura, G.T. & Hatton, C. In The Handbook of Developmental Disabilities Odom, S. L., Horner, R.H., Snell, M. & J. Blacher (Eds.) pp. 593-613.
A discussion of international policy and research in the field of developmental disabilities.
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Cultural Competence Revisited: Nursing Students with Disabilities (2007). Marks, B. Journal of Nursing Education, 46(2).
The demographic profile of students in nursing schools is changing in relation to many different cultural backgrounds. Despite the potential for students with disabilities to enrich the nursing profession, nurse educators may be perpetuating historical attitudes, values, and practices that exclude students with disabilities from gaining admission or identifying themselves as people with disabilities. Educators in nursing schools continue to ask whether people with disabilities have a place in the nursing profession, while the more salient question is, “When will people with disabilities have a place in the nursing profession?” More important, as we create environments that welcome students with disabilities into the nursing profession, how does the quality of nursing care improve and become more appropriate for people with different cultural experiences? The purpose of this article is to present the value of recruiting students with disabilities into nursing schools in order to enhance culturally competent nursing care.
Cultural Competence Revisited: Nursing Students with Disabilities
Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program (2007). Caldwell, J. Disability & Society, 22 (6), 549-562.