Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities

January 5, 2016
This study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Analyzing data from the 2002-2011 Medical Expenditure Panel Survey and the 2000-2010 National Health Interview Survey, we found that Black and Latino adults with intellectual and developmental disabilities have markedly worse health in contrast to their white peers with intellectual and developmental disabilities. Included in the document is an analysis of policy opportunities around health disparities, including obesity prevalence, among adults with intellectual disabilities.
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Authored
Sandra Magana, Department of Disability and Human Development at the University of Illinois at Chicago (UIC-DDHD)
Susan Parish, Rehabilitation Research and Training Centers on Developmental Disabilities and Health at the Lurie Institute for Disability Policy, The Heller School for Social Policy and Management, Brandeis University (Lurie Institute)
Miguel Morales, UIC-DDHD
Henan Li, Lurie Institute
Glenn Fujiura, UIC-DDHD
The policy opportunity analysis was authored by
Ben Jackson, Association of University Centers on Disabilities (AUCD)
Adriane Griffen, AUCD

Policy to Practice: Falls in Adults with Intellectual Disabilities

August 3, 2016
One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious injury and hospitalization, and an important public health concern. Using baseline data from the Longitudinal Health and Intellectual Disability Study, we examined the prevalence of falls and potential risk factors for falls in adults with ID.
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Authors
Kelly Hsieh, Department of Disability and Human Development, University of Illinois at Chicago
James H. Rimmer, Civitan International Research Center and Sparks Clinics, University of Alabama at Birmingham
Tamar Heller, Department of Disability and Human Development, University of Illinois at Chicago
Jessica Minor, Association of University Centers on Disabilities, Silver Spring, MD Christine Grosso, Association of University Centers on Disabilities, Silver Spring, MD

Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (Eds.) (2016), Health Care for People with Intellectual and Developmental Disabilities across the Lifespan
Switzerland: Springer.
A new book has been published that offers a unique lifespan approach on health care for people with intellectual and developmental disabilities. It addresses the clinical as well as the systems of delivery of health care. It also provides a practical approach to dealing with the health and well-being of people with intellectual and developmental disabilities.
http://www.springer.com/us/book/9783319180953?wt_mc=Alerts.NBA.SpringerAuthors-May-1
Chapters written by researchers of the Rehabilitation Research and Training Centre on Developmental Disabilities and Health include the following:
 
Kruti Acharya, Abigail Schindler and Tamar Heller:
Aging: Demographics, Trajectories and Health System Issues, pp 1423-1432.
 
David Ervin
Healthcare Financing, pp 177-183
 
David Erwin and Brian Hennen
Community Healthcare, pp. 229-241
 
James Rimmer and Kelly Hsieh
Health Promotion, pp1087-1103

Perceptions of health and healthcare of people with intellectual and developmental disabilities enrolled in Medicaid Managed Care

Gibbons, H. M., Owen, R., & Heller, T. (2016). Perceptions of health and healthcare of people with intellectual and developmental disabilities enrolled in Medicaid Managed Care. Intellectual and Developmental Disabilities, 54(2), 94-105. DOI: 10.1352/1934-9556-54.2.94
 
Abstract:
This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured interviews were conducted with 23 participants. Findings indicate that participants generally expressed being in good health and defined good health as (a) absence of pain, disease, and symptoms; (b) adherence to or not requiring treatment; (c) physical self-care; (d) mental or spiritual self-care; and (e) ability to perform the activities one wants to do. Participants conceptualized healthcare as (a) ensuring needs are met through access to services, (b) obtaining quality services, (c) navigating the healthcare system successfully, and (d) receiving humanizing healthcare. This study has implications for improving healthcare and communications between people with IDD and healthcare providers.

Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities

Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities
Volume 29 · Number 1 • Winter 2016

This issue is co-edited by Kelly Hsieh and includes articles about the HealthMatters study and intervention that is led by Jasmina Sisirak and Beth Marks and an article Tia Nelis.

Online in PDF at https://ici.umn.edu/products/impact/291/291.pdf and http://rrtcadd.org/resources/Impact_29_1_-Winter_2016.pdf.

National Goals Conference: Health and Wellness Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Health and Wellness Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Health and Wellness Issue Brief, AAIDD Inclusion Journal Article, and Video

Pregnancy Outcomes for Women with Intellectual and Developmental Disabilities

Pregnancy Outcomes for Women with Intellectual and Developmental Disabilities

Presenters: Susan Parish, PhD, MSW


RRTCDD 2016 Health and Wellness Series Webinar

Did you know women with I/DD had longer hospital stays, and were more likely to have Caesarean deliveries in contrast to other women? Rates of adverse pregnancy outcomes were elevated for women with IDD across a range of measures, including early labor, preterm birth, and preeclampsia, and their infants were more likely to have low birth weight. Dr. Susan Parish will present findings from a study that compared deliveries among women with IDD to the general obstetric population, and discuss the implications of these findings, as well as the targeted interventions needed to address these detrimental outcomes.

Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities

Sandra Magaña, Susan Parish, Miguel A. Morales, Henan Li and Glenn T. Fujiura

Overview
This
study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Analyzing data from the 2002-2011 Medical Expenditure Panel Survey and the 2000-2010 National Health Interview Survey, we found that Black and Latino adults with intellectual and developmental disabilities have markedly worse health in contrast to their white peers with intellectual and developmental disabilities.
Full Brief

Life course health and healthcare utilization among adults with spina bifida

Liptak GS, Robinson LM, Davidson PW, Dziorny A, Lavalley R, Flaherty MG, Dosa NP

Developmental Medicine & Child Neurology 2015 Nov 2

Abstract
AIM:
To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.

METHOD: This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).

RESULTS: Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).

INTERPRETATION: Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.

doi: 10.1111/dmcn.12952