Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369.
The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report. (2012). Heller, T., Hsieh, K., Badetti, L., & Parker, H. (2012). Chicago: University of Illinois at Chicago. Special Olympics Collaborating Research Center, Institute on Disability and Human Development, University of Illinois at Chicago.To view report, click here.
Preventing Health Problems among People with Intellectual and Developmental Disabilities: DSPs’ Role in Observing and Reporting Early Signs and Symptoms
Preventing Health Problems among People with Intellectual and Developmental Disabilities: DSPs’ Role in Observing and Reporting Early Signs and Symptoms. Marks, B. & Sisirak, J. (2012). Frontline Initiative, 10(2).
HealthMatters for People with Developmental Disabilities: Take Charge! Marks, B. & Sisirak, J. (2012). National Gateway to Self-Determination.
‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports
‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.
This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices. It provides a summary of the challenges facing the nation as we observe an increasing rate of dementia found in older people with intellectual disabilities.The Report offers recommendations for the various stakeholders in the field of intellectual disabilities and anticipates that its findings and recommendations will be considered and integrated into the annual reports and plans developed by the federal Advisory Council on Alzheimer’s Research, Care, and Services. The RRTCADD and the American Academy of Developmental Medicine and Dentistry organized the Task Group and co-authored the report (Download in PDF).
Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?
Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities? (February 2011). Heller, T., McCubbin, J.A., Drum, D. & Peterson, J. Intellectual and Developmental Disabilities, 49 (1), 26-36.
Lessons Learned: Community Based Train the Trainer Health Promotion Programming for People with ID. Sisirak, J. & Marks, B. (2010). Abstracts of the Third International Conference of IASSID Europe, 20-22 October, 2010, Rome. Journal of Applied Research in Intellectual Disabilities, 23(5), 467.
Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities
Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities (2010). Marks, B., Sisirak, J. & Heller, T. Baltimore: Paul H. Brookes Publishing Co.
The HealthMatters Program is a research-based, field-tested program that’s already made a dramatic difference in the lives of participants with disabilities, this proven curriculum shows professionals how to conduct up to 59 one-hour sessions that help people make the best choices about health, exercise, and nutrition.
We will be starting the “HealthMatters Program Scale-Up: Multi-State Systematic Approach.” This project will examine the challenges to successful replication of the HealthMatters Program intervention, and the conditions and activities that contribute to effective adoption in real-world settings. By implementing this project, we have a unique opportunity to contribute to the larger body of research and science by developing a Scale-Up Logic Model detailing the necessary components to achieve systematic reach and impact among a population that often receives lifelong community based supports and health care services within complex and divers systems across the U.S.
Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies (2010). Haveman, M., Heller, T., Lee, L., Maaskant, S.S. & Strydom, A. In Journal of Policy and Practice in Intellectual Disabilities: Special Issue on Aging, 59-69.
Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities
Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities (2010). Robinson, L. M., Davidson, P. W., Henderson, C. M., Janicki, M. P., Merrick, J., Morad, M., Wang, K. Y., Hsieh, K., Heller, T., Bishop, K. M. & Wexler, O. International Journal on Disability and Human Development, 9 (4), 329–338