Community Outreach Collaboratives | National Disability Navigator Resource Collaborative

Community Outreach Collaboratives The NDNRC has funded eighteen Community Outreach Collaboratives (COCs) for the third year of open enrollment – expanding on the eleven COCs who were funded in year two. The COCs will increase collaborations in the community, dissemination and outreach efforts and enrollment of people with disabilities in the ACA. The COCs have two primary tasks: 1) build cross-disability collaborations with other disability organizations; and 2) have the cross-disability collaboration work

Source: Community Outreach Collaboratives | National Disability Navigator Resource Collaborative

Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities

Source: Disability Stigma and Your Patients | Rehabilitation Research and Training Center on Aging With Physical Disabilities

For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact of stigma.

Transition of Young Adults with Developmental Disabilities to Adult-Systems of Care

2017/03/16
2pm – 3pm CST

REGISTER HERE

Presented by: Kruti Acharya, MD

Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.

Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.

Lessons in Increasing Access to Care: Symposium at Rush brings together disability and health care leaders

https://www.rush.edu/news/lessons-increasing-access-care

By Kevin McKeough, Anne Burgeson & Kathleen Ziemer

Illinois Attorney General Lisa Madigan observed that “at almost any moment, any of us could be living with a disability, whether through our life circumstances or as we age. This is an issue that is personal to all of us, whether we realize it our not.”

Madigan the was the featured speaker at the Rush ADA 25 Symposium, held on Oct. 6 at Rush University Medical Center. The event celebrated the 25th anniversary of the Americans With Disabilities Act, which became law on July 26, 1990.

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Lessons in Increasing Access to Care: Symposium at Rush brings together disability and health care leaders

https://www.rush.edu/news/lessons-increasing-access-care

By Kevin McKeough, Anne Burgeson and Kathleen Ziemer

Illinois Attorney General Lisa Madigan observed that “at almost any moment, any of us could be living with a disability, whether through our life circumstances or as we age. This is an issue that is personal to all of us, whether we realize it our not.”

Madigan the was the featured speaker at the Rush ADA 25 Symposium, held on Oct. 6 at Rush University Medical Center. The event celebrated the 25th anniversary of the Americans With Disabilities Act, which became law on July 26, 1990.

Continue Reading

White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs for the California Committee on Employment of People with Disabilities (CCEPD)

Marks, B. & Ailey, S. (2014). White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs for the California Committee on the Employment of People with Disabilities. Chicago, IL. Featured on The American Association of Colleges of Nursing (AACN) website: Accommodating Students with Disabilities (https://tinyurl.com/ov6tlec).

A White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs is available on the American Association of Colleges of Nursing (AACN) website. This paper also presents a new model of technical standards inclusive of all students with and without  disabilities.

ABSTRACT: Nurses  are  challenged  to  fill  the  new  and  expanded  roles  for  a  health  care  system  designed  to improve the quality  of  health  care.  Despite  the  unique  perspective  and  set  of  skills  that students and health professionals with disabilities have to address many of these challenges, people  with  disabilities  are  often effectively  excluded from  the  nursing  profession. The purposes of this white paper are to 1) frame the issues that prevent applicants with disabilities from entering nursing education and the nursing profession and 2) propose the changes necessary to engage the potential of people with disabilities to enhance nursing leadership and innovation  necessary  to transform  health  care.  Major  barriers  include  the  following: 1) outmoded admission standards that deter applicants with disabilities; 2) misconceptions about the capacity of students with disabilities to function effectively in the clinical components of nursing education; and, 3) lack of a comprehensive understanding of issues related to patient safety. This paper begins with an historical overview of the journey toward the acceptance of nurses with disabilities, including civil rights legislation, judicial rulings with reference to specific landmark cases, and the development of current technical and educational standards. The paper also presents a new model of technical standards inclusive of all students with and without  disabilities, along with recommendations  supportive  of  students with  disabilities  in admission, matriculation and graduation from nursing programs.


Additional Resources

  1. A New Model of Technical Standards
  1. White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs
  1. ADAAA and Accommodations



Citation:
Marks, B & Ailey, S. A. (2014) White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs. Sacramento, CA: California Committee on Employment of People with Disabilities (CCEPD).

For people with disabilities, doctors are not always healers

Washington Post

It was midnight in the emergency department of my hospital, and the chief resident was on a roll. Clad in green scrubs — two sizes too small for his body, they emphasized his muscular physique — he dashed between the ambulance bay and the critical care rooms.
“Wen!” he barked at me, the medical intern. “Come over here to do the ‘rule-out-heart-attack’ in 3.” Two medical students grabbed their notepads and followed the chief resident and me into the room.
The patient did not look as if he were having a heart attack. Dressed in a tailored suit, a young man with a neat ponytail sat in bed, texting on his BlackBerry. The nurse’s note said the 31-year- old was having chest pain. His vital signs and electrocardiogram were normal.
“Good evening!” boomed the chief. We formed an imposing circle around the stretcher. “How are you doing?”

A Room With A Grim View: The ‘Ambient Despair’ That Marks Life In Assisted Living

A Room With A Grim View: The ‘Ambient Despair’ That Marks Life In Assisted Living
By Martin Bayne

After entering an assisted living facility at age fifty-three because of young-onset Parkinson’s, an observer-advocate contemplates the dire need for long-term care reform.

Read: (http://content.healthaffairs.org/content/31/7/1633.full.pdf)
Listen: (http://www.healthaffairs.org/Media/podcasts/narrativematters/aging/bayne_martin_aroomwithagrimview_2012_full.mp3)
Download PDF

The essay appears in Health Affairs’ July 2012 issue.

Visit the free Narrative Matters essay archive. Narrative Matters is published with support from the W.K. Kellogg Foundation.