Dementia

NTG Caregivers Newsletter on ID and Dementia Practices (Volume 1, Issue 1)

Welcome to the first issue of the NTG Caregiver News (Volume 1 Issue 1) March 2017. This publication has grown out of the NTG’s Family Caregiver Online Support Group for those who are caring for, or have cared for, loved ones with Alzheimer’s and intellectual disabilities. Once each month, we open the airwaves to share …

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Nurses’ experience of caring for people with intellectual disability and dementia

Josephine Cleary and Owen Doody Aims and objectives. To explore nurses’ experiences of caring for older people with intellectual disability and dementia. Background. Ageing and dementia prevalence is increasing along with the life expectancy of people with intellectual disability. As a population group, people with intellectual disability have a high prevalence of dementia, which is …

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International Summit Consensus Statement: Intellectual Disability Inclusion in National Dementia Plans

Karen Watchman, PhD1, Matthew P. Janicki, PhD2, Michael Splaine, MA3, Frode K. Larsen4, Tiziano Gomiero, PhD5 and Ronald Lucchino, PhD6 1 University of Stirling, Scotland, UK 2 University of Illinois at Chicago, USA 3 Splaine Consulting, Columbia, Maryland USA 4 Norwegian National Advisory Unit on Ageing and Health, Oslo, Norway 5 ANFFAS Trentino Onlus, Trento, …

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Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia

McCallion, P.1, Hogan, M.2, Santos, F H.3, McCarron, M.4, Service, K.5, Stemp, S.6, Keller, S.7, Fortea, J.8, Bishop, K.9, Watchman, K.,10 Janicki, M.P.11 and the Working Group of the International Summit on Intellectual Disability and Dementia Abstract Adults with intellectual disability are affected by dementia at equivalent and elevated rates; many surviving into advanced age. …

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Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature

Janicki, M.P.1, McCallion. P.2, Splaine, M.3, Santos, F.H.4, Keller, S.M.5, Watchman, K.6. (October 2017). Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature. American Association on Intellectual and Developmental Disabilities (AAIDD). 1 University of Illinois at Chicago, USA 2 University at Albany, New York USA 3 Splaine Consulting, Columbia, Maryland …

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Aging and Dementia Care for People with Intellectual Disabilities

 Thursday, February 16, 2017 3:00pm | Eastern Daylight Time Presented by: Matthew Janicki, PhD Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer’s disease (and related dementias), affects a significant number of adults …

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Group home care for adults with intellectual disabilities and Alzheimer’s disease

Janicki, M.P. (2016). Stationäre Einrichtungen der Behindertenhilfe für Menschen mit geistiger Behinderung und dementieller Erkrankung [Group home care for adults with intellectual disabilities and Alzheimer’s disease]. In S.V. Müller and C. Gärtner (Eds.), Lebensqualität im Alter: Perspektiven für Menschen mit geistiger Behinderung und psychischen Erkrankungen [Quality of life in old age: prospects for people with …

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Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study

Elisabeth L. Zeilinger, Claudia Gärtner, Matthew P. Janicki, Lucille Esralew & Germain Weber Journal of Intellectual & Developmental DisabilitiesPublished online: 23 Nov 2015http://dx.doi.org/10.3109/13668250.2015.1113238 ABSTRACT Background In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group …

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Why do we need national guidelines for adults with intellectual disability and dementia?

New Article Highlights Need for National Practice Guidelines for Adults with ID and Dementia Matthew P. Janicki and Seth M. Keller The NIDILRR-funded Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD)  recently published an article, Why do we need national guidelines for adults with intellectual disability (ID) and dementia? in the open access …

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Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and Dementia: National Task Group on Intellectual Disabilities and Dementia Practices. Intellectual and Developmental Disabilities

Kathleen M. Bishop, Mary Hogan, Matthew P. Janicki, Seth M. Keller, Ronald Lucchino, Dawna T. Mughal, Elizabeth A. Perkins, Baldev K. Singh, Kathy Service, Sarah Wolfson, and the Health Planning Work Group of the National Task Group on Intellectual Disabilities and Dementia Practices (2015) Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and …

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