Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities

Heller, T., Nelis, T., Collins, S. & Pederson, E.L. (2012)

This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and the National Gateway to Self-Determination.  It is also on the National Gateway to Self-Determination website http://www.aucd.org/ngsd/template/index.cfm.
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The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities

The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities (2010). Factor, A., DeBrine, E., Caldwell, J., Arnold, K., Kramer, J., Nelis, T. & Heller, T.
This curriculum equips families and their adult relative with a disability with the communication skills and information to jointly plan for the future.

Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities

Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities (2010). Marks, B., Sisirak, J. & Heller, T. Baltimore: Paul H. Brookes Publishing Co.

The HealthMatters Program is a research-based, field-tested program that’s already made a dramatic difference in the lives of participants with disabilities, this proven curriculum shows professionals how to conduct up to 59 one-hour sessions that help people make the best choices about health, exercise, and nutrition.

We will be starting the “HealthMatters Program Scale-Up: Multi-State Systematic Approach.” This project will examine the challenges to successful replication of the HealthMatters Program intervention, and the conditions and activities that contribute to effective adoption in real-world settings. By implementing this project, we have a unique opportunity to contribute to the larger body of research and science by developing a Scale-Up Logic Model detailing the necessary components to achieve systematic reach and impact among a population that often receives lifelong community based supports and health care services within complex and divers systems across the U.S.

ISBN: 78-1-55766-999-5
Order directly from Brookes Publishing Co. at
www.brookespublishing.com (800-638-3775) or Amazon
Health Matters Curriculum Cover Page

Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities

Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities (2009). Marks, B., Sisirak, J., Heller, T. & Cutler, A.

This Health Advocacy Curriculum was developed for the two hour Health Advocacy Workshop to improve access to quality health care for adolescents and young adults with developmental disabilities/special health care needs (DD) through improved attitudes, communication, health literacy, and health advocacy among Pediatric Residents.

BuildingCapacity

The Health Matters Assessments V.1.0

The Health Matters Assessments V.1.0 (HMA) can be completed by employees of community‐based day and residential organizations providing services for people with intellectual and developmental disabilities (I/DD). The HMA packet will help you evaluate organizational needs and capacity for developing a health promotion plan including programs, services, environmental support, resources, culture, and employee knowledge and skills to do health promoting activities.
Health Matters Assessments Coverpage

Future Planning Resource Guide for Families and Adults with Developmental Disabilities in Illinois

Future Planning Resource Guide for Families and Adults With Developmental Disabilities in Illinois (2006, rev.). Caldwell, J., Lopez, E., DeBrine, E., Factor, A., Heller, T. & Ennis, D.

This updated guide helps families navigate the maze of adult services and supports for individuals with developmental disabilities. It responds to families’ need for a centralized source of information that describes adult services and how to access them. Content includes an overview of the service system and information on legal and financial planning, vocational and residential services, community supports, recreation and leisure opportunities, transportation, and advocacy. Information is in a user-friendly, question-and-answer format that was recommended by families. The guide is a template that other communities can follow in providing information on local services. Also available in Spanish!

Fact Sheets for Healthy Aging

Fact Sheets for Healthy Aging (2005). Pederson, E. & Nelis, T.

The RRTCADD’s Facts for Healthy Aging educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatment of a specific health condition. These fact sheets were adapted from the “Age Pages” series for the general population developed by the National Institute on Aging. Currently available fact sheets are:

  • Foot Care
  • High Blood Pressure
  • Exercise
  • Arthritis


Can be downloaded at no charge.

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Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies

Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies (2005). Baxley, D.L., Janicki, M.P., McCallion, P. & Zendell, A.

This technical assistance manual explains how states can develop aging and developmental disability service network partnerships to better address the needs of older adults with I/DD and the families. It is based on the outcomes of a three-year AoA National Family Caregiver Support Program demonstration the developed and conducted collaboration-building workshops in 33 states. The project was undertaken by The Arc of the United States in collaboration with the Center of Intellectual Disabilities, University at Albany and the Rehabilitation Research and Training Center of Aging with Developmental Disabilities, University of Illinois at Chicago.
Aiding older caregivers