Impact of a Health Advocacy Curriculum for Health Care Providers in Caring for Persons with I/DD
Marks, B., Sisirak, J., & Heller, T. (August 27, 2008). Impact of a Health Advocacy Curriculum for Health Care Providers in Caring for Persons with I/DD. IASSID 13th World Congress, People with Intellectual Disabilities: Citizens of the World, Cape Town, South Africa.
Medical students and residents often receive less than 3hours of education regarding health care issues and needs of people with intellectual and developmental disabilities (I/DD.This lack of knowledge and experience among physicians can translate into negative attitudes further compromising the provision of culturally appropriate, accessible, acceptable, and equitable health care. This study aims to describe the attitudes of physicians within Illinois pediatric residency programs in caring for adolescents with I/DD transitioning into adulthood and to test the efﬁcacy of a Health Advocacy Curriculum.
Thirty-ﬁve pediatric residents received a 2hour health advocacy training to increase their knowledge,improve attitudes,and enhance self-efﬁcacy towards health advocacy for adolescents with I/DD.
Baseline data showed 77% of the residents lacked experience when dealing with patients with I/DD and 71% were not conﬁdent in discussing transition information effectively to parents and adolescents with I/DD.Following training, pediatric residents had improved knowledge scores (t=−5.461,p=0.000) and self-efﬁcacy scores (t=−3.508,p=0.002).
This curriculum has the potential to improve physicians’ capacity to understand the unique needs of adolescents with ID to enhance quality health care for individuals with I/DD.