Longitudinal Health and ID/D Study (LHIDDS)

Longitudinal Health and Intellectual and Developmental Disabilities Study (LHIDDS): Examining the Effects of Modifiable Health Behaviors on Health and Function in Adults with I/DD

Using the original LHIDS instruments along with more refined recruitment methodologies, we propose to supplement the sample with 1,500 additional respondents— 500 from Black, Latino, and Asian American racial/ethnic backgrounds, and 1,000 from regions under-represented in the original study—to begin a longitudinal study to complement the LHIDS while we follow-up with the existing cohort for three more time points (2014, 2016, 2018).

Specific Aims:

  1. To examine whether there are racial and ethnic disparities in chronic health conditions, health behaviors(physical activity, dietary habits, smoking, alcohol intake, and oral hygiene) , health care access and utilization among adults with I/DD in general and at each time point.
  2. To examine changes across time in the prevalence of five health behaviors and their impact on Health-related Quality of Life (HRQOL) and chronic health conditions in adults with I/DD by gender, age group, level of ID, specific diagnostic group, race/ethnicity, and residential setting.
  3. To examine the impact of health behavior changes across time on psychosocial well-being and community participation in adults with I/DD by gender, age group, level of ID, specific diagnostic group, race/ethnicity, and residential setting.

Longitudinal health behavior data can support development of targeted health promotion programs.

LHIDS Study

The Longitudinal Health and ID Study (LHIDS) project is under the direction of Drs. Kelly Hsieh and Sandra Magana.

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