Questions to ask your doctor about patient-centered care

Source: Planetree.org

Patient-Centered Primary Care Collaborative (PCPCC)

Questions to ask your doctor about patient-centered care

Sample questions:

  1. What type of information will you provide to me about my condition and treatment options?
  2. Will you provide me with decision aids that will help me to make the best individualized care decisions?
  3. Am I able to access a patient portal to help me manage my personal health information?
  4. Am I able to update and contribute to the information in the patient portal or just review it?
  5. Am I able to review the doctor’s notes in my record? Do I have the option of adding my own information and perspectives into my record for the doctor to read and review?
  6. When my care team meets to discuss my plan of care, will I be invited to participate in those discussions?
  7. Is there a way for me to securely send questions/messages to my doctor in advance of (or outside of) a scheduled appointment?

Improving Your Person and Family Engagement Metrics in TCPI | Patient-Centered Primary Care Collaborative

Source: Improving Your Person and Family Engagement Metrics in TCPI | Patient-Centered Primary Care Collaborative

The Patient Centered Primary Care Collaborative Support and Alignment Network (PCPCC SAN) was created to assist staff and leaders in Practice Transformation Networks, along with enrolled clinicians, to successfully transform their practices to deliver person and family centered care. In 2017 the TCPI is adopting 6 measures of person and family engagement (PFE).  On this page, we describe the measures and offer links to websites where you can download tools, information, and other educational materials.

“Bite Sized” Exercises and Discussion Prompts to Reinforce Culture

Questions to ask your doctor about patient-centered care

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What Would Happen If Health Care in Your State Improved? – The Commonwealth Fund

This interactive tool shows the health care gains your state could achieve by improving its performance on measures of access, quality, and health outcomes. The tool draws on data from the 2015 Commonwealth Fund Scorecard on State Health System Performance.

Source: What Would Happen If Health Care in Your State Improved? – The Commonwealth Fund

The Commonwealth Fund’s Scorecard on State Health System Performance, 2017 Edition, assessed states on more than 40 indicators of health care access, quality, costs, and outcomes. Use this interactive tool to see the gains that your state could achieve by improving its performance to the level of better-performing states, as well as the losses that would result if your state failed to sustain its performance. You can also see the impact of reaching for a goal that is even better than the current best state’s performance.

In a new To the Point post, The Commonwealth Fund’s David Radley, Douglas McCarthy, and Susan Hayes show how states can use the tool to help achieve their goals. For example, by seeing the gains made in states that have already expanded Medicaid, policymakers in Georgia or another non-expansion state can calculate the improvements in insurance coverage and access to care that are within their reach.

Eugene Washington PCORI Engagement Awards

The healthcare research process traditionally includes only scientists and other research-related professionals. PCORI believes that engagement of nontraditional stakeholders—from topic selection through design and conduct of research to dissemination of results—can influence research to be more patient centered, useful, and trustworthy, and ultimately lead to greater use of research results by patients and the broader healthcare community.

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RWJF Health Data for Action

RWJF Health Data for Action – The HD4A program will fund innovative research that uses the available data to answer important research questions. Applicants under this Call for Proposals (CFP) will write a proposal for a research study using data from either the Health Care Cost Institute (HCCI) or athenahealth. Successful applicants will be provided with access to these data, which are described in greater detail below. The HCCI and athenahealth data provide a wealth of private claims data and rich detail on care delivery and patient obesity-related measures, respectively. The proposed studies should enable relevant, innovative, and actionable research that uses the available data to answer important, policy-relevant questions.

NICHD Exploratory/Developmental Research Grant (R21)

The NICHD Exploratory/Developmental Grant program supports exploratory and developmental research projects that fall within the NICHD mission by providing support for the early and conceptual stages of these projects. These studies may involve considerable risk but may lead to a breakthrough in a particular area, or to the development of novel techniques, agents, methodologies, models, or applications that could have a major impact on a field of biomedical, behavioral, or clinical research.

Posted Date

April 20, 2017

Open Date (Earliest Submission Date)

May 16, 2017

Expiration Date

May 8, 2020

Purpose/Research Objectives

The NICHD Exploratory/Developmental Grant program supports exploratory and developmental research projects that fall within the NICHD mission by providing support for the early and conceptual stages of these projects. These studies may involve considerable risk but may lead to a breakthrough in a particular area, or to the development of novel techniques, agents, methodologies, models, or applications that could have a major impact on a field of biomedical, behavioral, or clinical research.

The evolution and vitality of the biomedical, behavioral, and clinical sciences require a constant infusion of new ideas, techniques, and points of view. These may differ substantially from current thinking or practice and may not yet be supported by substantial preliminary data. Through the NICHD Exploratory/Developmental Research Grant Program, the NIH seeks to foster the introduction of novel scientific ideas, model systems, tools, agents, targets, and technologies that have the potential to substantially advance biomedical, behavioral, and clinical research within the NICHD scientific mission.

This program is intended to encourage new exploratory and developmental research projects. For example, such projects could assess the feasibility of a novel area of investigation or a new experimental system that has the potential to enhance health-related research. Another example could include the unique and innovative use of an existing methodology to explore a new scientific area.

Specific Areas of Research Interest

Areas of research covered by the proposed R21 projects must fall within the scientific missions of the twelve Scientific Branches of the NICHD Division of Extramural Research (DER) or the National Center for Medical Rehabilitation Research (NCMRR).  Details about those scientific missions and program staff contacts may be found on the web pages for the DER scientific branches at: http://www.nichd.nih.gov/about/org/der/branches/Pages/index.aspx and the NCMRR at:  http://www.nichd.nih.gov/about/org/ncmrr/Pages/overview.aspx.  Specific research priorities of DER branches and NCMRR are listed as follows.

Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario

Download: Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario

Source: ICES

Lunsky Y, Klein-Geltink JE, Yates EA, editors. December 2013

The Issue

Ontario’s Action Plan for Health Care focuses on becoming healthier, with improved access to integrated family/primary care and a major emphasis on the provision of the right care at the right time and in the right place. These priorities are particularly relevant to individuals with developmental disabilities: research from other jurisdictions would suggest that they have higher rates of preventable diseases, greater challenges obtaining guideline-recommended primary care3 and higher associated health care costs.4 However, the health status and

health care of adults with developmental disabilities have not been well studied in Ontario, due to the absence of population-based data. The work of the Health Care Access Research and Developmental Disabilities (H-CARDD) Program is in direct response to Ontario’s call to action through addressing this data gap. The first H-CARDD project, conducted in partnership with decision makers and clinicians from the health and social services sectors, has focused on primary care.

The Study

The Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario provides, for the first time in Canada, descriptive information on the health of adults with developmental disabilities in Ontario and examines the quality of their primary care relative to adults without developmental disabilities. Findings have relevance in Ontario and in other jurisdictions where there is interest in improving health care and the health status of those with developmental disabilities.

Revised ACA Repeal and Replace Bill Likely to Increase the Uninsured Rate and Health Insurance Costs for Many

House Republicans are close to agreeing on an amended version of the American Health Care Act, their proposed repeal and replacement of the Affordable Care Act. David Blumenthal, M.D., and Sara Collins say that, based on the summaries circulated by the media, the revised bill will significantly increase the numbers of uninsured Americans while raising insurance costs for many of the nation’s most vulnerable citizens. At the same time, the bill’s restructuring of the Medicaid program is likely to hurt state economies and enrollees.

Source: Revised ACA Repeal and Replace Bill Likely to Increase the Uninsured Rate and Health Insurance Costs for Many – The Commonwealth Fund

News outlets report that House Republicans are close to agreeing on an amended version of the American Health Care Act (AHCA), their proposed repeal and replacement of the Affordable Care Act (ACA). The all-important legislative language for the revised bill is not yet available, nor are Congressional Budget Office (CBO) projections of its effects on coverage and the budget, so any analyses are necessarily tentative.

Nevertheless, the summaries leaked to the media offer insight on the amended bill. If accurate, those summaries suggest that the revised AHCA will significantly increase the numbers of uninsured Americans, raise the cost of insurance for many of the nation’s most vulnerable citizens, and, as originally proposed in the AHCA, cut and reconfigure the Medicaid program. The new amendment specifically allows states to weaken consumer protections by, for example, permitting insurers to charge people with preexisting conditions higher premiums.

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