For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact of stigma.
Source: Conference | DDNA
“Celebrating our Past, Shaping our Future”
2017 Conference Overview
The 2017 conference theme is “Celebrating our Past, Shaping our Future!” As the premiere resource for practicing I/DD nurses, DDNA is committed to providing quality education programs that include cutting edge content with practical application.
CONFERENCE PROGRAM STRUCTURE – It’s all about the CEs!
DDNA’s 2017 annual conference will be structured a bit differently than in previous years – offering a longer conference program and more accredited continuing education courses and opportunities! The conference registration fee will include 3 ½ full days of conference program and continuing education, offering over 23 hours of continuing education.
As we celebrate our silver anniversary, we would also like to offer our members an additional reason to celebrate with us! With the longer conference program and additional continuing education, this year’s conference rate is 5% below the 2016 conference fees for comparable hours of continuing education. The conference will also offer a pre-conference program, providing 6 additional hours of continuing education, available to all conference attendees as an additional purchase!
The result – over 29 hours of continuing education are available with attendance at all conference and pre-conference programs!
Target audience: Health care professionals working in the field of intellectual and developmental disabilities.
Overall objectives: The goals and objectives of the conference are:
- To present cutting-edge education on the most up-to-date practice issues and research regarding the specialty of developmental disabilities nursing.
- To provide a forum for networking and to facilitate the sharing of information to improve nursing practice in the developmental disabilities field.
- To bring together leaders and experts in developmental disabilities to engender consensus that improves the health and lives of persons with developmental disabilities.
Outcomes of “Partnering to Transform Healthcare with People with Disabilities” (PATH-PWD) conference
Research Team Sarah H. Ailey Principal Investigator Rush CON Molly Bathje Co-Investigator Rush CHS Tamar Heller Co-Investigator University of Illinois Award Period 6/1/16 – 5/31/17 Funding Source Agency for Healthcare Research and Quality (AHRQ) R13 Conference grant
On March 23 and 24, 2017, leaders on disability rights and disability health care from around the country gathered at Rush University for the Partnering to Transform Healthcare with People with Disabilities (PATH-PWD) conference sponsored by Rush University and the Rehabilitation Research and Training Center on Developmental Disabilities and Health, University of Illinois at Chicago. The conference was funded by grants from the Agency for Healthcare Research and Quality (AHRQ) and the Special Hope Foundation.
IASSIDD PowerPoint presentation of the “Tackling Health Disparities and Implementing a Best Practices Healthcare Model: Report from (PATH-PWD) Conference” presented at the American Academy on Developmental Medicine and Dentistry (June 5, 2017).
Sarah H Ailey PhD RN APHN-BC CDDN, Tamar Heller, PhD, & Molly Bathje, PhD, OTR/L
President Donald Trump and Republicans in Congress have committed to repealing and replacing the Affordable Care Act (ACA). How do their replacement proposals compare to the ACA? How do they compare to each other? Includes proposals from Tom Price, Paul Ryan, Bill Cassidy, and Rand Paul
Kaiser Brief Examines Tax Credits under ACA Replacement Plans | National Disability Navigator Resource Collaborative
2pm – 3pm CST
Presented by: Kruti Acharya, MD
Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.
Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.
2:00 to 3:00 pm CST
This presentation provides strategies for healthier vending options through the following: (i) steps to developing healthy vending machine initiative; (ii) using tools to survey vending machines and implementing new guidelines; and, (iii) integrating examples and links to resources related to healthy vending machine for your initiative.
Audience: Providers who provide Supports for Community Living services to people with IDD and others seeking to increase healthy options in their organization’s vending machines.
Citation: Sisirak, J. & Krok, K. (2017). Small Steps, Big Leaps: Healthy Vending in Your Organization. HealthMatters Community of Practice Webinar Series. RRTCDD: Chicago, IL.
2pm – 3pm CST
Presented by: Lieke van Heumen, PhD
This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.
Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.
The Affordable Care Act Toolkit for Self-Advocates was put together by the Autism Self Advocacy Network ( ASAN) to “equip self-advocates to participate in important conversations about our lives and the services we rely on.”
The Affordable Care Act (ACA) made it easier to get health insurance for all Americans, including people with disabilities. But a lot of the information out there about the ACA and attempts to repeal it can be difficult to understand and navigate. That’s why the Autistic Self Advocacy Network (ASAN) released a plain language Affordable Care Act Toolkit for Self-Advocates, part of which was funded by the Special Hope Foundation.