Link Checkers and Basic Accessibility Testers for Websites

Source: LiveWell RERC

Leighanne Davis, B.S.

Introduction

Ensuring website optimization and ease of use are goals of any developer. This holds especially true for organizations disseminating a lot of information to a variety of users from different backgrounds and with different ability levels. Broken links or missing alt text can be frustrating for some people with accessibility challenges. These also detract from the user experience. To mitigate these website errors or accidental exclusions, developers and even laymen can use various online resources to check the efficiency and ease of use of websites.

Download Web+Accessibility+Testing Report for resources and broad information on services offered and how these tools can also be used as a basic accessibility test.

Topics include:

• Programs for website testing

• Locations to download / use each program

• Recommendations

Early Childhood Technical Assistance Center: Improving Systems, Practices and Outcomes for Young Children with Disabilities and their Families

Source: ECTACenter.org : The Early Childhood Technical Assistance Center : Improving Systems, Practices and Outcomes for Young Children with Disabilities and their Families

Most recent additions to this page:

 National Child Traumatic Stress Network (2017) – established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. This resource includes descriptions of each type of trauma and evidence-based treatments that work.

 Caring for Children in a Disaster (2017) – This collection of resources from the Centers for Disease Control and Prevention offers simple steps to protect children in emergency situations and help meet their needs during and after a disaster.

Related pages:

State Community Health Worker Models – NASHP

As states transform their health systems many are turning to Community Health Workers (CHWs) to tackle some of the most challenging aspects of health improvement, such as facilitating care coordination, enhancing access to community-based services, and addressing social determinants of health.

Source: State Community Health Worker Models – NASHP

While state definitions vary, CHWs are typically frontline workers who are trusted members of and/or have a unique and intimate understanding of the communities they serve. This map highlights state activity to integrate CHWs into evolving health care systems in key areas such as financing, education and training, certification, and state definitions, roles and scope of practice. The map includes enacted state CHW legislation and provides links to state CHW associations and other leading organizations working on CHW issues in states.

Big Data and the Americans with Disabilities Act

Date Written: 2017

Abstract

While big data offers society many potential benefits, it also comes with serious risks. This Essay focuses on the concern that big data will lead to increased employment discrimination. It develops the novel argument that the Americans with Disabilities Act (ADA) should be amended in response to the big data phenomenon in order to protect individuals who are perceived as likely to develop physical or mental impairments in the future. Employers can obtain medical data about employees not only through the traditional means of medical examinations and inquiries, but also through the non-traditional mechanisms of social media, wellness programs, and data brokers. Information about workers’ habits, behaviors, or attributes that is derived from big data can be used to create profiles of undesirable employees. It can also be used to exclude healthy and qualified individuals whom employers regard as vulnerable to future medical problems. The ADA, which now protects only individuals with current or past disabilities and those who are perceived as having existing impairments, can no longer ignore the discrimination threats posed by predictive health data. The Essay analyzes these risks and propose a detailed statutory response to them.

Download Paper

Hoffman, Sharona, Big Data and the Americans with Disabilities Act (2017). 68 Hastings Law Journal 777 (2017); Case Legal Studies Research Paper No. 2016-33. Available at SSRN: https://ssrn.com/abstract=2841431

Self-identifying as disabled and developing pride in disability aid overall well-being

Date: August 28, 2017

Source: Oregon State University

Summary: Experiencing stigma, the severity of a disability and a person’s age and income level help determine whether someone with an impairment considers themselves to be a person with a disability, and experiencing stigma predicts whether those individuals will ultimately develop disability pride, new research shows.

Experiencing stigma, the severity of a disability and a person’s age and income level help determine whether someone with an impairment considers themselves to be a person with a disability, and experiencing stigma predicts whether those individuals will ultimately develop disability pride, new research from Oregon State University shows.

“Roughly 15 percent of the world’s population has some kind of disability but just a fraction of those people actually identify themselves as people with disabilities. Disability identity is a critical step in accepting a disability and helps to reduce the stigma surrounding the label,” said Kathleen Bogart, an assistant professor of psychology in the College of Liberal Arts at Oregon State University.

Those who self-identify are also more likely to develop pride in their disability, a shift in thinking that can help build resilience and change public attitudes about the “disabled” label, said Bogart, an expert on ableism, or prejudice about disabilities, whose research focuses on the psychosocial implications of disabilities.

“The challenge with disability as a label is that it’s so mired in stigma that people don’t want that label,” she said. “Can we reduce the stigma and reframe the label as a neutral label that is just useful as a category, like male or female? Or taking it even further, can we shift the label to the point where people have pride in that label?”

Bogart explored issues around disability self-identification and disability pride in two new studies published recently in the journal Rehabilitation Psychology.

The first study examined who is most likely to self-identify as disabled. For the study, about 700 people over age 18 completed an online survey that asked them to identify health conditions they had by checking boxes, or if their condition was not listed, filling in a box. Among the most common impairments were allergies, anxiety, depression, migraines, back injury or pain, attention-deficit/hyperactivity disorder, respiratory disease, hypertension and chronic pain.

Participants also were asked to rate characteristics of their health condition, such as whether it affects daily life, how often it causes physical pain and how often it is noticeable to other people. In addition, they completed a questionnaire about whether they experienced stigma and discrimination because of their condition. They were also asked whether they identify as a person with a disability. Only 12 percent of people with a health condition agreed or strongly agreed that they were a person with a disability.

The researchers found that experiencing stigma, along with severity of the impairment, were the biggest factors influencing whether someone with a disability identified that way.

“The finding regarding stigma was a really powerful one,” Bogart said. “It supports the idea that the concept of disability is primarily a social construct, developed by society’s reaction to that impairment. It’s not just the physical impairment. It’s the way people treat you and the way society builds an environment that does or does not include you.”

The study results suggested that severe impairments lead to greater stigma, which increased the likelihood that people self-identified as disabled.

In the second study, the researchers looked further at the role disability pride plays in overall wellbeing for people with disabilities. Developing pride in the disability — and rejecting the stigma of society on whole — shows promise as a way to protect against stigma and build self-esteem, Bogart said.

“Little is known about the good things that might come with embracing a disability identity,” Bogart said. “We believe developing pride may offer some protective effects for people with disabilities who experience stigma.”

Using the same set of more than 700 survey participants from the previous study, but looking at additional questions, the researchers analyzed factors that influence whether someone has pride in their disability. They found that disability pride tended to be more prevalent among those who experience stigma, those who have strong social support and people of color. They also found that people experiencing greater stigma seemed to lead to more pride, and greater pride was associated with greater self-esteem.

“Disability pride is still a rare thing,” Bogart said. “Most disabilities are invisible and people have to choose to identify with them. Many people hide their disabilities to avoid discrimination. But not identifying also perpetuates the stigma that disability is undesirable. Developing disability pride seems to reduce protect self-esteem against the negative effects of stigma. It’s a really valuable protection for people with disabilities.

“A logical next step for the research would be to develop interventions designed to boost disability pride among people with disabilities and at a policy level, with the goal of improving overall well-being and reducing stigma.”

Social support within the disability community could be bolstered through social groups and mentoring. At a policy level, political activism, media representation featuring disability pride and disability pride events may support pride development.

Co-authors of the self-identification study are Adena Rottenstein of Eastern Michigan University; Emily M. Lund of Boston University; and Lauren Bouchard of Purdue University. Rottenstein and Lund are also co-authors on the pride study. The research was supported by a research grant from the OSU College of Liberal Arts.

Oregon State University. “Self-identifying as disabled and developing pride in disability aid overall well-being.” ScienceDaily. ScienceDaily, 28 August 2017. www.sciencedaily.com

Story Source:

Materials provided by Oregon State UniversityNote: Content may be edited for style and length.


Journal Reference:

  1. Kathleen R. Bogart, Emily M. Lund, Adena Rottenstein. Disability Pride Protects Self-Esteem Through the Rejection-Identification Model.Rehabilitation Psychology, 2017; DOI: 10.1037/rep0000166

Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study

1 Faculty of Pharmacy, University of Ljubljana, Ljubljana, Slovenia, 2 School of Pharmacy and Pharmaceutical Sciences, Trinity College Dublin, Dublin, Ireland, 3 IDS-TILDA School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland, 4 Dean of the Faculty of Health Sciences, Trinity College Dublin, Dublin, Ireland, 5 School of Social Work, Temple University, Philadelphia, Pennsylvania, United States of America, 6 The Irish Longitudinal Study on Ageing (TILDA), Trinity College Dublin, Dublin, Ireland, 7 Trinity College Institute of Neuroscience (TCIN), Trinity College Dublin, Dublin, Ireland

Source:  2017 Sep 6;12(9):e0184390. doi: 10.1371/journal.pone.0184390. eCollection 2017.

Abstract

Introduction Understanding the medication and supplement use of aging people is critical to ensuring that health service providers in primary care can optimise use of these agents. An increasing number of people with different levels of intellectual disability (ID) are living in the community and becoming for the first time substantial users of primary health care services. This, however, brings new challenges that need to be addressed at the primary health care level. We quantified the use of medicines and food supplements and described the associated patterns of morbidity in the two comparable cohorts of aging population with and without intellectual disability.

Method This research aligned participants of 50 years and over who lived in the community from two nationally representative cohorts of older people; those with ID from the Intellectual Disability Supplement (n = 238) and those without ID (n = 8,081) from the Irish Longitudinal Study on Ageing.

Results Data showed that both medication and supplement use in the two groups was prevalent but that those with ID received more of both medications and supplements (e.g. polypharmacy was 39.0% in ID vs. 18.1% in non-ID cohort). Moreover, based on an analysis of the therapeutic groups and medications used that treatment was more intense in the ID cohort (95.8 vs. 7.0 International Non-proprietary Names per 100 participants). Supplement use was almost twice as prevalent in the ID group but substantially less diverse with only 10 types of supplements reported. Morbidity was higher in the ID group and showed a higher prevalence of neurological and mental health disorders.

Medication and supplement use among older people with and without IDD

Caregiving and IDD and Dementia: Report of the Pre-Summit Workgroup on Caregiving and IDD

This report summarizes the findings and recommendations from a pre-summit activity for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers.  The report was developed by a working group of experts in caregiving, dementia, and intellectual and developmental disabilities (IDD) and organized by the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in partnership with the Rehabilitation Research and Training Center in Developmental Disabilities and Health at the University of Illinois at Chicago and the Alzheimer’s Association.  The purpose was threefold:
  1. assess the current state of research, policy, and practice, and develop recommendations related to caregiving supports for older adults with intellectual and developmental disabilities;
  2. translate the contributions of these findings to the greater dementia care agenda; and
  3. promote inclusion of issues particularly relevant to intellectual disability and dementia concerns as part of the Summit platform.
The Report examined the foundational similarities and differences in focal areas affecting people with dementia, both with and absent IDD.  Considered were five major areas related to care and caregiving:
(1) family caregiving interventions;
(2) supportive care settings;
(3) effects of diversity;
(4) screening and early detection; and,
(5) bridging service networks.
Recommendations are offered in each of these areas, including how funding and actions might be undertaken and by which federal or non-federal organizations.

NATIONAL RESEARCH SUMMIT ON CARE, SERVICES AND SUPPORTS FOR PERSONS WITH DEMENTIA AND THEIR CAREGIVERS: PRE-SUMMIT ACTIVITIES

See Information on the Assistant Secretary for Planning and Evaluation (ASPE) Website

National Task Group on Intellectual Disabilities and Dementia Practices — Caregiving and Program Research on Caregiving of Persons with Intellectual Disability and Dementia 

Prof. Tamar Heller, RRTCDD Director and chair of this ad hoc working group will be speaking at the Summit, and conveying the workgroup’s recommendations.

PRE-SUMMIT PAPERCaregiving and Intellectual and Developmental Disabilities and Dementia: Report of the Pre-Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities
This report summarizes the findings and recommendations from a pre-summit activity for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers. The report was developed by a working group of experts in caregiving, dementia, and intellectual and developmental disabilities (IDD) and organized by the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in partnership with the Rehabilitation Research and Training Center in Developmental Disabilities and Health at the University of Illinois at Chicago and the Alzheimer’s Association. The purpose was threefold: (1) to assess the current state of research, policy, and practice, and develop recommendations related to caregiving supports for older adults with intellectual and developmental disabilities; (2) to translate the contributions of these findings to the greater dementia care agenda; and (3) to promote inclusion of issues particularly relevant to intellectual disability and dementia concerns as part of the Summit platform. The Report examined the foundational similarities and differences in focal areas affecting people with dementia, both with and absent IDD. Considered were five major areas related to care and caregiving: (1) family caregiving interventions; (2) supportive care settings; (3) effects of diversity; (4) screening and early detection; and (5) bridging service networks. Recommendations are offered in each of these areas, including how funding and actions might be undertaken and by which federal or non-federal organizations. [PDF Version]

Where All Bodies Are Exquisite

Source: The New York Times

“Circle Story #10,” a 2003 painting of poet and essayist Eli Clare. Credit Riva Lehrer

It’s 2009, and I’m in Philadelphia to deliver a talk at a conference. During a long break, I decide to visit the Mutter Museum. I teach anatomy, and the Mutter houses a collection of so-called medical curiosities. I examine the wall of skulls, the cases full of skeletons, and go downstairs, where preserved specimens wait for inspection.

And there I am confronted with a large case full of specimen jars. Each jar contains a late-term fetus, and all of the fetuses have the same disability: Their spinal column failed to fuse all the way around their spinal cord, leaving holes (called lesions) in their spine. Some extrude a bulging sac containing a section of the cord. These balloons make the fetuses appear as if they’re about to explode. This condition is called spina bifida.

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New NACCHO Fact Sheet: Five Steps for Inclusive Health Promotion | Healthy People, Healthy Places

NACCHO’s Health and Disability program recently released a new fact sheet, titled “Five Steps for Inclusive Promotion,” now available via the NACCHO Health and Disability webpage. 

Source: NACCHO’s Health and Disability Program

This four-page resource provides health department staff with five action steps for the development and delivery of inclusive health promotion programs and activities. Each action step provides helpful resources and tools for local health departments to ensure all community members are engaged in health promotion activities. Click here to view the fact sheet.

Background

The National Association of County and City Health Officials (NACCHO) works with local health departments to promote the inclusion and engagement of people with disabilities in all public health programs, products, outreach, and services.

NACCHO encourages health departments to include people with disabilities when creating and delivering health promotion activities. This fact sheet provides five action steps for local health officials to ensure that the development and delivery of health promotion programs and activities are inclusive and accessible.

NACCHO also recommends the Guidelines for Disability Inclusion in Physical Activity, Nutrition, and Obesity Programs and Policies Implementation Manual to inform disability inclusion in community health promotion strategies.

RESOURCES:

  • People with Disabilities: Health Department Strategieshttp://bit.ly/2seoac8
  • Guidelines for Disability Inclusion in Physical Activity, Nutrition, and Obesity Programs and Policies Implementation Manual http://bit.ly/2sJgUbL
  • The President’s Council on Fitness, Sports & Nutrition: I Can Do It, You Can Do It! http://bit.ly/2sJlSVQ
  • ***
    This fact sheet was made possible through support from the Centers for Disease Control and Prevention (CDC), Cooperative Agreement #5NU38OT000172-04-00 (specifically, this project was supported by the Disability and Health Branch within the National Center on Birth Defects and Developmental Disabilities).

18th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care

AUCD is proud to support the online broadcast of Baylor College of Medicine’s 18th Annual Chronic Illness and Disability Conference.

Source: AUCD

Participate Remotely

All MCH Training Programs and UCEDDs are invited and encouraged to participate remotely by hosting a live stream of this conference for trainees, faculty, staff, families, and others at your center or program. Eligible broadcast sites include MCH training programs, UCEDDs, and Title V programs. This is an excellent opportunity for your trainees and staff to gain in-depth coverage of a range of transition issues at a very low cost of $150 per site.

An Engaging Agenda

Hosted by Baylor College of Medicine and available nationwide through an AUCD-sponsored live broadcast, this year’s conference is shaping up to be a valuable resource for the AUCD network and beyond. Register as a broadcast site in order to:

  • Listen to Toronto Children’s Hospital share about the role that social media and digital communications can play in engaging transition-aged youth
  • Participate in a breakout session on Supported Decision Making
  • Learn about one LEND alumni’s work toward educate others on healthy sexuality for people with I/DD
  • Earn CME and CNE Credits, Social Work CEUs, and PT and OT CCUs without leaving the office

… and much more!

Register

To register as a broadcast site, contact Baylor College of Medicine, Office of Continuing Medical Education, at 713-798-8237 or e-mail cme@bcm.edu for instructions. For registration questions, contact Baylor’s Cicely Simon. To speak with someone at AUCD about this event, contact Sarah DeMaio

Why We Participate

“Minnesota LEND partners with Gillette Lifetime Specialty Clinic in co-hosting the live broadcast of this conference …to learn about evidence-based practices in the critical need area of healthcare transition. Gillette staff members were very excited about this opportunity to ‘attend’ Baylor’s conference at their work place. We hope to increase this type of collaborative learning each year for our clinical partners and trainees.” 

– Rebecca Dosch-Brown, MN LEND Training Coordinator

Baylor does an excellent job of addressing the task of facilitating adolescent transition as youth learn to navigate health care, post-secondary work or school, and independent living. The mixture of national and local presenters who come from clinical, research, policy, advocacy, and patient perspectives provide a well-rounded presentation of the realities of transition. The annual conference jumps starts our trainees’ knowledge and skill development regarding transition. It allows us to introduce a wide array of issues that would take us much longer to do with our own content development. We are grateful that we are able to gain so much with a relatively small investment on our part.

– David Deere, Arkansas Regional LEND Training Director

“WI LEND program works with our state Youth Health Transition Hub to host at least 2 sites in Wisconsin – Madison and Milwaukee. LEND trainees participate as they are able, but are a small part of the audience. We have mostly providers (nurses, SW, MD, other health professionals), our MCH PPC partners and trainees, and just a few families, who come to the broadcast.”

-Anne Harris, WI LEND Director