Person-Centered Planning for Later Life: Death and Dying – A Curriculum for Adults with Mental Retardation (2000). Sterns, H.L., Kennedy, E.A. & Sed, C.M.
This training curriculum helps adults with mental retardation understand death, dying and loss. It covers the concept of death; experiencing and coping with grief, mourning, comfort, and support; and death-related rituals (visitations and funerals). The curriculum consists of five in-class lessons and one field trip, which emphasize active participation through both verbal and visual presentation of materials. The instructor’s guide provides a script for each lesson and includes guidelines for planning and administering each lesson. Each participant has a student notebook that accompanies the instructor’s training curriculum. Each participant chooses a support person to help him/her review the lessons and complete assignments.
COST PER UNIT: $35.00 + Shipping for Guide and Notebook*
(Additional Student Notebooks are $12.50 each)
Aging With Developmental Disabilities: Women’s Health Issues (1999). Brown, A. & Murphy, L.
This brief provides information on age-related health issues for women with developmental disabilities based on the research to date. The fact sheet addresses the most commonly asked questions by women who are aging (e.g. menopause, osteoporosis, and heart disease) and how to stay healthy. The fact sheet includes a list of related resources for women who want more information.
Can be downloaded at no charge
Puerto Rican families caring for an adult with mental retardation: The role of familism. Magaña, S. (1999). American Journal on Mental Retardation, 104, 466-482.
Hearing Changes in Aging People with Mental Retardation (1999). Bagley, M. & Mascia, J.
This brief provides answers to frequently asked questions about age-related hearing loss, especially for people with developmental disabilities. It contains the information families and service providers need to identify possible hearing loss and to support older adults who have this condition.
Can be downloaded at no charge
Dementia and aging adults with intellectual disabilities: A handbook (1998). Janicki, M.P. & Dalton, A.J. (Eds.).
This text examines the impact of Alzheimer’s disease and other dementias on people with mental retardation from an applied and practical perspective. It provides an up-to-date review of current knowledge on the diagnosis, assessment, treatment, care management, and care practices of dementias for people with mental retardation.
COST PER UNIT: $39.95 + Shipping (Paperback)
Order directly from Taylor and Francis at http://www.taylorandfrancis.com or 1-800-634-7064
Aging With Intellectual Disabilities and Later-Life Family Caregiving (1998). Heller, T., In Edelstein, C.A. (Ed.), Comprehensive Clinical Psychology Volume 7, Clinical Geropsychology. Oxford: Pergamon/Elsevier.
Dr. Heller examines later-life caregiving for adults with intellectual disabilities from a life-course perspective that takes into account the social trends and service patters that affect these families. It discusses demographic trends, cultural differences, interventions to support later-life transitions including planning for the future, and a future research agenda.
COST PER UNIT: $131.00
Order directly from the publisher at www.elsevier.com or (800) 545-2522
Outcomes of Assistive Technology Services and Use by Adults with Developmental Disabilities (1998). Hammel, J., Heller, T., & Ying, G., RESNA 1998 Annual Conference Proceedings, pp.14-16.
A report of an outcome study of AT service delivery, use, and relationship to functional status changes over time. The study was conducted among adults specifically with cerebral palsy and mental retardation living in the community.
Aftermath of Parental Death: Changes in the Content and Quality of Life (1997). Gordon, R.M., Seltzer, M.M., & Krauss, M. W. In Robert Schalock (Ed.), Quality of Life: Its Application to Persons with Disability. Washington, DC: AAMR.
COST PER UNIT: $19.95
Order directly from the American Association on Mental Retardation at www.aamr.org or 1-301-604-1340
Aging With Developmental Disabilities: An Information Packet on Understanding Age-Related Changes and Supporting Successful Aging (1997). Factor, A.
This packet provides a basic understanding of age-related changes and their implications for adults with developmental disabilities and their families. Topics include: the aging process and its implications; supporting individual choice and community membership; and engaging and supporting older families in making future plans for their relative with a disability. It contains guidelines and practical suggestions for supporting individual choice and community membership, healthy aging and family future planning.
Assistive Technology and You: A Guide For Families and Persons With Disabilities (1997), Hedman, G., Hooyenga, K.,Politano, P. & Sposato, B.
This guidebook provides information about the various uses of assistive technology for accessibility, activities of daily living, augmentative communication, computer access, environmental control, seating, mobility, and work site modification. It contains photographs and descriptions of devices, their applications, and guidelines to help families and users become informed consumers in selecting equipment. The guide was written by assistive technology clinicians and reviewed by consumers, families and community agency professionals. It was developed by the Assistive Technology Unit at the Institute on Disability and Human Development in collaboration with the RRTC on Aging with Developmental Disabilities.