Older Adults with Mental Retardation/Developmental Disabilities and Their Aging Family Caregivers (Rev. March, 2004). Heller, T., & Factor, A.
This fact sheet uses a question-and-answer format to present frequently requested information about aging with mental retardation. It provides an overview of demographics, age-related changes, service and support needs for older adults and their families, and new service models and resources.
Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.
Predictors of Use of Nursing Homes and State Institutions for Persons with DD (2004). Rizzolo, M.K.
This RRTCADD research brief explains the wide variation in states’ use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without developmental disabilities.
Disability Research Brief: Evaluation of a Consumer Directed Program: Illinois (2004). Heller, T. & Caldwell, J.
This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home residential placements.
African American families who care for adults with developmental disabilities or mental illness: A call for research. Magaña, S. (2004). African American Perspectives, 10, 129-139.
Aging With Developmental Disabilities: Emerging Models for Promoting Health, Independence, and Quality of Life (2004). Heller, T. In B. Kemp and L. Mosqueda (Eds.). Aging With a Disability: What the Clinician Needs to Know (pp. 213-233). Baltimore: Johns Hopkins University Press.
Order directly from http://www.press.jhu.edu
Public Spending for Developmental Disabilities in the United States: An Historical-Comparative Perspective (2004). Braddock, D., Rizzolo, M.C., Hemp, R. & Parish, S. In R.J. Stancliffe and K.C. Lakin (Eds.) Cost and Outcomes of Community Services for People With Intellectual Disabilities. Baltimore: Brookes Publishing Company.
This book provides a comprehensive analysis of the cost of community services for individuals with I/DD. It examines the criteria used to allocate funds, differences in outcomes and costs for various service models, and policy considerations in developing individualized services within state systems.
Order directly from the publisher’s website:
or call 1-800-638-3775
Genetically-Linked Syndromes in Intellectual Disabilities (2004). Henderson, C.M. Journal of Policy and Practice in Intellectual Disabilities, Volume 1, Issue 1, pp.31-41.