Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities (2009). Heller, T. & Schindler, A. In L.M. Glidden and M.M. Seltzer (Eds.), International review of research in mental retardation, Vol. 37, (pp. 299-333). Oxford, U.K.: Elsevier Ltd.
Though families are considered the primary provider of support to people with intellectual and developmental disabilities (I/DD), only a small amount of I/DD funding in the United States goes toward offering assistance to these families. In addition, formal interventions typically target families of children with I/DD, which are no longer available when the individual enters adulthood. This chapter reviews the literature on family support interventions for families caring for adults with I/DD. It first examines the impact of lifelong caregiving and the support needs of these families. It then draws attention to various interventions currently available for these families.
To order the hardcover book ($198.00 US), contact Elsevier at http://www.elsevier.com/.
New Voices in Women’s Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.
Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.
State of the Science Symposium on Aging and Developmental Disabilities (December 2008). Heller, T. Janicki. M.P., Marks, B., Hammel, J. & Factor, A.
Brief report on the symposium State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living on May 21–22, 2007, in Atlanta, Georgia
Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study (2008). Jurkowski, J., Rivera, Y. & Hammel, J. Health Promotion Practice.
Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J. & Dufresne, D.
This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. The SLN was founded by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, the Nisonger Center at The Ohio State University, the Sibling Support Project, and the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.