Building Capacity Among Pediatric Residents to Promote Health Advocacy Among Persons with Developmental Disabilities (2009). Marks, B., Sisirak, J., Heller, T. & Cutler, A.
This Health Advocacy Curriculum was developed for the two hour Health Advocacy Workshop to improve access to quality health care for adolescents and young adults with developmental disabilities/special health care needs (DD) through improved attitudes, communication, health literacy, and health advocacy among Pediatric Residents.
The Health Matters Assessments V.1.0 (HMA) can be completed by employees of community‐based day and residential organizations providing services for people with intellectual and developmental disabilities (I/DD). The HMA packet will help you evaluate organizational needs and capacity for developing a health promotion plan including programs, services, environmental support, resources, culture, and employee knowledge and skills to do health promoting activities.
Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities (2009). Heller, T. & Schindler, A. In L.M. Glidden and M.M. Seltzer (Eds.), International review of research in mental retardation, Vol. 37, (pp. 299-333). Oxford, U.K.: Elsevier Ltd.
Though families are considered the primary provider of support to people with intellectual and developmental disabilities (I/DD), only a small amount of I/DD funding in the United States goes toward offering assistance to these families. In addition, formal interventions typically target families of children with I/DD, which are no longer available when the individual enters adulthood. This chapter reviews the literature on family support interventions for families caring for adults with I/DD. It first examines the impact of lifelong caregiving and the support needs of these families. It then draws attention to various interventions currently available for these families.
To order the hardcover book ($198.00 US), contact Elsevier at http://www.elsevier.com/.
New Voices in Women’s Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.
Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.
State of the Science Symposium on Aging and Developmental Disabilities (December 2008). Heller, T. Janicki. M.P., Marks, B., Hammel, J. & Factor, A.
Brief report on the symposium State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living on May 21–22, 2007, in Atlanta, Georgia