Publications

March is Developmental Disabilities Awareness Month

Source: National Association of Councils on Developmental Disabilities (NACDD) Each March, the National Association of Councils on Developmental Disabilities (NACDD), partners with Association of University Centers on Disabilities (AUCD) and National Disabilities Rights Network (NDRN) to create a social media campaign that highlights the many ways in which people with and without disabilities come together …

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Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Karen Dodd, Karen Watchman, Matthew P. Janicki, Antonia Coppus, Claudia Gaertner, Juan Fortea, Flavia H. Santosi, Seth M. Keller, and Andre Strydom Aging & Mental Health, 22:11, 1406-1415.  DOI: 10.1080/13607863.2017.1373065 ABSTRACT Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health and social care organizations, encompassing a range of supports that are offered …

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Main conclusions agreed during the Summit on Intellectual Disability and Dementia

PRINCIPALES CONCLUSIONES ACORDADAS DURANTE LA CUMBRE SOBRE DISCAPACIDAD INTELECTUAL YDEMENCIA ISSN: 0210-1696 DOI: http:/ /dx.doi.org/10.14201/scero2018492115122 Matthew P. JANICKI University of Illinois at Chicago, USA Karen WATCHMAN University of Stirling, Scotland, UK Juan FORTEA ORMAECHEA Centro Medico de Down de la Fundaci Catalana de Sindrome de Down (FCSD) y Servicio de Neurologia def Hospital de la Santa …

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Supporting advanced dementia in people with Down syndrome and other intellectual disability: consensus statement of the International Summit on Intellectual Disability and Dementia

M. McCarron,1 P. McCallion,2 A. Coppus,3 J. Fortea,4 S. Stemp,5 M. Janicki6 & K. Watchman7 1School of Nursing and Midwifery Studies, Trinity College Dublin, Dublin, Ireland 2 College of Public Health, Temple University, Philadelphia, PA, USA 3 University Medical Center, Radboud Universiteit, Nijmegen, Gelderland, The Netherlands 4 Fundacio Catalana per a la Recerca i la …

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2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers: Final Report

The final report from the 2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers has been released. Download Summit Final Recommendations 5-17-18 and the Summit Final Report 5-17-18. The RRTCDD and the National Task Group on Intellectual Disabilities and Dementia Practice developed one of the pre-summit reports and presented …

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Health conditions, functional status and health care utilization in adults with cerebral palsy

Family Practice, 2018, 1–10 doi:10.1093/fampra/cmy027 Robert J Fortuna1,*, Ashley Holub2, Margaret A Turk3, Jon Meccarello4 and Philip W Davidson4 1 Departments of Internal Medicine and Pediatrics and 2 Department of Public Health Sciences, University of Rochester, Rochester, NY, USA, 3 Department of Pediatrics and Physical Medicine and Rehabilitation, State University of New York Upstate Medical …

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Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis

Fujiura, G. T.,Li, H., & Magana, S. (2018) Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis. Intellectual and Developmental Disabilities. 56, (2) p. 101–118. DOI: 10.1352/1934-9556-56.2.101 Abstract Health services and associated costs for adults with intellectual and developmental disabilities (IDD) were nationally profiled and the predictors of high …

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Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities

Yamaki, K., Wing, C., Mitchell, D., Owen, R. & Heller, T. (2018) Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities, Intellectual and Developmental Disabilities, 56 (2), p. 133–146. DOI: 10.1352/1934-9556-56.2.133 Abstract States have increasingly transitioned Medicaid enrollees with disabilities from fee-for-service (FFS)to Medicaid Managed Care …

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Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

Journal of Gerontological Social Work (JGSW) 61(4) 411-431. Nancy Jokinen is the senior author. A number of Summit members, representing various nationalities, participated in the writing of this article [Nancy Jokinen, Tiziano Gomiero, Karen Watchman, Matthew P. Janicki, Mary Hogan, Frode Larsen, Anna Beránková, Flávia Heloísa Santos, Kathy Service, & Jim Crowe] Abstract: This article, an …

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