Research to Practice Self-Determination Series: Self-Determination and Aging

It is part of a series produced by the National Gateway to Self-Determination. This publication provides examples highlighting the importance of hearing the voices of adults aging with developmental disabilities and providing them adequate supports and opportunities for them to age well and to live self-determined lives.
http://www.aucd.org/docs/publications/nti_selfd_issues/issue5_sm.pdf

Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia

Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia (2013). Jokinen, N., Janicki, M.P., Keller, S.M., McCallion, P., Force, L.T. & The National Task Group on Intellectual Disabilities and Dementia Practices. Journal of Policy and Practice in Intellectual Disabilities, (10)1, 1-24. http://onlinelibrary.wiley.com/doi/10.1111/jppi.12016/abstract

The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report

The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report. (2012). Heller, T., Hsieh, K., Badetti, L., & Parker, H. (2012). Chicago: University of Illinois at Chicago. Special Olympics Collaborating Research Center, Institute on Disability and Human Development, University of Illinois at Chicago. Read More...

Advancing a Research Agenda for Bridging Aging and Disability

Advancing a research agenda for bridging aging and disability, (2012). Salvador-Carulla, L., Putnam, M., & Heller, T. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1085/1921

International Initiatives on Bridging Knowledge, Policy and Practice

International initiatives on bridging knowledge, policy and practice, (2012). Leonardi, M., Bickenbach, J., & LeRoy, B. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1084/1919

Bringing Stakeholders Together Across Aging and Disability: GOWD Conference Series

Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917

Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference

Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915

The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability

The Toronto declaration on bridging knowledge, policy and practice in aging and disability, (2012). Bickenbach, J., Bigby, C., Salvador-Carulla, L., Heller, T., Leonardi, M., LeRoy, B., Mendez, J., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1086/1923

Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families

Self-directed support: Impact of hiring practices on adults with intellectual and developmental disabilities and families, (2012). Heller, T., Arnold, C.K., van Heumen, L., McBride, E.J., & Factor, A. American Journal on Intellectual and Developmental Disabilities, 117, 464-477.

Prevalence of Falls and Risk Factors in Adults with Intellectual Disability

Prevalence of falls and risk factors in adults with Intellectual Disability, (2012). Hsieh, K., Rimmer, J., & Heller, T. American Journal on Intellectual and Developmental Disabilities, 117, 442-454.

Self-Reported Health of People with Intellectual Disability

Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369.

Publications

Welcome to the RRTCADD Publications page!

The Publication Window opens with all of our products listed by year of publication in descending order. Users can organize and search for RRTCADD publications by clicking on any of the categories listed in the window's sidebar:

  • Publication year
  • Topic (Self-Advocacy/Self Determination, Families, Health Promotion, Policy/Service Delivery, Assistive Technology, and General)
  • Publication Type (Books/Chapters, Journal articles, Curricula/Educational Materials, and Research Reports and Briefs).
Many RRTCADD publications can be downloaded free of charge via links included in their entry. When requesting material requiring a fee, the Order Form must be downloaded and mailed in with a check (or purchase order) for the full amount of purchase. The Order Form may be downloaded in eitherin Word or PDF. Some material may only be available on publishers' websites - some free, others requiring payment


This publications list only includes materials developed by the RRTCADD. Other resources are listed on our web site’s
Topics of Interest page.

Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities

Heller, T., Nelis, T., Collins, S. & Pederson, E.L. (2012)

This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and the National Gateway to Self-Determination.  It is also on the National Gateway to Self-Determination website http://www.aucd.org/ngsd/template/index.cfm. Read More...

Systematic Reviews for Informing Rehabilitation Practice: An Introduction

Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)
Archives of Physical Medicine and Rehabilitation, (93), 912-918.

Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices

Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices (2012). Factor, A., Heller, T. & Janicki, M.

This report identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks. Key policy initiatives addressed include the Aging and Disability Resource Centers, the Lifespan Respite Act, the National Alzheimer’s Project Act, and the Patient Protection and Affordable Care Act. Download in
Word OR PDF format. Read More...

‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports

‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.

This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices.  It provides a summary of the challenges facing the nation as we observe an increasing rate of dementia found in older people with intellectual disabilities. The Report offers recommendations for the various stakeholders in the field of intellectual disabilities and anticipates that its findings and recommendations will be considered and integrated into the annual reports and plans developed by the federal Advisory Council on Alzheimer’s Research, Care, and Services.  The RRTCADD and the American Academy of Developmental Medicine and Dentistry organized the Task Group and co-authored the report.  Download in
PDF. Read More...

Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?

Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities? (February 2011). Heller, T., McCubbin, J.A., Drum, D. & Peterson, J. Intellectual and Developmental Disabilities, 49 (1), 26-36.

Self-Determination Across the Life Span: Issues and Gaps

Self-Determination Across the Life Span: Issues and Gaps (2011). Heller, T., Schindler, A., Palmer, S.B., Wehmeyer, M.L., Parent, W., Jenson, R., Abery, B.H., Geringer, W., Bacon, A. & O’Hara, D.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 31-45.

Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities

Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities (2011). Calkins, C., Wehmeyer, M.L., Bacon, A., Heller, T. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 2-5.

Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities

Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities (2011). Bacon, A., Walker, H.M., Schwartz, A.A., O’Hara, D.M., Calkins, C. & Wehmeyer, M.L. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19(1), 46-60.

Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination

Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination (2011). Wehmeyer, M.L., Abery, B.H., Dalun, Z., Ward, K., Willis, D., Amin-Hossain,A., Balcazar, F., Ball, A., Bacon, A., Calkins, C., Heller, T., Goode, T., Dias, R., Jesien, G., McVeigh, T., Nygren, M., Palmer, S.B. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 19-30.

State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research Into Practice

State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research Into Practice (2011). Heller, T., Rimmer, J., Hsieh, K., Fujiura, G. & Behrens, C. Read More...

Disability Through the Life Course

Disability Through the Life Course (2011) Heller, T. & Parker Harris, S.: SAGE Publications, Thousand Oaks, CA.

DisabilityCover Read More...

Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities

Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities (Winter, 2010). Heller, T., Stafford, P.B., Davis, L.A. & Sedlezky, L. Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living and Employment, College of Education and Human Development, University of Minnesota. Volume 23, Number 1.

Offers fresh, practical, and challenging perspectives on supporting aging individuals with disabilities and their families.

Impact Cover Read More...

Health of Aging Family Caregivers in Illinois

Health of Aging Family Caregivers in Illinois (2010). Yamaki, K., Hsieh, K. & Heller T.
This brief compares the rates of obesity between adults with and without I/DD from 1985 to 2000. It is based on an analysis of the National Health Interview Surveys.

300048 Read More...

The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities

The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities (2010). Factor, A., DeBrine, E., Caldwell, J., Arnold, K., Kramer, J., Nelis, T. & Heller, T.
This curriculum equips families and their adult relative with a disability with the communication skills and information to jointly plan for the future. Read More...

Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities

Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities (2010). Marks, B., Sisirak, J. & Heller, T. Baltimore: Paul H. Brookes Publishing Co.

A research-based, field-tested program that's already made a dramatic difference in the lives of participants with disabilities, this proven curriculum shows professionals how to conduct up to 59 one-hour sessions that help people make the best choices about health, exercise, and nutrition.

ISBN: 78-1-55766-999-5
COST: $64.95
Order directly from Brookes Publishing Co. at
www.brookespublishing.com or 800-638-3775
Health Matters Curriculum Cover Page

Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies

Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies (2010). Haveman, M., Heller, T., Lee, L., Maaskant, S.S. & Strydom, A. In Journal of Policy and Practice in Intellectual Disabilities: Special Issue on Aging, 59-69.

Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities

Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities (2010). Robinson, L. M., Davidson, P. W., Henderson, C. M., Janicki, M. P., Merrick, J., Morad, M., Wang, K. Y., Hsieh, K., Heller, T., Bishop, K. M. & Wexler, O. International Journal on Disability and Human Development, 9 (4), 329–338

Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes

Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes (2010). Marks, B., Sisirak, J., Heller, T., & Wagner, M. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 119-129.