Journals
National Goals Conference: Self-Determination and Self-Advocacy Strand
17/Feb/2016
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Self-Determination and Self-Advocacy Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Self-Determination and Self-Advocacy Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Long Term Supports and Services Strand
17/Feb/2016
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Long Term Supports and Services Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Health and Wellness Strand
17/Feb/2016
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Health and Wellness Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Health and Wellness Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Families Strand
17/Feb/2016
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Family Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Families Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Aging Strand
17/Feb/2016
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Aging Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Aging Issue Brief, AAIDD Inclusion Journal Article, and Video
Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study
25/Nov/2015
Elisabeth L. Zeilinger, Claudia Gärtner, Matthew P. Janicki, Lucille Esralew & Germain Weber
Journal of Intellectual & Developmental Disabilities
Published online: 23 Nov 2015
http://dx.doi.org/10.3109/13668250.2015.1113238
ABSTRACT
Background
In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group – Early Detection Screen for Dementia (NTG-EDSD).
Method
Some 221 paid carers of ageing persons with ID were asked to use the NTG-EDSD and report back on its utility and on 4 feasibility dimensions, and to provide detailed feedback on aspects deemed critical or missing.
Results
All feasibility dimensions were rated good to very good, and 80% of respondents found the NTG-EDSD useful or very useful for the early detection of dementia. This highlights a high acceptability of this instrument by the main target group. Conclusions The positive feasibility evaluation of the NTG-EDSD indicates the usability and adequacy of this instrument for application of early detection of dementia in persons with ID.
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Journal of Intellectual & Developmental Disabilities
Published online: 23 Nov 2015
http://dx.doi.org/10.3109/13668250.2015.1113238
ABSTRACT
Background
In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group – Early Detection Screen for Dementia (NTG-EDSD).
Method
Some 221 paid carers of ageing persons with ID were asked to use the NTG-EDSD and report back on its utility and on 4 feasibility dimensions, and to provide detailed feedback on aspects deemed critical or missing.
Results
All feasibility dimensions were rated good to very good, and 80% of respondents found the NTG-EDSD useful or very useful for the early detection of dementia. This highlights a high acceptability of this instrument by the main target group. Conclusions The positive feasibility evaluation of the NTG-EDSD indicates the usability and adequacy of this instrument for application of early detection of dementia in persons with ID.
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Ageing-related experiences of adults with learning disability resident in rural areas: one Australian perspective
25/Nov/2015
Stuart Wark, Miranda Canon-Vanry, Peta Ryan, Rafat Hussain, Marie Knox, Meaghan Edwards, Marie Parmenter, Trevor Parmenter, Matthew Janicki, andChez Leggatt-Cook
British Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities
Volume 43, Issue 4, Pages 293–301
December 2015
Summary
Abstract
Background: Access to support services in rural areas is known to be problematic both in Australia, and in other countries around the world, but the majority of research on the population of people ageing with learning disability has so far focussed on metropolitan residents. The authors report about select aspects of the lived experience of older adults with learning disability resident in rural locations in two states of Australia.
Materials and Methods:
This pilot project examined data drawn from 34 semi-structured interviews conducted with 17 older adults and 17 carers. Responses were analysed for thematic areas.
Results: It was observed that the capacity of certain rural areas to support meaningful choice-making was limited due to constraints of access to key services, including community-based aged care, generic and specialist health services, and both supported disability and aged-care residential options. Responses indicated that those living in both small- and medium-sized congregate care settings (such as group homes and residential aged-care facilities) had more limited choices and only partial (if any) control over their living situation.
Conclusion: An understanding of the needs of older adults with learning disability resident in rural areas is important to ensure that both aged-care and disability support structures are built on individuals' needs.
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British Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities
Volume 43, Issue 4, Pages 293–301
December 2015
Summary
- This paper is about older people with learning disabilities who live in the country in Australia.
- We talked to both individuals and their carers to find out what things helped them they got older, and what things made it harder.
- These people said that they were well supported by the local community and particularly their doctors.
- However, many people in this project also reported problems about living in the country such as limited choices and being forced to make decisions they did not like.
Abstract
Background: Access to support services in rural areas is known to be problematic both in Australia, and in other countries around the world, but the majority of research on the population of people ageing with learning disability has so far focussed on metropolitan residents. The authors report about select aspects of the lived experience of older adults with learning disability resident in rural locations in two states of Australia.
Materials and Methods:
This pilot project examined data drawn from 34 semi-structured interviews conducted with 17 older adults and 17 carers. Responses were analysed for thematic areas.
Results: It was observed that the capacity of certain rural areas to support meaningful choice-making was limited due to constraints of access to key services, including community-based aged care, generic and specialist health services, and both supported disability and aged-care residential options. Responses indicated that those living in both small- and medium-sized congregate care settings (such as group homes and residential aged-care facilities) had more limited choices and only partial (if any) control over their living situation.
Conclusion: An understanding of the needs of older adults with learning disability resident in rural areas is important to ensure that both aged-care and disability support structures are built on individuals' needs.
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Life course health and healthcare utilization among adults with spina bifida
12/Nov/2015
Liptak GS, Robinson LM, Davidson PW, Dziorny A, Lavalley R, Flaherty MG, Dosa NP
Developmental Medicine & Child Neurology 2015 Nov 2
Abstract
AIM: To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.
METHOD: This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).
RESULTS: Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).
INTERPRETATION: Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.
doi: 10.1111/dmcn.12952 Read More...
Developmental Medicine & Child Neurology 2015 Nov 2
Abstract
AIM: To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.
METHOD: This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).
RESULTS: Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).
INTERPRETATION: Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.
doi: 10.1111/dmcn.12952 Read More...
Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities
22/Oct/2015
Heller, T., Gibbons, H.M., & Fisher, D. (2015). Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities. Intellectual and Developmental Disabilities, 53(5), 329–345.
Abstract
This scoping review addressed the following questions: (a) What types of caregiver interventions are being done in both aging and developmental disability research? (b) How are these interventions similar and different? (c) What kinds of outcomes do these interventions have? (d) What innovative approaches are these interventions using? and (e) What can each field (developmental disabilities and gerontology) learn from the other based on this review? The disability review spanned 20 years (1992–2012), resulting in 14 studies; the aging review spanned 5 years (2008– 2012), resulting in 55 studies. Data from the final selected studies were then extracted and compared on research design, type of intervention (governmental programs, small-group psychosocial, and other), and outcomes. Generally, in both fields, family-support interventions benefited participants’ well-being and improved service access and satisfaction. Increased partnership between the fields of aging and developmental disabilities is critical to future scholarship in caregiving for both populations.
Read More...Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation
07/Oct/2015
Fortuna, R.J., Robinson, L., Smith, T.H., Meccarello, J., Bullen, B., Nobis, K., Davidson, P.W.
J Gen Intern Med. 2015 Sep 11.
http://link.springer.com/article/10.1007%2Fs11606-015-3509-x
Abstract
BACKGROUND: Children and adolescents with autism spectrum disorder (ASD) have many well-known health concerns, yet health conditions in adults with ASD remain poorly defined.
OBJECTIVE: To examine health conditions and functional status in adults with ASD and identify factors associated with health and functional status across age cohorts.
DESIGN AND SUBJECTS: We collected cross-sectional data from 255 adult subjects aged 18 to 71 years with ASD using the Rochester Health Status Survey IV (RHSS-IV), a 58-item validated survey instrument. We used the National Health and Nutritional Examination Survey and National Health Interview Survey to provide comparative prevalence rates in the general population.
RESULTS: Compared to the general population, young adults aged 18-29 with ASD had a substantially higher prevalence of seizure disorder (11.2 % vs. 1.4 %; p = 0.002), depression (16.4 % vs. 6.4 %; p = 0.007), hypertension (12.9 % vs. 6.3 %; p = 0.05), and allergies (39.7 % vs. 8.4 %; p < 0.001). In contrast, young adults with ASD had considerably lower rates of sexually transmitted illness (STI) (0.9 % vs. 4.3 %; p = 0.03), tobacco use (5.2 % vs. 31.9 %; p < 0.001), and alcohol misuse (0.9 % vs. 11.9 %; p < 0.001). Adults 40 and over with ASD also had higher rates of seizure disorder (29.2 % vs. 1.7 %; p < 0.001), lower tobacco use (2.8 % vs. 24.5 %; p < 0.001), and lower alcohol misuse (1.4 % vs. 18.2 %; p < 0.001) compared to the general population. Amongst the 55 % of participants with a documented IQ score, 91 % had an intellectual disability (IQ < 70). Within the cohort aged 40 years old and older, only 54.2 % were independent with eating, 43.0 % independent with dressing, and 43.1 % independent with bathing. Lower IQ and depression were associated with lower functional status.
CONCLUSIONS: Adults with ASD have a high prevalence of seizure disorders and depression, but low rates of STIs, tobacco use, and alcohol misuse. Within our cohort, the majority of older adults with ASD required some assistance with activities of daily living.
Impact of Adulthood Stage and Social-Environmental Context on Body Mass Index and Physical Activity of Individuals With Intellectual Disability
13/Apr/2015
Kelly Hsieh, Tamar Heller, Julie Bershadsky, and Sarah Taub
Intellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113
Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle (40–59 years), and older (60 years and older) on Body Mass Index (BMI) and physical activity (PA); and (2) the relationship between social-environmental context (i.e., residence type, everyday choices, and community participation) and BMI and PA, with adjustment for individual characteristics of the adults with ID. Findings highlight the need to pay more attention to obesity by providing health education and emphasizing healthy choices. Results also suggest the importance of community participation as a way of promoting more physical activity.
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Intellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113
Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle (40–59 years), and older (60 years and older) on Body Mass Index (BMI) and physical activity (PA); and (2) the relationship between social-environmental context (i.e., residence type, everyday choices, and community participation) and BMI and PA, with adjustment for individual characteristics of the adults with ID. Findings highlight the need to pay more attention to obesity by providing health education and emphasizing healthy choices. Results also suggest the importance of community participation as a way of promoting more physical activity.
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Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities
01/Apr/2015
Corina R. Ronneberg, Lisa Peters-Beumer, Beth Marks, and Alan Factor
Abstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined.
http://ome.sagepub.com/content/70/4.toc Read More...
Abstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined.
http://ome.sagepub.com/content/70/4.toc Read More...
Use of promotoras de salud in interventions with Latino families of children with IDD
20/Oct/2014
Magaña, S., Lopez, K., Paradiso de Sayu, R., Miranda, E. (2014). Use of promotoras de salud in interventions with Latino families of children with IDD. In R. Hodapp (Ed.) International Review of Research in Developmental Disabilities, 47, IRRDD, UK: Academic Press, 2014, pp. 39-75.
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Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities
25/Apr/2014
Magaña, S., Li, H., Miranda, E., & Paradiso, R. (2014) Improving health behaviors of Latina mothers of youths and adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research. doi: 10.1111/jir.12139
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Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging
13/Feb/2014
Heller, T., Fisher, D., Marks, B., & Hsieh, K. (2014) Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging. Disability and Health Journal, 7, S24-S32.
http://www.sciencedirect.com/science/article/pii/S193665741300109X
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http://www.sciencedirect.com/science/article/pii/S193665741300109X
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The Political Arithmetic of Disability and the American Family: A Demographic Perspective
13/Feb/2014
Fujiura, G. (2014) The Political Arithmetic of Disability and the American Family: A Demographic Perspective. Family Relations Interdisciplinary Journal of Applied Family Studies, 63(1), pp. 7-19.
http://onlinelibrary.wiley.com/doi/10.1111/fare.12051/abstract
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http://onlinelibrary.wiley.com/doi/10.1111/fare.12051/abstract
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Reciprocity and Social Capital in Sibling Relationships of People With Disabilities
27/Jan/2014
Kramer, J., Hall, Allison, & Heller, T. (2013) Reciprocity and Social Capital in Sibling Relationships of People With Disabilities. Intellectual and Developmental Disabilities, (51)6, 482-495. doi: http://dx.doi.org/10.1352/1934-9556-51.6.482
http://aaiddjournals.org/doi/abs/10.1352/1934-9556-51.6.482
http://aaiddjournals.org/doi/abs/10.1352/1934-9556-51.6.482
Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities
31/Jul/2013
Moran, J.A., Rafii, M.S., Keller, S.M., Singh, B.K., & Janicki, M.P. (2013). Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities. In press.
http://www.ncbi.nlm.nih.gov/pubmed/23849993
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http://www.ncbi.nlm.nih.gov/pubmed/23849993
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Advancing a Research Agenda for Bridging Aging and Disability
04/Dec/2012
Advancing a research agenda for bridging aging and disability (2012). Salvador-Carulla, L., Putnam, M., & Heller, T. International Journal Of Integrated Care, 12(8).
http://www.ijic.org/index.php/ijic/article/view/1085/1921
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http://www.ijic.org/index.php/ijic/article/view/1085/1921
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International Initiatives on Bridging Knowledge, Policy and Practice
04/Dec/2012
International initiatives on bridging knowledge, policy and practice, (2012). Leonardi, M., Bickenbach, J., & LeRoy, B. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1084/1919
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Bringing Stakeholders Together Across Aging and Disability: GOWD Conference Series
04/Dec/2012
Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917
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Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference
04/Dec/2012
Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915
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The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability
04/Dec/2012
The Toronto declaration on bridging knowledge, policy and practice in aging and disability, (2012). Bickenbach, J., Bigby, C., Salvador-Carulla, L., Heller, T., Leonardi, M., LeRoy, B., Mendez, J., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1086/1923
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Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families
03/Dec/2012
Self-directed support: Impact of hiring practices on adults with intellectual and developmental disabilities and families, (2012). Heller, T., Arnold, C.K., van Heumen, L., McBride, E.J., & Factor, A. American Journal on Intellectual and Developmental Disabilities, 117, 464-477.
http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464 Read More...
http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464 Read More...
Prevalence of Falls and Risk Factors in Adults with Intellectual Disability
03/Dec/2012
Prevalence of falls and risk factors in adults with Intellectual Disability, (2012). Hsieh, K., Rimmer, J., & Heller, T. American Journal on Intellectual and Developmental Disabilities, 117, 442-454. Read More...
Self-Reported Health of People with Intellectual Disability
28/Aug/2012
Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369. Read More...
Systematic Reviews for Informing Rehabilitation Practice: An Introduction
01/Jan/2012
Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)
Archives of Physical Medicine and Rehabilitation, (93), 912-918. Read More...
Archives of Physical Medicine and Rehabilitation, (93), 912-918. Read More...
Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?
01/Feb/2011
Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities? (February 2011). Heller, T., McCubbin, J.A., Drum, D. & Peterson, J. Intellectual and Developmental Disabilities, 49 (1), 26-36. Read More...
Self-Determination Across the Life Span: Issues and Gaps
01/Jan/2011
Self-Determination Across the Life Span: Issues and Gaps (2011). Heller, T., Schindler, A., Palmer, S.B., Wehmeyer, M.L., Parent, W., Jenson, R., Abery, B.H., Geringer, W., Bacon, A. & O’Hara, D.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 31-45. Read More...
Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities
01/Jan/2011
Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities (2011). Calkins, C., Wehmeyer, M.L., Bacon, A., Heller, T. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 2-5. Read More...
Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities
01/Jan/2011
Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities (2011). Bacon, A., Walker, H.M., Schwartz, A.A., O’Hara, D.M., Calkins, C. & Wehmeyer, M.L. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19(1), 46-60.
Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination
01/Jan/2011
Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination (2011). Wehmeyer, M.L., Abery, B.H., Dalun, Z., Ward, K., Willis, D., Amin-Hossain,A., Balcazar, F., Ball, A., Bacon, A., Calkins, C., Heller, T., Goode, T., Dias, R., Jesien, G., McVeigh, T., Nygren, M., Palmer, S.B. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 19-30.
Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action
01/Jan/2011
Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action. Kramer, J.M., Kramer, J.C., Garcia-Iriarte, E., & Hammel, J. (2011) Journal of Applied Research in Intellectual Disabilities, 24, 263-173.
http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00602.x/full Read More...
http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00602.x/full Read More...
Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being
01/Jan/2010
Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being. Magaña S & Ghosh, S. (2010). Journal of Family and Social Work, 13, 227-250.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2903044/ Read More...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2903044/ Read More...
Measurement of Participation: Intersecting Person, Task, and Environment
01/Jan/2010
Measurement of Participation: Intersecting Person, Task, and Environment. Mallinson, T., & Hammel, J. (2010). Archives of Physical Medicine and Rehabilitation, 91,100-107.
http://www.sciencedirect.com/science/article/pii/S0003999310002844
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http://www.sciencedirect.com/science/article/pii/S0003999310002844
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Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies
01/Jan/2010
Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies (2010). Haveman, M., Heller, T., Lee, L., Maaskant, S.S. & Strydom, A. In Journal of Policy and Practice in Intellectual Disabilities: Special Issue on Aging, 59-69.
Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities
01/Jan/2010
Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities (2010). Robinson, L. M., Davidson, P. W., Henderson, C. M., Janicki, M. P., Merrick, J., Morad, M., Wang, K. Y., Hsieh, K., Heller, T., Bishop, K. M. & Wexler, O. International Journal on Disability and Human Development, 9 (4), 329–338
Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes
01/Jan/2010
Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes (2010). Marks, B., Sisirak, J., Heller, T., & Wagner, M. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 119-129.
Aging Families and the Demographics of Family Financial Support of Adults with Disabilities
01/Jan/2010
Aging Families and the Demographics of Family Financial Support of Adults with Disabilities (2010).Fujiura, G.T. Journal of Disability Policy Studies, 20(4), 241-250. Read More...
Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning
01/Jan/2010
Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning (2010). Heller,T., Keiling Arnold, C. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16-25. Read More...
New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities
01/Jan/2009
New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.
Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities
01/Jan/2009
Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.
Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning
01/Jan/2009
Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning (2009). Heller, T. & Kramer, J. Intellectual and Developmental Disabilities, 47, 208-219.
Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities
01/Jan/2009
Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities (2009). Yamaki, K., Hsieh, K & Heller, T. Intellectual and Developmental Disabilities, 47(6), 425-435.
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes
01/Jan/2009
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities
01/Jan/2009
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.
Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study
01/Oct/2008
Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study (2008). Jurkowski, J., Rivera, Y. & Hammel, J. Health Promotion Practice.
What Does Participation Mean? An Insider Perspective From People With Disabilities
01/Jan/2008
What Does Participation Mean? An Insider Perspective From People With Disabilities (2008). Hammel, J., Magasi, S., Heinemann, A., Whiteneck, G., Bogner, J. & Rodriguez, E. Disability and Rehabilitation, 30 (19) 1445-1460
Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy
01/Jan/2008
Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy (2008). Garcia-Iriarte, E., Kramer, J.C., Kramer, J.M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities, 22, 10-22.
Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development
01/Jan/2008
Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development (2008). Jurkowski, J. Intellectual and Developmental Disabilities, 46 (1)1-11.
Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium
01/Jan/2008
Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium (2008). Heller, T. Disability and Health Journal. 1, 127-130
Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging
01/Jan/2008
Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging (2008). Janicki, M., Henderson, M.C. & Rubin, L.I., Disability and Health Journal. 1, 116-124
Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference
01/Jan/2008
Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Marks, B., Sisirak, J. & Hsieh, K. Disability and Health Journal. 1, 136-142.
http://www.sciencedirect.com/science/article/pii/S1936657408000514
http://www.sciencedirect.com/science/article/pii/S1936657408000514
Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference
01/Jan/2008
Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Hammel, J., Jones, R., Smith, J., Sanford, J., Bodine, C. & Johnson, M. Disability and Health Journal. 1, 143-149.
Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey
01/Jan/2008
Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey (2008). Davidson, P., Henderson, M.C., Janicki, M., Robinson, L.M., Bishop, K. M., Wells, A., Garroway, J. & Wexler, O. Journal of Policy and Practice in Intellectual Disabilities. 5 (1), 12-23.
Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability
01/Jan/2008
Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability (2008). Henderson, C. M., Robinson, L. M., Davidson, P. W., Haveman, M., Janicki, M. P. & Albertini, G. Journal of Policy and Practice in Intellectual Disabilities, 5 (3), 174-177.
Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities
01/Jan/2008
Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities (2008). Caldwell, J. Journal of Disability Policy Studies.19(2). 68-79.
Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities
01/Jan/2008
Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities (2008). Magaña, S., Smith, M.J. American Journal of Intellectual and Developmental Disabilities. 46(4). 267-280.
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http://aaiddjournals.org/doi/pdf/10.1352/1934-9556(2008)46%5B267%3AHBSUAA%5D2.0.CO%3B2 Read More...
Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference
01/Jan/2008
Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Heller, T., Factor, A. Disability and Health Journal. 1, 131-135.
Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being
01/Jan/2008
Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being (2008). Kring, S.R., Greenberg, J.S. and Seltzer, M.M. Journal of Mental Health Research in Intellectual Disabilities 1(2). 53-74
Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model
01/Jan/2007
Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model. Magaña, S. Ramirez, J., Hernandez, M., & Cortez, R. (2007). Psychiatric Services. 58, 378–384.
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http://ps.psychiatryonline.org/data/Journals/PSS/3797/07ps378.pdf Read More...
Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development
01/Jan/2007
Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J., Paul, A. Health Promotion Practice, 8(4) 358-365.
Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development
01/Jan/2007
Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J. & Paul, A. Health Promotion Practice, 8(4) 358-365.
Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions
01/Jan/2007
Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions (2007). Wang, K. Y., Hsieh, K., Heller, T., Davidson, P. W. and Janicki, M. P. Journal of Intellectual Disability Research, 51(3), 173-183.
Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families
01/Jan/2007
Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families (2007). Caldwell, J., Heller, T. American Journal of Intellectual and Developmental Disabilities. 45(3). 161-173
Cultural Competence Revisited: Nursing Students with Disabilities
01/Jan/2007
Cultural Competence Revisited: Nursing Students with Disabilities (2007). Marks, B. Journal of Nursing Education, 46(2)
Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program
01/Jan/2007
Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program (2007). Caldwell, J. Disability & Society, 22 (6), 549-562.
Policies That Shape the Intellectual Disabilities Service System
01/Jan/2007
Policies That Shape the Intellectual Disabilities Service System (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, iii- iv.
Emerging Policy Challenges in Intellectual Disabilities
01/Jan/2007
Emerging Policy Challenges in Intellectual Disabilities (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, 188-194.
Aging Family Caregivers: Policies and Practices
01/Jan/2007
Aging Family Caregivers: Policies and Practices (2007). Heller, T., Caldwell, J. & Factor, A. Mental Retardation and Developmental Disabilities Research Reviews, 13, 136-142.
The Demography of Intellectual Disabilities: What the Beans Tell Us
01/Jan/2007
The Demography of Intellectual Disabilities: What the Beans Tell Us (2007). Fujiura, G.T. Insight, 1 (4), 12-20.
Hispanic caregivers of adults with mental retardation: The importance of family functioning
01/Jan/2006
Hispanic caregivers of adults with mental retardation: The importance of family functioning. Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). American Journal on Mental Retardation, 111, 250-262.
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2 Read More...
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2 Read More...
Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status
01/Jan/2006
Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status. Magaña, S., & Smith, M.J. (2006). American Journal of Orthopsychiatry, 76(3), 346-357.
http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract Read More...
http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract Read More...
Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach
01/Jan/2006
Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach (2006) Hammel, J., Jones, R., Gossett, A. & Morgan, E. Topics in Stroke Rehabilitation. 13(3), 43-58.
Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome
01/Jan/2006
Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome (2006) Ailey. S.H., A.M., Heller, T. & Smith, E.V. Research and Theory for Nursing Practice. 20, 229-246.
Mother-Child Relationship Quality Among Adolescents and Adults with Autism
01/Jan/2006
Mother-Child Relationship Quality Among Adolescents and Adults with Autism (2006). Orsmond, G.I., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. American Journal on Mental Retardation, 111(2), 121-137.
Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities
01/Jan/2006
Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities (2006). MagaÐa, S. & Smith, M. J. Mental Retardation, 44(3), 224-234.
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http://www.scopus.com/record/display.url?eid=2-s2.0-33746171747&origin=inward&txGid=9FFF4580C525FA46837496098E5A3169.y7ESLndDIsN8cE7qwvy6w%3a1
Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism
01/Jan/2006
Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism (2006). Greenberg, J.S., Seltzer, M.M., & Hong, J. American Journal on Mental Retardation, 111(4), 229-249.
Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
01/Jan/2006
Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2006). Heller, T., Caldwell, J. Mental Retardation. 44(3). 189-202.
Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families
01/Jan/2006
Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families (2006) Caldwell, J. Mental Retardation. 44(6). 405-417.
Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being
01/Jan/2006
Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being (2006). Esbensen, J., Anna, Seltzer-Mailick, Marsha, Greenberg, J. Journal of Policy and Practice in Intellectual Disabilities 3(4). 229.
Lessons Drawn From the Critique of the Hissom Closure Evaluation
01/Jan/2006
Lessons Drawn From the Critique of the Hissom Closure Evaluation (2006). Fujiura, G.T. Mental Retardation, 44, 372-375
Life Course Studies of Siblings of Individuals with Developmental Disabilities
11/Jan/2005
Life Course Studies of Siblings of Individuals with Developmental Disabilities (2005). Seltzer, M.M., Greenburg, J.S., Orsmond, G.I., & Lounds, J. Mental Retardation, 43(5), 354-359.
Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease
01/Jan/2005
Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease (2005). Janicki, M. P., Dalton, A. J., McCallion, P., Baxley, D. D. & Zendell, A. Dementia, 4(3), 361-385.
Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation
01/Jan/2005
Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation (2005). Esbensen, A. J., Seltzer, M. M., Greenberg, J. S. & Benson, B. A. American Journal of Mental Retardation, 110, 469-481.
Promoting Physical Activity Among Older People
01/Jan/2005
Promoting Physical Activity Among Older People (2005). Hughes, S.L., Prohaska, T.R., Rimmer, J.H. & Heller, T. Generations, 29(2), 54-59.
Body Weight Status Among Adults with Intellectual Disability in the Community
01/Jan/2005
Body Weight Status Among Adults with Intellectual Disability in the Community (2005). Yamaki, K. Mental Retardation, 43(1), 1-10.
Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status
01/Jan/2005
Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status (2005). Krauss, M.W., Seltzer, M.M.& Jacobson, H.T. Journal of Intellectual Disability Research. 49(2).111-124.
Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement
01/Jan/2005
Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement (2005). Heller, T. & Caldwell, J. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 63-65.
Life Course Impacts of Mild Intellectual Deficits
01/Jan/2005
Life Course Impacts of Mild Intellectual Deficits (2005). Seltzer, M.M., Floyd, F., Greenberg, J.S., et al. American Journal on Mental Retardation, 110(6), 451-468.
Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States
01/Jan/2005
Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States (2005). Rizzolo, M.C., Heller, T. & Braddock, D. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 60-62.
American Journal on Mental Retardation: Special Issue on Family and Service System Supports
01/Sep/2004
American Journal on Mental Retardation: Special Issue on Family and Service System Supports (September 2004). Heller, T. (Ed.). Volume 109, Issue 5.
Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons with intellectual disabilities in Australia, the United States, Israel, and Ireland and discusses the impact on their health and social service systems.
Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons with intellectual disabilities in Australia, the United States, Israel, and Ireland and discusses the impact on their health and social service systems.
Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome
01/Mar/2004
Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome (2004). Braunschweig, C.L., Gomez, S., Sheean, P., Tomey, K.M., Rimmer, J.H., Heller, T. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.186-193.
Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome
01/Mar/2004
Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome (2004). Heller, T., Hsieh, K., Rimmer, J.H. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.175-185
Improvements in Physical Fitness in Adults with Down Syndrome
01/Mar/2004
Improvements in Physical Fitness in Adults with Down Syndrome (2004). Rimmer, J.H., Heller, T., Wang, E., Valerio, I. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.165-174
American Journal on Mental Retardation
01/Mar/2004
American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator
Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities
01/Mar/2004
Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities (2004). Davidson, P.W., Heller, T. & Hyer, K. In Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1). pp. 2-9.
Journal of Policy and Practice in Intellectual Disabilities
01/Mar/2004
Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1).
Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental Disabilities
The Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522
Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental Disabilities
The Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522
Defining a national health research agenda for older adults with intellectual disabilities
01/Jan/2004
Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.
African American families who care for adults with developmental disabilities or mental illness: A call for research
01/Jan/2004
African American families who care for adults with developmental disabilities or mental illness: A call for research. Magaña, S. (2004). African American Perspectives, 10, 129-139.
http://www.rcgd.isr.umich.edu/prba/perspectives/springsummer2004/magnana.pdf Read More...
http://www.rcgd.isr.umich.edu/prba/perspectives/springsummer2004/magnana.pdf Read More...
The health and well-being of Black mothers who care for their adult children with schizophrenia
01/Jan/2004
The health and well-being of Black mothers who care for their adult children with schizophrenia. Magaña, S., Greenberg, J., & Seltzer, M. (2004). Psychiatric Services, 55, 711-713.
http://ps.psychiatryonline.org/article.aspx?articleid=88730 Read More...
http://ps.psychiatryonline.org/article.aspx?articleid=88730 Read More...
Genetically-Linked Syndromes in Intellectual Disabilities
01/Jan/2004
Genetically-Linked Syndromes in Intellectual Disabilities (2004). Henderson, C.M. Journal of Policy and Practice in Intellectual Disabilities, Volume 1, Issue 1, pp.31-41.
Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays
01/Jan/2004
Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays (2004). McCallion, P., Janicki, P.M., & Kolomer, S.R. American Journal on Mental Retardation, 109(5), 352-361.
Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation
01/Jan/2004
Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation (2004). Krauss, M.K., Magana, S., & Seltzer, M.M. Mental Retardation, 42(1), 1-11.
http://www.aaiddjournals.org/doi/abs/10.1352/0047-6765(2004)42%3C1:CCOCDI%3E2.0.CO;2
http://www.aaiddjournals.org/doi/abs/10.1352/0047-6765(2004)42%3C1:CCOCDI%3E2.0.CO;2
Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization
01/Jan/2004
Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization (2004). Merrick, J., Davidson, P.W., Morad, M., Janicki, M.P., Wexler, O. & Henderson, C.M. In American Journal on Mental Retardation, 109(5) pp. 413-420.
Continuum of intellectual disability: Demographic evidence for the "forgotten generation"
01/Jan/2003
Continuum of intellectual disability: Demographic evidence for the "forgotten generation" (2003). Fujiura, G.T. Mental Retardation, 41 (6), 420-429.
Deinstitutionalization movement across states
01/Jan/2003
Deinstitutionalization movement across states (I & II) (2003). Vol. 67, 150-154 & 233-236.
Research in developmental disabilities services in the United States
01/Jan/2003
Research in developmental disabilities services in the United States (I & II) (2003). Vol. 67 310-313 & 390-393.
Policy implications for services to older persons with dementia in Japan
01/Jan/2003
Policy implications for services to older persons with dementia in Japan (I & II) (2003). Vol. 67. Takeda, N., Yamaki, K., Janicki, M.P., Heller, T., Suemitsu, S., & Egusa, Y. 465-469 & 556-559. Available in Japanese from the Japanese Journal of Public Health, (2003).
Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age
01/Jan/2003
Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age (2003). Hawkins, B.A., Eklund, S.J., James, D.R. & Foose, A.K. Mental Retardation, 41(1), 7-28.
Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities
01/Jan/2003
Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities (2003). Marks, B.A., & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 205-228.
http://www.sciencedirect.com/science/article/pii/S002964650200049X Read More...
http://www.sciencedirect.com/science/article/pii/S002964650200049X Read More...
Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities
01/Jan/2003
Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities (2003). Ailey, S.H. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 313-329.
Management of respite and personal assistance services in a consumer-directed family support programme
01/Jan/2003
Management of respite and personal assistance services in a consumer-directed family support programme (2003). Caldwell, J., & Heller, T. Journal of Intellectual Disability Research, 47(4/5), 352-366.
Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?
01/Jan/2003
Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities? (2003). Hammel, J. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 331-349.
Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span
01/Jan/2003
Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span (2003). Marks, B.A., Brown, A., Hahn, J.E. & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 373-393.
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...
Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities
01/Jan/2003
Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities (2003). Ailey, S.A., Marks, B.A., Crisp, C. & Hahn, J.E. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 229-252
Employment and income status of adults with developmental disabilities living in the community
01/Jan/2002
Employment and income status of adults with developmental disabilities living in the community (2002). Yamaki, K., & Fujiura, G. Mental Retardation , 40(2), 132-141.
Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery
01/Jan/2002
Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery (2002). Rimmer, J.H. Disability Management Health Outcomes, 10(6), 337-343.
Residential settings and outcomes for individuals with intellectual disabilities
01/Jan/2002
Residential settings and outcomes for individuals with intellectual disabilities (2002). Heller, T. Current Opinion in Psychiatry, 15, 503-508.
An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities
01/Jan/2002
An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities (2002). Heller, T., Miller, A. B., Heish , K. Mental Retardation, 40, 366-378.
A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan
01/Jan/2002
A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan (I & II) (2002). Vol. 66, 772-776 & 869-872.
Historical overview of developmental disabilities services in the United States
01/Jan/2002
Historical overview of developmental disabilities services in the United States (I & II) (2002). Vol. 66, 931-933 & Vol. 67, 68-72.
Determinants of exercise in adults with cerebral palsy
01/Jan/2002
Determinants of exercise in adults with cerebral palsy (2002). Heller, T., Ying, G., Rimmer, J.H., & Marks, B.A. Public Health Nursing, 19(3), 223-231.
Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome
01/Jan/2002
Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome (2002). Draheim, C., McCubbin, J.A., & Williams, D.P. American Journal on Mental Retardation, 107(3), 201-211.
Women with developmental disabilities: Health and aging
01/Jan/2002
Women with developmental disabilities: Health and aging (2002). Brown, A.A., & Gill, C.J. Current Women's Health Reports, 2, 219-225.
Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation
01/Jan/2002
Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation (2002). Draheim, C.C., Williams, D.P., & McCubbin, J.A. American Journal on Mental Retardation, 107(5), 361-375.
Health characteristics and health services utilization in older adults with intellectual disability living in community residences
01/Jan/2002
Health characteristics and health services utilization in older adults with intellectual disability living in community residences (2002). Janicki, M.P., Davidson, P.W., Henderson, C.M., McCallion, P., Taets, J.D., Force, L.T., Sulkes, S.B., Frangenberg, E., & Ladrigan, P.M. Journal of Intellectual Disability Research, 46(4), 287-298.
Evaluation of two self-report depression measures for adults with down syndrome
01/Jan/2002
Evaluation of two self-report depression measures for adults with down syndrome (2002). Ailey, S.H., Marks, B., & Heller, T. The NADD BULLETIN, 5(4), 71-75.
Dementia-related care decision-making in group homes for persons with intellectual disabilities
01/Jan/2002
Dementia-related care decision-making in group homes for persons with intellectual disabilities (2002). Janicki, M.P., McCallion, P., & Dalton, A.J. Journal of Gerontological Social Work, 38(1/2), 179-195.
Barriers and supports for exercise participation among adults with down syndrome
01/Jan/2002
Barriers and supports for exercise participation among adults with down syndrome (2002). Heller, T., Hsieh, K., & Rimmer, J. Journal of Gerontological Social Work, 38(1/2), 161-178.
Health, Age, and Gender: How do women with intellectual disabilities fare?
01/Jan/2002
Health, Age, and Gender: How do women with intellectual disabilities fare? (2002). Anderson, D.J. Journal of Gerontological Social Work, 38(1/2), 137-160.
Edinburgh principles with accompanying guidelines and recommendations
01/Jan/2002
Edinburgh principles with accompanying guidelines and recommendations (2002). Wilkinson, H., & Janicki, M.P. Journal of Intellectual Disability Research, 46(3), 279-284.
Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation
01/Jan/2002
Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation. Magaña, S., Seltzer, M., Krauss, M., Rubert, M., & Szapocznik, J. (2002). Journal of Human Behavior in the Social Environment, 5, 31-55.
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http://www.tandfonline.com/doi/abs/10.1300/J137v05n03_03#preview Read More...
African-American grandmother carers of children with disabilities: Predictors of depressive symptoms
01/Jan/2002
African-American grandmother carers of children with disabilities: Predictors of depressive symptoms (2002). Kolomer, S.R., McCallion, P., and Janicki, M.P. Journal of Intellectual Disability Research, 37(3-4), 45-64.
Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families
01/Jan/2002
Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families (2002). Magana, S., Seltzer, M.M., and Krauss, M.W. Journal of Gerontological Social Work , 37(3-4), 65-86.
http://www.waisman.wisc.edu/family/pubs/CulturalPubs/2002_service%20utiliz.pdf
http://www.waisman.wisc.edu/family/pubs/CulturalPubs/2002_service%20utiliz.pdf
Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities
01/Jan/2002
Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities (2002). Hammel, J., Lai, J, & Heller, T. Disability and Rehabilitation, 24(1-3), 93-105.
Reasons For Device Use Among Caregivers of the Frail Elderly
01/Jan/2002
Reasons For Device Use Among Caregivers of the Frail Elderly (2002). Kane, C., Mann, W.C., Tomita, M. & Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, 20(1).
Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers
01/Jan/2002
Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers (2002). Hammel, J., Finlayson, M., Kielhofner, G., Helfrich, C. & Peterson, E. Occupational Therapy & Health Care.
Leadership by People with Disabilities in Self-Determination Systems Change
01/Jan/2002
Leadership by People with Disabilities in Self-Determination Systems Change (2002). Powers, L.E., Ward, N., Ferris, L., Nelis, T., Ward, M., Wieck, C. & Heller, T. Journal of Disability Policy Studies, 13(2), 125-133.
Aging and developmental disability: Special issue on current research, programming, and practice implications
01/Jan/2001
Aging and developmental disability: Special issue on current research, programming, and practice implications (2001). Hammel, J., & Nochajski, S. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 1-4.
Risk factors for injuries and falls among adults with developmental disabilities
01/Jan/2001
Risk factors for injuries and falls among adults with developmental disabilities (2001). Hsieh, K., Heller, T., & Miller, A.B. Journal of Intellectual Disability Research, 45, 76-82.
Effect of menopause on cognitive performance in women with Down syndrome
01/Jan/2001
Effect of menopause on cognitive performance in women with Down syndrome (2001). Patel, B.N., Seltzer, G.B., Wu, H.S., & Schupf, N. Neuroreport, 12(12), 2659-62.
A Prospective Study of Menopause in Women with Down Syndrome
01/Jan/2001
A Prospective Study of Menopause in Women with Down Syndrome (2001). Seltzer, G.B., Schupf, N. & Wu, H.S. Journal of Intellectual Disability Research, 45, 1-7. Read More...
Health status of mothers of adults with intellectual disability
01/Jan/2001
Health status of mothers of adults with intellectual disability (2001). Chen, S.C., Ryan-Henry, S., Heller, T., & Chen, E.H. Journal of Intellectual Disability Research, 45(5), 439-449.
Families of adolescents and adults with autism: Uncharted territory
01/Jan/2001
Families of adolescents and adults with autism: Uncharted territory (2001). Seltzer, M.M., Krauss, M.W., Orsmond, G.I., & Vestal, C. International Review of Research in Mental Retardation, 23, 267-294.
Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation
01/Jan/2001
Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation (2001). Hong, J., Seltzer, M.M., & Krauss, M.W. Family Relations, 50, 154-164.
Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation
01/Jan/2001
Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation (2001). Seltzer, M.M., Krauss, M.W., Hong, J., & Orsmond, G.I. Mental Retardation, 39, 181-194.
Innovative project supports later-life planning for adults and their aging family caregivers
01/Jan/2001
Innovative project supports later-life planning for adults and their aging family caregivers (2001). Heller, T., & Caldwell, J. Maximizing Human Potential, 8(3), 4-5.
Quality of life of adults with mental retardation/ developmental disabilities who live with family
01/Jan/2001
Quality of life of adults with mental retardation/ developmental disabilities who live with family (2001). Seltzer, M.M., and Krauss, M.W. Mental Retardation and Developmental Disabilities Research Review, 7, 105-114.
Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice
01/Jan/2001
Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice (2001). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 37-58.
Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach
01/Jan/2001
Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach (2001). Keys, C.B. & Factor, A.R. Journal of Prevention & Intervention in the Community, 21(2), 91-112.
Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation
01/Jan/2000
Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation (2000). Kunde, K. & Rimmer, J.H. Adapted Physical Activity Quarterly, 17, 413-420.
Disabilities and health limitations
01/Jan/2000
Disabilities and health limitations (2000). Rimmer, J.H. In Group fitness instructor manual. ACE's guide for fitness professionals (226-246). San Diego: American Council on Exercise.
Overview of health issues of older women with intellectual disabilities
01/Jan/2000
Overview of health issues of older women with intellectual disabilities (2000). Gill, C.J., & Brown, A.A. Aging and Developmental Disability: Current Research, Programming, and Practice Implications (Eds. Hammel, J. & Nochajski, S.) Haworth Press, Inc., 23-36.
Prevalence of dementia and impact on intellectual disability services
01/Jan/2000
Prevalence of dementia and impact on intellectual disability services (2000). Janicki, M.P. & Dalton, A.J. Mental Retardation, 38, 277-289.
Grandparent Caregivers II: Service needs and service provision issues
01/Jan/2000
Grandparent Caregivers II: Service needs and service provision issues (2000). McCallion, P., Janicki, M.P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 63-90.
Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care
01/Jan/2000
Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care (2000). Janicki, M.P., McCallion, P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 35-55.
Grandparents as supports to mothers of persons with intellectual disability
01/Jan/2000
Grandparents as supports to mothers of persons with intellectual disability (2000). Heller, T., Hsieh, K., & Rowitz, L. Journal of Gerontological Social Work , 33, 23-34.
Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship
01/Jan/2000
Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship (2000). Orsmond, G. & Seltzer, M.M. American Journal of Mental Retardation, 105(6), 486-508.
Supporting adults with intellectual disabilities and their families: A literature review
01/Jan/2000
Supporting adults with intellectual disabilities and their families: A literature review (2000). Heller, T. Aging and Developmental Disability: Current Research, Programming, and Practice Implications, The Haworth Press, 59-73.
Mental retardation research methods in Latino communities
01/Jan/2000
Mental retardation research methods in Latino communities. Magaña, S. (2000). Mental Retardation, 38, 303-315.
http://www.aaiddjournals.org/doi/pdf/10.1352/0047-6765%282000%29038%3C0303%3AMRRMIL%3E2.0.CO%3B2 Read More...
http://www.aaiddjournals.org/doi/pdf/10.1352/0047-6765%282000%29038%3C0303%3AMRRMIL%3E2.0.CO%3B2 Read More...
RRTC collaborates with Chicago Arc on family future planning project
01/Jan/2000
RRTC collaborates with Chicago Arc on family future planning project (2000). Heller, T., Caldwell, J., & DeBrine, E. ADD/Vantage, 11(2), 1,12,13,15.
Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons
01/Jan/2000
Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons (2000). Chen, A., Mann, W.C., Tomita, M., & Nochajski, S. Occupational Therapy Journal of Research, 20(3), 179-199.
Impact of Aging on Persons With Developmental Disabilities
01/Jan/2000
Impact of Aging on Persons With Developmental Disabilities (2000). Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, Vol 18(1), 5-21.
Information Resources on Developmental Disability, Aging and Technology
01/Jan/2000
Information Resources on Developmental Disability, Aging and Technology (2000). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, Vol 18(1), 91-94.
Later-Life Planning: Promoting Knowledge of Options and Choice-Making
01/Jan/2000
Later-Life Planning: Promoting Knowledge of Options and Choice-Making (2000). Heller, T., Miller, A., Hsieh, K. & Sterns, H. Mental Retardation, 38(5), 395-406.
Puerto Rican families caring for an adult with mental retardation: The role of familism
01/Jan/1999
Puerto Rican families caring for an adult with mental retardation: The role of familism. Magaña, S. (1999). American Journal on Mental Retardation, 104, 466-482.
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%281999%29104%3C0466%3APRFCFA%3E2.0.CO%3B2 Read More...
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%281999%29104%3C0466%3APRFCFA%3E2.0.CO%3B2 Read More...