National Goals Conference: Self-Determination and Self-Advocacy Strand
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Self-Determination and Self-Advocacy Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Self-Determination and Self-Advocacy Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Long Term Supports and Services Strand
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Long Term Supports and Services Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Health and Wellness Strand
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Health and Wellness Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Health and Wellness Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Families Strand
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Family Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Families Issue Brief, AAIDD Inclusion Journal Article, and Video
National Goals Conference: Aging Strand
National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities
Setting a National Agenda for Aging Research, Practice, and Policy
In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.
View Aging Issue Brief, AAIDD Inclusion Journal Article, and Video
Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study
Journal of Intellectual & Developmental Disabilities
Published online: 23 Nov 2015
http://dx.doi.org/10.3109/13668250.2015.1113238
ABSTRACT
Background
In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group – Early Detection Screen for Dementia (NTG-EDSD).
Method
Some 221 paid carers of ageing persons with ID were asked to use the NTG-EDSD and report back on its utility and on 4 feasibility dimensions, and to provide detailed feedback on aspects deemed critical or missing.
Results
All feasibility dimensions were rated good to very good, and 80% of respondents found the NTG-EDSD useful or very useful for the early detection of dementia. This highlights a high acceptability of this instrument by the main target group. Conclusions The positive feasibility evaluation of the NTG-EDSD indicates the usability and adequacy of this instrument for application of early detection of dementia in persons with ID.
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Ageing-related experiences of adults with learning disability resident in rural areas: one Australian perspective
British Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities
Volume 43, Issue 4, Pages 293–301
December 2015
Summary
- This paper is about older people with learning disabilities who live in the country in Australia.
- We talked to both individuals and their carers to find out what things helped them they got older, and what things made it harder.
- These people said that they were well supported by the local community and particularly their doctors.
- However, many people in this project also reported problems about living in the country such as limited choices and being forced to make decisions they did not like.
Abstract
Background: Access to support services in rural areas is known to be problematic both in Australia, and in other countries around the world, but the majority of research on the population of people ageing with learning disability has so far focussed on metropolitan residents. The authors report about select aspects of the lived experience of older adults with learning disability resident in rural locations in two states of Australia.
Materials and Methods:
This pilot project examined data drawn from 34 semi-structured interviews conducted with 17 older adults and 17 carers. Responses were analysed for thematic areas.
Results: It was observed that the capacity of certain rural areas to support meaningful choice-making was limited due to constraints of access to key services, including community-based aged care, generic and specialist health services, and both supported disability and aged-care residential options. Responses indicated that those living in both small- and medium-sized congregate care settings (such as group homes and residential aged-care facilities) had more limited choices and only partial (if any) control over their living situation.
Conclusion: An understanding of the needs of older adults with learning disability resident in rural areas is important to ensure that both aged-care and disability support structures are built on individuals' needs.
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Life course health and healthcare utilization among adults with spina bifida
Developmental Medicine & Child Neurology 2015 Nov 2
Abstract
AIM: To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.
METHOD: This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).
RESULTS: Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).
INTERPRETATION: Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.
doi: 10.1111/dmcn.12952 Read More...
Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities
Abstract
This scoping review addressed the following questions: (a) What types of caregiver interventions are being done in both aging and developmental disability research? (b) How are these interventions similar and different? (c) What kinds of outcomes do these interventions have? (d) What innovative approaches are these interventions using? and (e) What can each field (developmental disabilities and gerontology) learn from the other based on this review? The disability review spanned 20 years (1992–2012), resulting in 14 studies; the aging review spanned 5 years (2008– 2012), resulting in 55 studies. Data from the final selected studies were then extracted and compared on research design, type of intervention (governmental programs, small-group psychosocial, and other), and outcomes. Generally, in both fields, family-support interventions benefited participants’ well-being and improved service access and satisfaction. Increased partnership between the fields of aging and developmental disabilities is critical to future scholarship in caregiving for both populations.
Read More...Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation
Fortuna, R.J., Robinson, L., Smith, T.H., Meccarello, J., Bullen, B., Nobis, K., Davidson, P.W.
J Gen Intern Med. 2015 Sep 11.
http://link.springer.com/article/10.1007%2Fs11606-015-3509-x
Abstract
BACKGROUND: Children and adolescents with autism spectrum disorder (ASD) have many well-known health concerns, yet health conditions in adults with ASD remain poorly defined.
OBJECTIVE: To examine health conditions and functional status in adults with ASD and identify factors associated with health and functional status across age cohorts.
DESIGN AND SUBJECTS: We collected cross-sectional data from 255 adult subjects aged 18 to 71 years with ASD using the Rochester Health Status Survey IV (RHSS-IV), a 58-item validated survey instrument. We used the National Health and Nutritional Examination Survey and National Health Interview Survey to provide comparative prevalence rates in the general population.
RESULTS: Compared to the general population, young adults aged 18-29 with ASD had a substantially higher prevalence of seizure disorder (11.2 % vs. 1.4 %; p = 0.002), depression (16.4 % vs. 6.4 %; p = 0.007), hypertension (12.9 % vs. 6.3 %; p = 0.05), and allergies (39.7 % vs. 8.4 %; p < 0.001). In contrast, young adults with ASD had considerably lower rates of sexually transmitted illness (STI) (0.9 % vs. 4.3 %; p = 0.03), tobacco use (5.2 % vs. 31.9 %; p < 0.001), and alcohol misuse (0.9 % vs. 11.9 %; p < 0.001). Adults 40 and over with ASD also had higher rates of seizure disorder (29.2 % vs. 1.7 %; p < 0.001), lower tobacco use (2.8 % vs. 24.5 %; p < 0.001), and lower alcohol misuse (1.4 % vs. 18.2 %; p < 0.001) compared to the general population. Amongst the 55 % of participants with a documented IQ score, 91 % had an intellectual disability (IQ < 70). Within the cohort aged 40 years old and older, only 54.2 % were independent with eating, 43.0 % independent with dressing, and 43.1 % independent with bathing. Lower IQ and depression were associated with lower functional status.
CONCLUSIONS: Adults with ASD have a high prevalence of seizure disorders and depression, but low rates of STIs, tobacco use, and alcohol misuse. Within our cohort, the majority of older adults with ASD required some assistance with activities of daily living.
Impact of Adulthood Stage and Social-Environmental Context on Body Mass Index and Physical Activity of Individuals With Intellectual Disability
Intellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113
Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle (40–59 years), and older (60 years and older) on Body Mass Index (BMI) and physical activity (PA); and (2) the relationship between social-environmental context (i.e., residence type, everyday choices, and community participation) and BMI and PA, with adjustment for individual characteristics of the adults with ID. Findings highlight the need to pay more attention to obesity by providing health education and emphasizing healthy choices. Results also suggest the importance of community participation as a way of promoting more physical activity.
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Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities
Abstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined.
http://ome.sagepub.com/content/70/4.toc Read More...
Use of promotoras de salud in interventions with Latino families of children with IDD
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Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities
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Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging
http://www.sciencedirect.com/science/article/pii/S193665741300109X
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The Political Arithmetic of Disability and the American Family: A Demographic Perspective
http://onlinelibrary.wiley.com/doi/10.1111/fare.12051/abstract
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Reciprocity and Social Capital in Sibling Relationships of People With Disabilities
http://aaiddjournals.org/doi/abs/10.1352/1934-9556-51.6.482
Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities
http://www.ncbi.nlm.nih.gov/pubmed/23849993
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Advancing a Research Agenda for Bridging Aging and Disability
http://www.ijic.org/index.php/ijic/article/view/1085/1921
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International Initiatives on Bridging Knowledge, Policy and Practice
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Bringing Stakeholders Together Across Aging and Disability: GOWD Conference Series
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Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference
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The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability
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Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families
http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464 Read More...
Prevalence of Falls and Risk Factors in Adults with Intellectual Disability
Self-Reported Health of People with Intellectual Disability
Systematic Reviews for Informing Rehabilitation Practice: An Introduction
Archives of Physical Medicine and Rehabilitation, (93), 912-918. Read More...
Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?
Self-Determination Across the Life Span: Issues and Gaps
Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities
Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities
Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination
Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action
http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00602.x/full Read More...
Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2903044/ Read More...
Measurement of Participation: Intersecting Person, Task, and Environment
http://www.sciencedirect.com/science/article/pii/S0003999310002844
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Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies
Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities
Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes
Aging Families and the Demographics of Family Financial Support of Adults with Disabilities
Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning
New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities
Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities
Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning
Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities
Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes
Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities
Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study
What Does Participation Mean? An Insider Perspective From People With Disabilities
Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy
Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development
Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium
Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging
Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference
http://www.sciencedirect.com/science/article/pii/S1936657408000514
Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference
Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey
Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability
Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities
Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities
http://aaiddjournals.org/doi/pdf/10.1352/1934-9556(2008)46%5B267%3AHBSUAA%5D2.0.CO%3B2 Read More...
Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference
Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being
Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model
http://ps.psychiatryonline.org/data/Journals/PSS/3797/07ps378.pdf Read More...
Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development
Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development
Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions
Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families
Cultural Competence Revisited: Nursing Students with Disabilities
Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program
Policies That Shape the Intellectual Disabilities Service System
Emerging Policy Challenges in Intellectual Disabilities
Aging Family Caregivers: Policies and Practices
The Demography of Intellectual Disabilities: What the Beans Tell Us
Hispanic caregivers of adults with mental retardation: The importance of family functioning
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2 Read More...
Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status
http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract Read More...
Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach
Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome
Mother-Child Relationship Quality Among Adolescents and Adults with Autism
Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities
http://www.scopus.com/record/display.url?eid=2-s2.0-33746171747&origin=inward&txGid=9FFF4580C525FA46837496098E5A3169.y7ESLndDIsN8cE7qwvy6w%3a1
Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism
Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families
Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being
Lessons Drawn From the Critique of the Hissom Closure Evaluation
Life Course Studies of Siblings of Individuals with Developmental Disabilities
Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease
Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation
Promoting Physical Activity Among Older People
Body Weight Status Among Adults with Intellectual Disability in the Community
Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status
Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement
Life Course Impacts of Mild Intellectual Deficits
Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States
American Journal on Mental Retardation: Special Issue on Family and Service System Supports
Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons with intellectual disabilities in Australia, the United States, Israel, and Ireland and discusses the impact on their health and social service systems.
Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome
Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome
Improvements in Physical Fitness in Adults with Down Syndrome
American Journal on Mental Retardation
Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities
Journal of Policy and Practice in Intellectual Disabilities
Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental Disabilities
The Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522
Defining a national health research agenda for older adults with intellectual disabilities
African American families who care for adults with developmental disabilities or mental illness: A call for research
http://www.rcgd.isr.umich.edu/prba/perspectives/springsummer2004/magnana.pdf Read More...
The health and well-being of Black mothers who care for their adult children with schizophrenia
http://ps.psychiatryonline.org/article.aspx?articleid=88730 Read More...
Genetically-Linked Syndromes in Intellectual Disabilities
Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays
Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation
http://www.aaiddjournals.org/doi/abs/10.1352/0047-6765(2004)42%3C1:CCOCDI%3E2.0.CO;2
Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization
Continuum of intellectual disability: Demographic evidence for the "forgotten generation"
Deinstitutionalization movement across states
Research in developmental disabilities services in the United States
Policy implications for services to older persons with dementia in Japan
Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age
Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities
http://www.sciencedirect.com/science/article/pii/S002964650200049X Read More...
Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities
Management of respite and personal assistance services in a consumer-directed family support programme
Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?
Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...
Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities
Employment and income status of adults with developmental disabilities living in the community
Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery
Residential settings and outcomes for individuals with intellectual disabilities
An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities
A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan
Historical overview of developmental disabilities services in the United States
Determinants of exercise in adults with cerebral palsy
Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome
Women with developmental disabilities: Health and aging
Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation
Health characteristics and health services utilization in older adults with intellectual disability living in community residences
Evaluation of two self-report depression measures for adults with down syndrome
Dementia-related care decision-making in group homes for persons with intellectual disabilities
Barriers and supports for exercise participation among adults with down syndrome
Health, Age, and Gender: How do women with intellectual disabilities fare?
Edinburgh principles with accompanying guidelines and recommendations
Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation
http://www.tandfonline.com/doi/abs/10.1300/J137v05n03_03#preview Read More...
African-American grandmother carers of children with disabilities: Predictors of depressive symptoms
Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families
http://www.waisman.wisc.edu/family/pubs/CulturalPubs/2002_service%20utiliz.pdf
Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities
Reasons For Device Use Among Caregivers of the Frail Elderly
Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers
Leadership by People with Disabilities in Self-Determination Systems Change
Aging and developmental disability: Special issue on current research, programming, and practice implications
Risk factors for injuries and falls among adults with developmental disabilities
Effect of menopause on cognitive performance in women with Down syndrome
A Prospective Study of Menopause in Women with Down Syndrome
Health status of mothers of adults with intellectual disability
Families of adolescents and adults with autism: Uncharted territory
Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation
Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation
Innovative project supports later-life planning for adults and their aging family caregivers
Quality of life of adults with mental retardation/ developmental disabilities who live with family
Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice
Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach
Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation
Disabilities and health limitations
Overview of health issues of older women with intellectual disabilities
Prevalence of dementia and impact on intellectual disability services
Grandparent Caregivers II: Service needs and service provision issues
Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care
Grandparents as supports to mothers of persons with intellectual disability
Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship
Supporting adults with intellectual disabilities and their families: A literature review
Mental retardation research methods in Latino communities
http://www.aaiddjournals.org/doi/pdf/10.1352/0047-6765%282000%29038%3C0303%3AMRRMIL%3E2.0.CO%3B2 Read More...
RRTC collaborates with Chicago Arc on family future planning project
Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons
Impact of Aging on Persons With Developmental Disabilities
Information Resources on Developmental Disability, Aging and Technology
Later-Life Planning: Promoting Knowledge of Options and Choice-Making
Puerto Rican families caring for an adult with mental retardation: The role of familism
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%281999%29104%3C0466%3APRFCFA%3E2.0.CO%3B2 Read More...