Journals

National Goals Conference: Self-Determination and Self-Advocacy Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Self-Determination and Self-Advocacy Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Self-Determination and Self-Advocacy Issue Brief, AAIDD Inclusion Journal Article, and Video

Read More...

National Goals Conference: Long Term Supports and Services Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Long Term Supports and Services Issue Brief, AAIDD Inclusion Journal Article, and Video

Read More...

National Goals Conference: Health and Wellness Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Health and Wellness Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Health and Wellness Issue Brief, AAIDD Inclusion Journal Article, and Video

Read More...

National Goals Conference: Families Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Family Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Families Issue Brief, AAIDD Inclusion Journal Article, and Video

Read More...

National Goals Conference: Aging Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities


Setting a National Agenda for Aging Research, Practice, and Policy

In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge and identify a platform of national goals, organized by 10 focus areas, in research, practice, and policy in intellectual and developmental disabilities. The products were developed in each strand for a variety of audiences with the overarching goal of advancing a research agenda that will influence policy and practice for and with people with intellectual and developmental disabilities over the next 10 years.

View Aging Issue Brief, AAIDD Inclusion Journal Article, and Video

Read More...

Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study

Elisabeth L. Zeilinger, Claudia Gärtner, Matthew P. Janicki, Lucille Esralew & Germain Weber

Journal of Intellectual & Developmental Disabilities
Published online: 23 Nov 2015
http://dx.doi.org/10.3109/13668250.2015.1113238

ABSTRACT
Background

In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group – Early Detection Screen for Dementia (NTG-EDSD).

Method
Some 221 paid carers of ageing persons with ID were asked to use the NTG-EDSD and report back on its utility and on 4 feasibility dimensions, and to provide detailed feedback on aspects deemed critical or missing.

Results
All feasibility dimensions were rated good to very good, and 80% of respondents found the NTG-EDSD useful or very useful for the early detection of dementia. This highlights a high acceptability of this instrument by the main target group. Conclusions The positive feasibility evaluation of the NTG-EDSD indicates the usability and adequacy of this instrument for application of early detection of dementia in persons with ID.

Download Read More...

Ageing-related experiences of adults with learning disability resident in rural areas: one Australian perspective

Stuart Wark, Miranda Canon-Vanry, Peta Ryan, Rafat Hussain, Marie Knox, Meaghan Edwards, Marie Parmenter, Trevor Parmenter, Matthew Janicki, andChez Leggatt-Cook

British Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities
Volume 43, Issue 4, Pages 293–301
December 2015

Summary
  • This paper is about older people with learning disabilities who live in the country in Australia.
  • We talked to both individuals and their carers to find out what things helped them they got older, and what things made it harder.
  • These people said that they were well supported by the local community and particularly their doctors.
  • However, many people in this project also reported problems about living in the country such as limited choices and being forced to make decisions they did not like.

Abstract

Background:
Access to support services in rural areas is known to be problematic both in Australia, and in other countries around the world, but the majority of research on the population of people ageing with learning disability has so far focussed on metropolitan residents. The authors report about select aspects of the lived experience of older adults with learning disability resident in rural locations in two states of Australia.

Materials and Methods:
This pilot project examined data drawn from 34 semi-structured interviews conducted with 17 older adults and 17 carers. Responses were analysed for thematic areas.

Results: It was observed that the capacity of certain rural areas to support meaningful choice-making was limited due to constraints of access to key services, including community-based aged care, generic and specialist health services, and both supported disability and aged-care residential options. Responses indicated that those living in both small- and medium-sized congregate care settings (such as group homes and residential aged-care facilities) had more limited choices and only partial (if any) control over their living situation.

Conclusion: An understanding of the needs of older adults with learning disability resident in rural areas is important to ensure that both aged-care and disability support structures are built on individuals' needs.

Download Read More...

Life course health and healthcare utilization among adults with spina bifida

Liptak GS, Robinson LM, Davidson PW, Dziorny A, Lavalley R, Flaherty MG, Dosa NP

Developmental Medicine & Child Neurology 2015 Nov 2

Abstract
AIM:
To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.

METHOD: This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).

RESULTS: Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).

INTERPRETATION: Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.

doi: 10.1111/dmcn.12952
Read More...

Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities

Heller, T., Gibbons, H.M., & Fisher, D. (2015). Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities. Intellectual and Developmental Disabilities, 53(5), 329–345.

Abstract

This scoping review addressed the following questions: (a) What types of caregiver interventions are being done in both aging and developmental disability research? (b) How are these interventions similar and different? (c) What kinds of outcomes do these interventions have? (d) What innovative approaches are these interventions using? and (e) What can each field (developmental disabilities and gerontology) learn from the other based on this review? The disability review spanned 20 years (1992–2012), resulting in 14 studies; the aging review spanned 5 years (2008– 2012), resulting in 55 studies. Data from the final selected studies were then extracted and compared on research design, type of intervention (governmental programs, small-group psychosocial, and other), and outcomes. Generally, in both fields, family-support interventions benefited participants’ well-being and improved service access and satisfaction. Increased partnership between the fields of aging and developmental disabilities is critical to future scholarship in caregiving for both populations.

Read More...

Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation


Fortuna, R.J., Robinson, L., Smith, T.H., Meccarello, J., Bullen, B., Nobis, K., Davidson, P.W.
J Gen Intern Med. 2015 Sep 11.
http://link.springer.com/article/10.1007%2Fs11606-015-3509-x

Abstract

BACKGROUND:
Children and adolescents with autism spectrum disorder (ASD) have many well-known health concerns, yet health conditions in adults with ASD remain poorly defined.

OBJECTIVE: To examine health conditions and functional status in adults with ASD and identify factors associated with health and functional status across age cohorts.

DESIGN AND SUBJECTS: We collected cross-sectional data from 255 adult subjects aged 18 to 71 years with ASD using the Rochester Health Status Survey IV (RHSS-IV), a 58-item validated survey instrument. We used the National Health and Nutritional Examination Survey and National Health Interview Survey to provide comparative prevalence rates in the general population.

RESULTS: Compared to the general population, young adults aged 18-29 with ASD had a substantially higher prevalence of seizure disorder (11.2 % vs. 1.4 %; p = 0.002), depression (16.4 % vs. 6.4 %; p = 0.007), hypertension (12.9 % vs. 6.3 %; p = 0.05), and allergies (39.7 % vs. 8.4 %; p < 0.001). In contrast, young adults with ASD had considerably lower rates of sexually transmitted illness (STI) (0.9 % vs. 4.3 %; p = 0.03), tobacco use (5.2 % vs. 31.9 %; p < 0.001), and alcohol misuse (0.9 % vs. 11.9 %; p < 0.001). Adults 40 and over with ASD also had higher rates of seizure disorder (29.2 % vs. 1.7 %; p < 0.001), lower tobacco use (2.8 % vs. 24.5 %; p < 0.001), and lower alcohol misuse (1.4 % vs. 18.2 %; p < 0.001) compared to the general population. Amongst the 55 % of participants with a documented IQ score, 91 % had an intellectual disability (IQ < 70). Within the cohort aged 40 years old and older, only 54.2 % were independent with eating, 43.0 % independent with dressing, and 43.1 % independent with bathing. Lower IQ and depression were associated with lower functional status.

CONCLUSIONS: Adults with ASD have a high prevalence of seizure disorders and depression, but low rates of STIs, tobacco use, and alcohol misuse. Within our cohort, the majority of older adults with ASD required some assistance with activities of daily living.

Impact of Adulthood Stage and Social-Environmental Context on Body Mass Index and Physical Activity of Individuals With Intellectual Disability

Kelly Hsieh, Tamar Heller, Julie Bershadsky, and Sarah Taub
Intellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113

Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle (40–59 years), and older (60 years and older) on Body Mass Index (BMI) and physical activity (PA); and (2) the relationship between social-environmental context (i.e., residence type, everyday choices, and community participation) and BMI and PA, with adjustment for individual characteristics of the adults with ID. Findings highlight the need to pay more attention to obesity by providing health education and emphasizing healthy choices. Results also suggest the importance of community participation as a way of promoting more physical activity.

Read More...

Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities

Corina R. Ronneberg, Lisa Peters-Beumer, Beth Marks, and Alan Factor

Abstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined.

http://ome.sagepub.com/content/70/4.toc Read More...

Use of promotoras de salud in interventions with Latino families of children with IDD

Magaña, S., Lopez, K., Paradiso de Sayu, R., Miranda, E. (2014). Use of promotoras de salud in interventions with Latino families of children with IDD. In R. Hodapp (Ed.) International Review of Research in Developmental Disabilities, 47, IRRDD, UK: Academic Press, 2014, pp. 39-75.
Read More...

Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities

Magaña, S., Li, H., Miranda, E., & Paradiso, R. (2014) Improving health behaviors of Latina mothers of youths and adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research. doi: 10.1111/jir.12139

Read More...

Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging

Heller, T., Fisher, D., Marks, B., & Hsieh, K. (2014) Interventions to promote health: crossing networks of intellectual and developmental disabilities and aging. Disability and Health Journal, 7, S24-S32.

http://www.sciencedirect.com/science/article/pii/S193665741300109X
Read More...

The Political Arithmetic of Disability and the American Family: A Demographic Perspective

Fujiura, G. (2014) The Political Arithmetic of Disability and the American Family: A Demographic Perspective. Family Relations Interdisciplinary Journal of Applied Family Studies, 63(1), pp. 7-19.

http://onlinelibrary.wiley.com/doi/10.1111/fare.12051/abstract
Read More...

Reciprocity and Social Capital in Sibling Relationships of People With Disabilities

Kramer, J., Hall, Allison, & Heller, T. (2013) Reciprocity and Social Capital in Sibling Relationships of People With Disabilities. Intellectual and Developmental Disabilities, (51)6, 482-495. doi: http://dx.doi.org/10.1352/1934-9556-51.6.482

http://aaiddjournals.org/doi/abs/10.1352/1934-9556-51.6.482

Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities

Moran, J.A., Rafii, M.S., Keller, S.M., Singh, B.K., & Janicki, M.P. (2013). Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities. In press.

http://www.ncbi.nlm.nih.gov/pubmed/23849993

Read More...

Advancing a Research Agenda for Bridging Aging and Disability

Advancing a research agenda for bridging aging and disability (2012). Salvador-Carulla, L., Putnam, M., & Heller, T. International Journal Of Integrated Care, 12(8).
http://www.ijic.org/index.php/ijic/article/view/1085/1921
Read More...

International Initiatives on Bridging Knowledge, Policy and Practice

International initiatives on bridging knowledge, policy and practice, (2012). Leonardi, M., Bickenbach, J., & LeRoy, B. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1084/1919
Read More...

Bringing Stakeholders Together Across Aging and Disability: GOWD Conference Series

Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917
Read More...

Key Focal Areas for Bridging the Fields of Aging and Disability: Findings From the Growing Older With a Disability Conference

Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915
Read More...

The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability

The Toronto declaration on bridging knowledge, policy and practice in aging and disability, (2012). Bickenbach, J., Bigby, C., Salvador-Carulla, L., Heller, T., Leonardi, M., LeRoy, B., Mendez, J., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1086/1923

Read More...

Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families

Self-directed support: Impact of hiring practices on adults with intellectual and developmental disabilities and families, (2012). Heller, T., Arnold, C.K., van Heumen, L., McBride, E.J., & Factor, A. American Journal on Intellectual and Developmental Disabilities, 117, 464-477.
http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464 Read More...

Prevalence of Falls and Risk Factors in Adults with Intellectual Disability

Prevalence of falls and risk factors in adults with Intellectual Disability, (2012). Hsieh, K., Rimmer, J., & Heller, T. American Journal on Intellectual and Developmental Disabilities, 117, 442-454. Read More...

Self-Reported Health of People with Intellectual Disability

Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369. Read More...

Systematic Reviews for Informing Rehabilitation Practice: An Introduction

Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)
Archives of Physical Medicine and Rehabilitation, (93), 912-918. Read More...

Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities?

Physical Activity and Nutrition Health Promotion Interventions: What is Working for People with Disabilities? (February 2011). Heller, T., McCubbin, J.A., Drum, D. & Peterson, J. Intellectual and Developmental Disabilities, 49 (1), 26-36. Read More...

Self-Determination Across the Life Span: Issues and Gaps

Self-Determination Across the Life Span: Issues and Gaps (2011). Heller, T., Schindler, A., Palmer, S.B., Wehmeyer, M.L., Parent, W., Jenson, R., Abery, B.H., Geringer, W., Bacon, A. & O’Hara, D.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 31-45. Read More...

Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities

Introduction to the Special Issue on Scaling Efforts to Promote Self-Determination of People with Developmental Disabilities (2011). Calkins, C., Wehmeyer, M.L., Bacon, A., Heller, T. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 2-5. Read More...

Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities

Lessons Learned in Scaling Up Effective Practices: Implications for Promoting Self-Determination Within Developmental Disabilities (2011). Bacon, A., Walker, H.M., Schwartz, A.A., O’Hara, D.M., Calkins, C. & Wehmeyer, M.L. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19(1), 46-60.

Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination

Personal Self-Determination and Moderating Variables That Impact Efforts to Promote Self-Determination (2011). Wehmeyer, M.L., Abery, B.H., Dalun, Z., Ward, K., Willis, D., Amin-Hossain,A., Balcazar, F., Ball, A., Bacon, A., Calkins, C., Heller, T., Goode, T., Dias, R., Jesien, G., McVeigh, T., Nygren, M., Palmer, S.B. & Walker, H.M. In Exceptionality: A Special Education Journal – Special Issue on Self-Determination, 19 (1), 19-30.

Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action

Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action. Kramer, J.M., Kramer, J.C., Garcia-Iriarte, E., & Hammel, J. (2011) Journal of Applied Research in Intellectual Disabilities, 24, 263-173.
http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00602.x/full Read More...

Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being

Latina mothers caring for a son or daughter with autism or schizophrenia: Similarities, differences and the relationship between co-residency and maternal well-being. Magaña S & Ghosh, S. (2010). Journal of Family and Social Work, 13, 227-250.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2903044/ Read More...

Measurement of Participation: Intersecting Person, Task, and Environment

Measurement of Participation: Intersecting Person, Task, and Environment. Mallinson, T., & Hammel, J. (2010). Archives of Physical Medicine and Rehabilitation, 91,100-107.
http://www.sciencedirect.com/science/article/pii/S0003999310002844
Read More...

Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies

Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies (2010). Haveman, M., Heller, T., Lee, L., Maaskant, S.S. & Strydom, A. In Journal of Policy and Practice in Intellectual Disabilities: Special Issue on Aging, 59-69.

Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities

Health Trends From an International Sample of Older Adults with Intellectual and Developmental Disabilities (2010). Robinson, L. M., Davidson, P. W., Henderson, C. M., Janicki, M. P., Merrick, J., Morad, M., Wang, K. Y., Hsieh, K., Heller, T., Bishop, K. M. & Wexler, O. International Journal on Disability and Human Development, 9 (4), 329–338

Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes

Evaluation of Community-Based Health Promotion Programs for Special Olympics Athletes (2010). Marks, B., Sisirak, J., Heller, T., & Wagner, M. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 119-129.

Aging Families and the Demographics of Family Financial Support of Adults with Disabilities

Aging Families and the Demographics of Family Financial Support of Adults with Disabilities (2010).Fujiura, G.T. Journal of Disability Policy Studies, 20(4), 241-250. Read More...

Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning

Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning (2010). Heller,T., Keiling Arnold, C. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16-25. Read More...

New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities

New Voices in Women's Health: Perceptions of Women with Intellectual and Developmental Disabilities (2009). Brown, A.A. & Gill, C.J. Intellectual and Developmental Disabilities, 47 (5), 337-347.

Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities

Health Status and Activities of Daily Living and Walking in Older People with Intellectual Disabilities (2009). Henderson, M.C., Acquilano, J.P., Meccarello, J.C., Davidson, P.W., & Janicki, J. Journal of Policy and Practice in Intellectual Disabilities, 6 (4), 282-286.

Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning

Involvement of Adult Siblings of Persons with Developmental Disabilities in Future Planning (2009). Heller, T. & Kramer, J. Intellectual and Developmental Disabilities, 47, 208-219.

Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities

Health Profile of Aging Family Caregivers Supporting Adults With Intellectual and Developmental Disabilities (2009). Yamaki, K., Hsieh, K & Heller, T. Intellectual and Developmental Disabilities, 47(6), 425-435.

Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes

Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes (2009). Hsieh, K., Heller, T. & Freels, S. Intellectual and Developmental Disabilities. 47(6). 447-465.

Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities

Consumer-Directed Goal Planning in the Delivery of Assistive Technology Services for People Who Are Aging with Intellectual Disabilities (2009). Mirza, M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities. 22(1). 445-457.

Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study

Health Perceptions of Latinos with Intellectual Disabilities: The Results of a Pilot Study (2008). Jurkowski, J., Rivera, Y. & Hammel, J. Health Promotion Practice.

What Does Participation Mean? An Insider Perspective From People With Disabilities

What Does Participation Mean? An Insider Perspective From People With Disabilities (2008). Hammel, J., Magasi, S., Heinemann, A., Whiteneck, G., Bogner, J. & Rodriguez, E. Disability and Rehabilitation, 30 (19) 1445-1460

Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy

Who Did What? A Participatory Action Research Project to Increase Group Capacity for Advocacy (2008). Garcia-Iriarte, E., Kramer, J.C., Kramer, J.M. & Hammel, J. Journal of Applied Research in Intellectual Disabilities, 22, 10-22.

Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development

Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development (2008). Jurkowski, J. Intellectual and Developmental Disabilities, 46 (1)1-11.

Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium

Report of the State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living Symposium (2008). Heller, T. Disability and Health Journal. 1, 127-130

Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging

Neurodevelopmental Conditions and Aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging (2008). Janicki, M., Henderson, M.C. & Rubin, L.I., Disability and Health Journal. 1, 116-124

Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference

Health Services, Health Promotion, and Health Literacy: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Marks, B., Sisirak, J. & Hsieh, K. Disability and Health Journal. 1, 136-142.
http://www.sciencedirect.com/science/article/pii/S1936657408000514

Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference

Environmental Barriers and Supports to the Health, Function, and Participation of People with Developmental and Intellectual Disabilities: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Hammel, J., Jones, R., Smith, J., Sanford, J., Bodine, C. & Johnson, M. Disability and Health Journal. 1, 143-149.

Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey

Ascertaining Health-Related Information on Adults With Intellectual Disabilities Development and Field Testing of the Rochester Health Status Survey (2008). Davidson, P., Henderson, M.C., Janicki, M., Robinson, L.M., Bishop, K. M., Wells, A., Garroway, J. & Wexler, O. Journal of Policy and Practice in Intellectual Disabilities. 5 (1), 12-23.

Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability

Overweight Status, Obesity, and Risk Factors for Coronary Heart Disease in Adults with Intellectual Disability (2008). Henderson, C. M., Robinson, L. M., Davidson, P. W., Haveman, M., Janicki, M. P. & Albertini, G. Journal of Policy and Practice in Intellectual Disabilities, 5 (3), 174-177.

Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities

Health and Access to Health Care of Female Family Caregivers of Adults with Developmental Disabilities (2008). Caldwell, J. Journal of Disability Policy Studies.19(2). 68-79.

Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities

Health Behaviors, Service Utilization, and Access to Care Among Older Mothers of Color Who Have Children with Developmental Disabilities (2008). Magaña, S., Smith, M.J. American Journal of Intellectual and Developmental Disabilities. 46(4). 267-280.
http://aaiddjournals.org/doi/pdf/10.1352/1934-9556(2008)46%5B267%3AHBSUAA%5D2.0.CO%3B2 Read More...

Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference

Family Support and Intergenerational Caregiving: Report of the State of the Science in Aging with Developmental Disabilities Conference (2008). Heller, T., Factor, A. Disability and Health Journal. 1, 131-135.

Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being

Adolescents and Adults With Autism With and Without Co-morbid Psychiatric Disorders: Differences in Maternal Well-Being (2008). Kring, S.R., Greenberg, J.S. and Seltzer, M.M. Journal of Mental Health Research in Intellectual Disabilities 1(2). 53-74

Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model

Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma in the stress-process model. Magaña, S. Ramirez, J., Hernandez, M., & Cortez, R. (2007). Psychiatric Services. 58, 378–384.
http://ps.psychiatryonline.org/data/Journals/PSS/3797/07ps378.pdf Read More...

Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development

Photovoice With Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J., Paul, A. Health Promotion Practice, 8(4) 358-365.

Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development

Photovoice with Vulnerable Populations: Addressing Disparities in Health Promotion Among People With Intellectual Disabilities Research and Program Development (2007). Jurkowski, J. & Paul, A. Health Promotion Practice, 8(4) 358-365.

Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions

Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions (2007). Wang, K. Y., Hsieh, K., Heller, T., Davidson, P. W. and Janicki, M. P. Journal of Intellectual Disability Research, 51(3), 173-183.

Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families

Longitudinal Outcomes of a Consumer-Directed Program Supporting Adults with Developmental Disabilities and Their Families (2007). Caldwell, J., Heller, T. American Journal of Intellectual and Developmental Disabilities. 45(3). 161-173

Cultural Competence Revisited: Nursing Students with Disabilities

Cultural Competence Revisited: Nursing Students with Disabilities (2007). Marks, B. Journal of Nursing Education, 46(2)

Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program

Experiences of Families With Relatives With Intellectual and Developmental Disabilities in a Consumer-Directed Support Program (2007). Caldwell, J. Disability & Society, 22 (6), 549-562.

Policies That Shape the Intellectual Disabilities Service System

Policies That Shape the Intellectual Disabilities Service System (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, iii- iv.

Emerging Policy Challenges in Intellectual Disabilities

Emerging Policy Challenges in Intellectual Disabilities (2007). Fujiura, G. & Parish, S. Mental Retardation and Developmental Disabilities Research Reviews, 13, 188-194.

Aging Family Caregivers: Policies and Practices

Aging Family Caregivers: Policies and Practices (2007). Heller, T., Caldwell, J. & Factor, A. Mental Retardation and Developmental Disabilities Research Reviews, 13, 136-142.

The Demography of Intellectual Disabilities: What the Beans Tell Us

The Demography of Intellectual Disabilities: What the Beans Tell Us (2007). Fujiura, G.T. Insight, 1 (4), 12-20.

Hispanic caregivers of adults with mental retardation: The importance of family functioning

Hispanic caregivers of adults with mental retardation: The importance of family functioning. Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). American Journal on Mental Retardation, 111, 250-262.
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%282006%29111%5B250%3AHCOAWM%5D2.0.CO%3B2 Read More...

Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status

Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards co-residence status. Magaña, S., & Smith, M.J. (2006). American Journal of Orthopsychiatry, 76(3), 346-357.
http://onlinelibrary.wiley.com/doi/10.1037/0002-9432.76.3.346/abstract Read More...

Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach

Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach (2006) Hammel, J., Jones, R., Gossett, A. & Morgan, E. Topics in Stroke Rehabilitation. 13(3), 43-58.

Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome

Evaluating an Interpersonal Model of Depression Among Adults with Down Syndrome (2006) Ailey. S.H., A.M., Heller, T. & Smith, E.V. Research and Theory for Nursing Practice. 20, 229-246.

Mother-Child Relationship Quality Among Adolescents and Adults with Autism

Mother-Child Relationship Quality Among Adolescents and Adults with Autism (2006). Orsmond, G.I., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. American Journal on Mental Retardation, 111(2), 121-137.

Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities

Health Outcomes of Midlife and Older Latina and Black American Mothers of Children With Developmental Disabilities (2006). MagaÐa, S. & Smith, M. J. Mental Retardation, 44(3), 224-234.
http://www.scopus.com/record/display.url?eid=2-s2.0-33746171747&origin=inward&txGid=9FFF4580C525FA46837496098E5A3169.y7ESLndDIsN8cE7qwvy6w%3a1

Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism

Bidirectional Effects of Expressed Emotion and Behavior Problems and Symptoms in Adolescents and Adults With Autism (2006). Greenberg, J.S., Seltzer, M.M., & Hong, J. American Journal on Mental Retardation, 111(4), 229-249.

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning

Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning (2006). Heller, T., Caldwell, J. Mental Retardation. 44(3). 189-202.

Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families

Consumer-Directed Supports: Economic, Health, and Social Outcomes for Families (2006) Caldwell, J. Mental Retardation. 44(6). 405-417.

Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being

Depressive Symptoms in Adults with Mild to Moderate Intellectual Disability and Their Relation to Maternal Well Being (2006). Esbensen, J., Anna, Seltzer-Mailick, Marsha, Greenberg, J. Journal of Policy and Practice in Intellectual Disabilities 3(4). 229.

Lessons Drawn From the Critique of the Hissom Closure Evaluation

Lessons Drawn From the Critique of the Hissom Closure Evaluation (2006). Fujiura, G.T. Mental Retardation, 44, 372-375

Life Course Studies of Siblings of Individuals with Developmental Disabilities

Life Course Studies of Siblings of Individuals with Developmental Disabilities (2005). Seltzer, M.M., Greenburg, J.S., Orsmond, G.I., & Lounds, J. Mental Retardation, 43(5), 354-359.

Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease

Group Home Care for Adults with Intellectual Disabilities and Alzheimer’s Disease (2005). Janicki, M. P., Dalton, A. J., McCallion, P., Baxley, D. D. & Zendell, A. Dementia, 4(3), 361-385.

Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation

Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation (2005). Esbensen, A. J., Seltzer, M. M., Greenberg, J. S. & Benson, B. A. American Journal of Mental Retardation, 110, 469-481.

Promoting Physical Activity Among Older People

Promoting Physical Activity Among Older People (2005). Hughes, S.L., Prohaska, T.R., Rimmer, J.H. & Heller, T. Generations, 29(2), 54-59.

Body Weight Status Among Adults with Intellectual Disability in the Community

Body Weight Status Among Adults with Intellectual Disability in the Community (2005). Yamaki, K. Mental Retardation, 43(1), 1-10.

Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status

Adults With Autism Living at Home or in Non-Family Settings: Positive and Negative Aspects of Residential Status (2005). Krauss, M.W., Seltzer, M.M.& Jacobson, H.T. Journal of Intellectual Disability Research. 49(2).111-124.

Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement

Brief Research Report: Impact of a Consumer-Directed Family Support Program on Reduced Out-of-Home Institutional Placement (2005). Heller, T. & Caldwell, J. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 63-65.

Life Course Impacts of Mild Intellectual Deficits

Life Course Impacts of Mild Intellectual Deficits (2005). Seltzer, M.M., Floyd, F., Greenberg, J.S., et al. American Journal on Mental Retardation, 110(6), 451-468.

Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States

Determinants of State Utilization of Public Institutions for Persons with Intellectual Disabilities in the United States (2005). Rizzolo, M.C., Heller, T. & Braddock, D. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 60-62.

American Journal on Mental Retardation: Special Issue on Family and Service System Supports

American Journal on Mental Retardation: Special Issue on Family and Service System Supports (September 2004). Heller, T. (Ed.). Volume 109, Issue 5.

Guest Editor: Tamar Heller, Ph.D., Director of the RRTC on Aging and Developmental Disabilities. This issue of the American Journal on Mental Retardation addresses the effects of aging on families caring for persons with intellectual disabilities in Australia, the United States, Israel, and Ireland and discusses the impact on their health and social service systems.

Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome

Nutritional Status and Risk Factors for Chronic Disease in Urban-Dwelling Adults With Down Syndrome (2004). Braunschweig, C.L., Gomez, S., Sheean, P., Tomey, K.M., Rimmer, J.H., Heller, T. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.186-193.

Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome

Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program on Adults With Down Syndrome (2004). Heller, T., Hsieh, K., Rimmer, J.H. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.175-185

Improvements in Physical Fitness in Adults with Down Syndrome

Improvements in Physical Fitness in Adults with Down Syndrome (2004). Rimmer, J.H., Heller, T., Wang, E., Valerio, I. In American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator, pp.165-174

American Journal on Mental Retardation

American Journal on Mental Retardation (March 2004), Special Issue on Aging, 109(2). Guest Editor: Marsha M. Seltzer, Ph.D. RRTCADD Principal Investigator

Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities

Defining a National Health Research Agenda for Older Adults With Intellectual Disabilities (2004). Davidson, P.W., Heller, T. & Hyer, K. In Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1). pp. 2-9.

Journal of Policy and Practice in Intellectual Disabilities

Journal of Policy and Practice in Intellectual Disabilities (March 2004). Janicki, M. (Ed.). 1(1).

Matthew Janicki, Ph.D., Editor-in-chief: Associate Director for Technical Assistance of the RRTC on Aging and Developmental Disabilities
The Journal features content related to policy development, service design, working methods and treatment procedures, financial, administrative and legal frameworks. To subscribe, contact Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

Defining a national health research agenda for older adults with intellectual disabilities

Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.

African American families who care for adults with developmental disabilities or mental illness: A call for research

African American families who care for adults with developmental disabilities or mental illness: A call for research. Magaña, S. (2004). African American Perspectives, 10, 129-139.
http://www.rcgd.isr.umich.edu/prba/perspectives/springsummer2004/magnana.pdf Read More...

The health and well-being of Black mothers who care for their adult children with schizophrenia

The health and well-being of Black mothers who care for their adult children with schizophrenia. Magaña, S., Greenberg, J., & Seltzer, M. (2004). Psychiatric Services, 55, 711-713.
http://ps.psychiatryonline.org/article.aspx?articleid=88730 Read More...

Genetically-Linked Syndromes in Intellectual Disabilities

Genetically-Linked Syndromes in Intellectual Disabilities (2004). Henderson, C.M. Journal of Policy and Practice in Intellectual Disabilities, Volume 1, Issue 1, pp.31-41.

Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays

Controlled Evaluation of Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays (2004). McCallion, P., Janicki, P.M., & Kolomer, S.R. American Journal on Mental Retardation, 109(5), 352-361.

Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation

Cultural Context of Caregiving: Differences in Depression Between Puerto Rican and Non-Latina White Mothers of Adults With Mental Retardation (2004). Krauss, M.K., Magana, S., & Seltzer, M.M. Mental Retardation, 42(1), 1-11.
http://www.aaiddjournals.org/doi/abs/10.1352/0047-6765(2004)42%3C1:CCOCDI%3E2.0.CO;2

Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization

Older Adults With Intellectual Disability in Residential Care Centers in Israel: Health Status and Service Utilization (2004). Merrick, J., Davidson, P.W., Morad, M., Janicki, M.P., Wexler, O. & Henderson, C.M. In American Journal on Mental Retardation, 109(5) pp. 413-420.

Continuum of intellectual disability: Demographic evidence for the "forgotten generation"

Continuum of intellectual disability: Demographic evidence for the "forgotten generation" (2003). Fujiura, G.T. Mental Retardation, 41 (6), 420-429.

Deinstitutionalization movement across states

Deinstitutionalization movement across states (I & II) (2003). Vol. 67, 150-154 & 233-236.

Research in developmental disabilities services in the United States

Research in developmental disabilities services in the United States (I & II) (2003). Vol. 67 310-313 & 390-393.

Policy implications for services to older persons with dementia in Japan

Policy implications for services to older persons with dementia in Japan (I & II) (2003). Vol. 67. Takeda, N., Yamaki, K., Janicki, M.P., Heller, T., Suemitsu, S., & Egusa, Y. 465-469 & 556-559. Available in Japanese from the Japanese Journal of Public Health, (2003).

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age (2003). Hawkins, B.A., Eklund, S.J., James, D.R. & Foose, A.K. Mental Retardation, 41(1), 7-28.

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities (2003). Marks, B.A., & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 205-228.
http://www.sciencedirect.com/science/article/pii/S002964650200049X Read More...

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities (2003). Ailey, S.H. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 313-329.

Management of respite and personal assistance services in a consumer-directed family support programme

Management of respite and personal assistance services in a consumer-directed family support programme (2003). Caldwell, J., & Heller, T. Journal of Intellectual Disability Research, 47(4/5), 352-366.

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities? (2003). Hammel, J. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 331-349.

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span (2003). Marks, B.A., Brown, A., Hahn, J.E. & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 373-393.
http://www.sciencedirect.com/science/article/pii/S0029646502000725 Read More...

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities (2003). Ailey, S.A., Marks, B.A., Crisp, C. & Hahn, J.E. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 229-252

Employment and income status of adults with developmental disabilities living in the community

Employment and income status of adults with developmental disabilities living in the community (2002). Yamaki, K., & Fujiura, G. Mental Retardation , 40(2), 132-141.

Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery

Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery (2002). Rimmer, J.H. Disability Management Health Outcomes, 10(6), 337-343.

Residential settings and outcomes for individuals with intellectual disabilities

Residential settings and outcomes for individuals with intellectual disabilities (2002). Heller, T. Current Opinion in Psychiatry, 15, 503-508.

An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities

An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities (2002). Heller, T., Miller, A. B., Heish , K. Mental Retardation, 40, 366-378.

A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan

A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan (I & II) (2002). Vol. 66, 772-776 & 869-872.

Historical overview of developmental disabilities services in the United States

Historical overview of developmental disabilities services in the United States (I & II) (2002). Vol. 66, 931-933 & Vol. 67, 68-72.

Determinants of exercise in adults with cerebral palsy

Determinants of exercise in adults with cerebral palsy (2002). Heller, T., Ying, G., Rimmer, J.H., & Marks, B.A. Public Health Nursing, 19(3), 223-231.

Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome

Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome (2002). Draheim, C., McCubbin, J.A., & Williams, D.P. American Journal on Mental Retardation, 107(3), 201-211.

Women with developmental disabilities: Health and aging

Women with developmental disabilities: Health and aging (2002). Brown, A.A., & Gill, C.J. Current Women's Health Reports, 2, 219-225.

Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation

Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation (2002). Draheim, C.C., Williams, D.P., & McCubbin, J.A. American Journal on Mental Retardation, 107(5), 361-375.

Health characteristics and health services utilization in older adults with intellectual disability living in community residences

Health characteristics and health services utilization in older adults with intellectual disability living in community residences (2002). Janicki, M.P., Davidson, P.W., Henderson, C.M., McCallion, P., Taets, J.D., Force, L.T., Sulkes, S.B., Frangenberg, E., & Ladrigan, P.M. Journal of Intellectual Disability Research, 46(4), 287-298.

Evaluation of two self-report depression measures for adults with down syndrome

Evaluation of two self-report depression measures for adults with down syndrome (2002). Ailey, S.H., Marks, B., & Heller, T. The NADD BULLETIN, 5(4), 71-75.

Dementia-related care decision-making in group homes for persons with intellectual disabilities

Dementia-related care decision-making in group homes for persons with intellectual disabilities (2002). Janicki, M.P., McCallion, P., & Dalton, A.J. Journal of Gerontological Social Work, 38(1/2), 179-195.

Barriers and supports for exercise participation among adults with down syndrome

Barriers and supports for exercise participation among adults with down syndrome (2002). Heller, T., Hsieh, K., & Rimmer, J. Journal of Gerontological Social Work, 38(1/2), 161-178.

Health, Age, and Gender: How do women with intellectual disabilities fare?

Health, Age, and Gender: How do women with intellectual disabilities fare? (2002). Anderson, D.J. Journal of Gerontological Social Work, 38(1/2), 137-160.

Edinburgh principles with accompanying guidelines and recommendations

Edinburgh principles with accompanying guidelines and recommendations (2002). Wilkinson, H., & Janicki, M.P. Journal of Intellectual Disability Research, 46(3), 279-284.

Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation

Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation. Magaña, S., Seltzer, M., Krauss, M., Rubert, M., & Szapocznik, J. (2002). Journal of Human Behavior in the Social Environment, 5, 31-55.
http://www.tandfonline.com/doi/abs/10.1300/J137v05n03_03#preview Read More...

African-American grandmother carers of children with disabilities: Predictors of depressive symptoms

African-American grandmother carers of children with disabilities: Predictors of depressive symptoms (2002). Kolomer, S.R., McCallion, P., and Janicki, M.P. Journal of Intellectual Disability Research, 37(3-4), 45-64.

Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families

Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families (2002). Magana, S., Seltzer, M.M., and Krauss, M.W. Journal of Gerontological Social Work , 37(3-4), 65-86.
http://www.waisman.wisc.edu/family/pubs/CulturalPubs/2002_service%20utiliz.pdf

Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities

Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities (2002). Hammel, J., Lai, J, & Heller, T. Disability and Rehabilitation, 24(1-3), 93-105.

Reasons For Device Use Among Caregivers of the Frail Elderly

Reasons For Device Use Among Caregivers of the Frail Elderly (2002). Kane, C., Mann, W.C., Tomita, M. & Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, 20(1).

Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers

Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers (2002). Hammel, J., Finlayson, M., Kielhofner, G., Helfrich, C. & Peterson, E. Occupational Therapy & Health Care.

Leadership by People with Disabilities in Self-Determination Systems Change

Leadership by People with Disabilities in Self-Determination Systems Change (2002). Powers, L.E., Ward, N., Ferris, L., Nelis, T., Ward, M., Wieck, C. & Heller, T. Journal of Disability Policy Studies, 13(2), 125-133.

Aging and developmental disability: Special issue on current research, programming, and practice implications

Aging and developmental disability: Special issue on current research, programming, and practice implications (2001). Hammel, J., & Nochajski, S. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 1-4.

Risk factors for injuries and falls among adults with developmental disabilities

Risk factors for injuries and falls among adults with developmental disabilities (2001). Hsieh, K., Heller, T., & Miller, A.B. Journal of Intellectual Disability Research, 45, 76-82.

Effect of menopause on cognitive performance in women with Down syndrome

Effect of menopause on cognitive performance in women with Down syndrome (2001). Patel, B.N., Seltzer, G.B., Wu, H.S., & Schupf, N. Neuroreport, 12(12), 2659-62.

A Prospective Study of Menopause in Women with Down Syndrome

A Prospective Study of Menopause in Women with Down Syndrome (2001). Seltzer, G.B., Schupf, N. & Wu, H.S. Journal of Intellectual Disability Research, 45, 1-7. Read More...

Health status of mothers of adults with intellectual disability

Health status of mothers of adults with intellectual disability (2001). Chen, S.C., Ryan-Henry, S., Heller, T., & Chen, E.H. Journal of Intellectual Disability Research, 45(5), 439-449.

Families of adolescents and adults with autism: Uncharted territory

Families of adolescents and adults with autism: Uncharted territory (2001). Seltzer, M.M., Krauss, M.W., Orsmond, G.I., & Vestal, C. International Review of Research in Mental Retardation, 23, 267-294.

Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation

Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation (2001). Hong, J., Seltzer, M.M., & Krauss, M.W. Family Relations, 50, 154-164.

Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation

Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation (2001). Seltzer, M.M., Krauss, M.W., Hong, J., & Orsmond, G.I. Mental Retardation, 39, 181-194.

Innovative project supports later-life planning for adults and their aging family caregivers

Innovative project supports later-life planning for adults and their aging family caregivers (2001). Heller, T., & Caldwell, J. Maximizing Human Potential, 8(3), 4-5.

Quality of life of adults with mental retardation/ developmental disabilities who live with family

Quality of life of adults with mental retardation/ developmental disabilities who live with family (2001). Seltzer, M.M., and Krauss, M.W. Mental Retardation and Developmental Disabilities Research Review, 7, 105-114.

Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice

Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice (2001). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 37-58.

Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach

Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach (2001). Keys, C.B. & Factor, A.R. Journal of Prevention & Intervention in the Community, 21(2), 91-112.

Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation

Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation (2000). Kunde, K. & Rimmer, J.H. Adapted Physical Activity Quarterly, 17, 413-420.

Disabilities and health limitations

Disabilities and health limitations (2000). Rimmer, J.H. In Group fitness instructor manual. ACE's guide for fitness professionals (226-246). San Diego: American Council on Exercise.

Overview of health issues of older women with intellectual disabilities

Overview of health issues of older women with intellectual disabilities (2000). Gill, C.J., & Brown, A.A. Aging and Developmental Disability: Current Research, Programming, and Practice Implications (Eds. Hammel, J. & Nochajski, S.) Haworth Press, Inc., 23-36.

Prevalence of dementia and impact on intellectual disability services

Prevalence of dementia and impact on intellectual disability services (2000). Janicki, M.P. & Dalton, A.J. Mental Retardation, 38, 277-289.

Grandparent Caregivers II: Service needs and service provision issues

Grandparent Caregivers II: Service needs and service provision issues (2000). McCallion, P., Janicki, M.P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 63-90.

Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care

Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care (2000). Janicki, M.P., McCallion, P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 35-55.

Grandparents as supports to mothers of persons with intellectual disability

Grandparents as supports to mothers of persons with intellectual disability (2000). Heller, T., Hsieh, K., & Rowitz, L. Journal of Gerontological Social Work , 33, 23-34.

Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship

Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship (2000). Orsmond, G. & Seltzer, M.M. American Journal of Mental Retardation, 105(6), 486-508.

Supporting adults with intellectual disabilities and their families: A literature review

Supporting adults with intellectual disabilities and their families: A literature review (2000). Heller, T. Aging and Developmental Disability: Current Research, Programming, and Practice Implications, The Haworth Press, 59-73.

Mental retardation research methods in Latino communities

Mental retardation research methods in Latino communities. Magaña, S. (2000). Mental Retardation, 38, 303-315.
http://www.aaiddjournals.org/doi/pdf/10.1352/0047-6765%282000%29038%3C0303%3AMRRMIL%3E2.0.CO%3B2 Read More...

RRTC collaborates with Chicago Arc on family future planning project

RRTC collaborates with Chicago Arc on family future planning project (2000). Heller, T., Caldwell, J., & DeBrine, E. ADD/Vantage, 11(2), 1,12,13,15.

Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons

Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons (2000). Chen, A., Mann, W.C., Tomita, M., & Nochajski, S. Occupational Therapy Journal of Research, 20(3), 179-199.

Impact of Aging on Persons With Developmental Disabilities

Impact of Aging on Persons With Developmental Disabilities (2000). Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, Vol 18(1), 5-21.

Information Resources on Developmental Disability, Aging and Technology

Information Resources on Developmental Disability, Aging and Technology (2000). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, Vol 18(1), 91-94.

Later-Life Planning: Promoting Knowledge of Options and Choice-Making

Later-Life Planning: Promoting Knowledge of Options and Choice-Making (2000). Heller, T., Miller, A., Hsieh, K. & Sterns, H. Mental Retardation, 38(5), 395-406.

Puerto Rican families caring for an adult with mental retardation: The role of familism

Puerto Rican families caring for an adult with mental retardation: The role of familism. Magaña, S. (1999). American Journal on Mental Retardation, 104, 466-482.
http://www.aaiddjournals.org/doi/pdf/10.1352/0895-8017%281999%29104%3C0466%3APRFCFA%3E2.0.CO%3B2 Read More...