Archive: 2004-1993

Defining a national health research agenda for older adults with intellectual disabilities

Defining a national health research agenda for older adults with intellectual disabilities (2004). Davidson, Philip W., Heller, Tamar, Hyer, Kathryn. pp. 2-9.

DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability

DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. It supplements the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief examines how service use and needs vary by age, gender, and (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD].

Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D

DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

This DD Data Brief describes the experiences with public and private health insurance coverage for people with functional limitations, people with I/DD, and people who do not have I/DD or functional limitations. This Brief also examines the variations in these outcomes by gender and age.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.

Continuum of intellectual disability: Demographic evidence for the "forgotten generation"

Continuum of intellectual disability: Demographic evidence for the "forgotten generation" (2003). Fujiura, G.T. Mental Retardation, 41 (6), 420-429.

Deinstitutionalization movement across states

Deinstitutionalization movement across states (I & II) (2003). Vol. 67, 150-154 & 233-236.

Research in developmental disabilities services in the United States

Research in developmental disabilities services in the United States (I & II) (2003). Vol. 67 310-313 & 390-393.

Policy implications for services to older persons with dementia in Japan

Policy implications for services to older persons with dementia in Japan (I & II) (2003). Vol. 67. Takeda, N., Yamaki, K., Janicki, M.P., Heller, T., Suemitsu, S., & Egusa, Y. 465-469 & 556-559. Available in Japanese from the Japanese Journal of Public Health, (2003).

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age

Adaptive Behavior and Cognitive Function of Adults With Down Syndrome: Modeling Change With Age (2003). Hawkins, B.A., Eklund, S.J., James, D.R. & Foose, A.K. Mental Retardation, 41(1), 7-28.

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities

Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities (2003). Marks, B.A., & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 205-228.

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities

Beyond the disability: Recognizing mental health issues among persons with intellectual and developmental disabilities (2003). Ailey, S.H. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 313-329.

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report

The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final Report (2003). Davidson, P.W., Heller, T., Janicki, M, P., & Hyer, K.

This report identifies the gaps in knowledge about the health of older persons with intellectual and related developmental disabilities. It contains a research agenda for health and mental health outcomes based on the recommendations of the 75 researchers, health professionals, older adults with disabilities, and families who participated in this international conference.

Nursing clinics of North America: Intellectual and developmental disabilities

Nursing clinics of North America: Intellectual and developmental disabilities (2003). Volume 38, No. 2. Hahn, Joan Earle & Marks, Beth A.

This quarterly journal issue reviews new diagnostic and nursing management techniques for individuals with intellectual and related developmental disabilities. Articles address a variety of adult/later life concerns including health promotion, sexuality, the nurse's role in caring for older people, nursing care resources, and support through assistive technologies.

ISSN: 0029-6465 
COST PER UNIT: $51.00
Order directly from W.B. Saunders Company at www.wbsaunders.com or 1-800-654-2452

Mental health, intellectual disabilities and the aging process

Mental health, intellectual disabilities and the aging process (2003). Davidson, P.W., Prasher, V.P., & Janicki, M, P.

Evidence suggests that mental health disorders may occur in up to half of all people with intellectual disability and that these disorders accelerate significantly with age. This book discusses the mental health and behavior needs of adults with intellectual disabilities. It is a major sourcebook on mental health conditions and treatment choices for this population.

ISBN: 1-405-101644 
COST PER UNIT: $44.95
Order directly from Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

Management of respite and personal assistance services in a consumer-directed family support programme

Management of respite and personal assistance services in a consumer-directed family support programme (2003). Caldwell, J., & Heller, T. Journal of Intellectual Disability Research, 47(4/5), 352-366.

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism

Las experiencias compartidas de familias Latinas de adolescentes y adultos con autismo / Shared experiences of Latino families of adolescents and adults with autism (Adolescentes y adultos con autismo un estudio de cuidado familiar proyecto Latino). (2003), Magana, S., Seltzer, M.M. & Krauss, M.W.

This bilingual report presents the challenges and rewards of caregiving expressed by Latino families who were part of a national study of families caring for adolescent and adult sons or daughters with autism. Families share their thoughts about their children living at home and away from home, their perspectives on caregiving, how their lives have changed, and what they have learned from this experience.

Family Handbook on Future Planning

Family Handbook on Future Planning (2003). Davis, Sharon, (Ed.). Produced by The Arc of the United States and the RRTC on Aging with Developmental Disabilities.

This guide helps families take the initial steps to address the future personal, legal, and financial needs of their sons or daughters with intellectual and developmental disabilities. It teaches families how to review and inventory their relative's needs and strengths, determine what the plan should include, and locate qualified professionals and resources to finalize the plan. It is an update of The Arc's 1991 handbook on future planning and the 1989 publication How to Provide for Their Future.

Also available at The Arc website: www.thearc.org
To order bound copies contact Jill Fosse at The Arc: 
fosse@thearc.org, (301) 565-5476

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities?

Technology and the Environment: Supportive Resource or Barrier for People with Developmental Disabilities? (2003). Hammel, J. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 331-349.

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span

Nursing Care Resources for Individuals With Intellectual and Developmental Disabilities Across the Life Span (2003). Marks, B.A., Brown, A., Hahn, J.E. & Heller, T. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 373-393.

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities

Promoting Sexuality Across the Life Span for Individuals with Intellectual and Developmental Disabilities (2003). Ailey, S.A., Marks, B.A., Crisp, C. & Hahn, J.E. The Nursing Clinics of North America: Intellectual and Developmental Disabilities, 38(2), 229-252

Employment and income status of adults with developmental disabilities living in the community

Employment and income status of adults with developmental disabilities living in the community (2002). Yamaki, K., & Fujiura, G. Mental Retardation , 40(2), 132-141.

Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery

Health Promotion for Individuals with Disabilities: The Need for a Transitional Model in Service Delivery (2002). Rimmer, J.H. Disability Management Health Outcomes, 10(6), 337-343.

Residential settings and outcomes for individuals with intellectual disabilities

Residential settings and outcomes for individuals with intellectual disabilities (2002). Heller, T. Current Opinion in Psychiatry, 15, 503-508.

An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities

An eight-year follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities (2002). Heller, T., Miller, A. B., Heish , K. Mental Retardation, 40, 366-378.

A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan

A Junction: Developmental Disabilities Services in the United States and Services to Older Persons With Dementia in Japan (I & II) (2002). Vol. 66, 772-776 & 869-872.

Historical overview of developmental disabilities services in the United States

Historical overview of developmental disabilities services in the United States (I & II) (2002). Vol. 66, 931-933 & Vol. 67, 68-72.

Coordinating systems serving carers of children and adults with developmental disabilities

Coordinating systems serving carers of children and adults with developmental disabilities (2002). Janicki, M.

Aging adults with intellectual and developmental disabilities face many of the same challenges as other aging adults. Physical aging, social isolation, disengagement from work or activities and challenges of retirement are issues that must be faced by aging adults with cognitive disabilities in addition to the possibility of needing additional assistance from carers to determine their future. This report gives an overview of common definitions, care and support issues, and how systems can partner in the delivery of community support networks. Reproduced with permission of the U.S. Administration on Aging and The Lewin Group.

Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities

Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities (2002). Heller, T., Janicki, M, P., Hammel, J., & Factor, A.R.

This report summarizes the research to date and presents recommendations for future research, progressive policies, and innovative intervention to promote healthy aging, support aging adults and their families, and create age-friendly communities. These recommendations coalesce the thinking of the 100 plus international researchers, service providers, families and persons with disabilities who participated in the conference.

Determinants of exercise in adults with cerebral palsy

Determinants of exercise in adults with cerebral palsy (2002). Heller, T., Ying, G., Rimmer, J.H., & Marks, B.A. Public Health Nursing, 19(3), 223-231.

Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome

Differences in cardiovascular disease risk between non-diabetic adults with mental retardation with and without Down syndrome (2002). Draheim, C., McCubbin, J.A., & Williams, D.P. American Journal on Mental Retardation, 107(3), 201-211.

Women with developmental disabilities: Health and aging

Women with developmental disabilities: Health and aging (2002). Brown, A.A., & Gill, C.J. Current Women's Health Reports, 2, 219-225.

Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation

Physical activity, dietary intake, and the insulin resistance syndrome in non-diabetic adults with mental retardation (2002). Draheim, C.C., Williams, D.P., & McCubbin, J.A. American Journal on Mental Retardation, 107(5), 361-375.

Health characteristics and health services utilization in older adults with intellectual disability living in community residences

Health characteristics and health services utilization in older adults with intellectual disability living in community residences (2002). Janicki, M.P., Davidson, P.W., Henderson, C.M., McCallion, P., Taets, J.D., Force, L.T., Sulkes, S.B., Frangenberg, E., & Ladrigan, P.M. Journal of Intellectual Disability Research, 46(4), 287-298.

Evaluation of two self-report depression measures for adults with down syndrome

Evaluation of two self-report depression measures for adults with down syndrome (2002). Ailey, S.H., Marks, B., & Heller, T. The NADD BULLETIN, 5(4), 71-75.

Dementia-related care decision-making in group homes for persons with intellectual disabilities

Dementia-related care decision-making in group homes for persons with intellectual disabilities (2002). Janicki, M.P., McCallion, P., & Dalton, A.J. Journal of Gerontological Social Work, 38(1/2), 179-195.

Barriers and supports for exercise participation among adults with down syndrome

Barriers and supports for exercise participation among adults with down syndrome (2002). Heller, T., Hsieh, K., & Rimmer, J. Journal of Gerontological Social Work, 38(1/2), 161-178.

Health, Age, and Gender: How do women with intellectual disabilities fare?

Health, Age, and Gender: How do women with intellectual disabilities fare? (2002). Anderson, D.J. Journal of Gerontological Social Work, 38(1/2), 137-160.

Edinburgh principles with accompanying guidelines and recommendations

Edinburgh principles with accompanying guidelines and recommendations (2002). Wilkinson, H., & Janicki, M.P. Journal of Intellectual Disability Research, 46(3), 279-284.

Health of women with intellectual disabilities

Health of women with intellectual disabilities (2002). Walsh, P.N. & Heller, T.

This book presents the latest research on age-related health issues for women with intellectual disabilities. Chapters written by leading international researchers and practitioners address a variety of concerns including later life health risks, reproduction and sexuality, mental health, and health promotion. Complementary chapters discuss innovative health education and health support interventions and recommend progressive policies to improve health care for women with intellectual disabilities.

ISBN: 1-405-10103-2 
COST PER UNIT: $50.95 
Order directly from Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

Physical health of adults with intellectual disabilities

Physical health of adults with intellectual disabilities (2002). Prasher, V.P. & Janicki, M.P.

This book presents the latest research on health issues and health promotion and their implications for adults with intellectual disabilities who are aging. It is an excellent primer on health issues and treatment considerations for practice, research and teaching.

ISBN: 1-405-10219-5 
COST PER UNIT: $47.95
Order directly from Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

African-American grandmother carers of children with disabilities: Predictors of depressive symptoms

African-American grandmother carers of children with disabilities: Predictors of depressive symptoms (2002). Kolomer, S.R., McCallion, P., and Janicki, M.P. Journal of Intellectual Disability Research, 37(3-4), 45-64.

Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families

Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and Non-Latino White Families (2002). Magana, S., Seltzer, M.M., and Krauss, M.W. Journal of Gerontological Social Work , 37(3-4), 65-86.

Grandparents raising grandchildren with developmental disabilities

Grandparents raising grandchildren with developmental disabilities (2002). Heller, T., & Ganguly, R.

This paper examines the demographics of grandparent caregivers of children and adults with developmental disabilities, their reasons for assuming this role, their needs, concerns and challenges. Additionally it reviews supportive interventions for this population and implications for the aging network in designing and coordinating services as part of the National Family Caregiver Support Program. Reproduced with permission of the U.S. Administration on Aging and The Lewin Group.

Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism

Adolescents and Adults With Autism, Report #1: A Book of Quotes: Shared Experiences of Families of Adolescents and Adults with Autism (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I.

This report is based on interviews with more than 400 parents caring for a son or daughter with autism. This is the largest federally funded study of these families conducted to date. The thoughts and feelings these parents share express the extraordinary wisdom, energy, struggle, and triumphs associated with this caregiving experience.

Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders

Adolescents and Adults with Autism, Report #2: A Profile of Adolescents and Adults With Autism Spectrum Disorders (2002). Seltzer, M.M., Krauss, M.W., Greenberg, J.S., Leavitt, L., Magana, S. & Orsmond, G.I.

This report presents the objectives, methodology, and initial findings of the first large-scale research study of 405 adolescents and adults with autism and spectrum disorders (ASD) and their families. It contains data on diagnosis, symptoms and behaviors, services and treatments, and participation in social and recreation activities. The authors compare these data to the research findings to date.

Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3

Adolescents and Adults with Autism: Reflections From Adult Siblings Who Have a Brother or Sister With Autism Spectrum Disorder, Report #3 (2002). Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S.

This report presents siblings' perspectives on having a brother or sister with autism. It is based on a study of caregiving that included more than 400 families. Quotes from more than 200 adult siblings provide insight into their experiences over the life course. Topics include sibling relationships, community acceptance, positive and negative experiences of having a sibling with a disability, future expectations, and advice to parents and to teenage siblings.

Adolescents and Adults With Autism: Recommended Resources From Families, Report #4

Adolescents and Adults With Autism: Recommended Resources From Families, Report #4 (2002), Krauss, M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I. & Magana, S.

This report contains the books, videos, and internet web sites that helped families learn more about their son or daughter's autism spectrum disorder. Families recommended these resources in a study of more than 400 parents caring for a child with autism spectrum disorder.

Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities

Impact of Assistive Technology and Environmental Interventions on Function and Living Situation Status With People Who Are Aging With Developmental Disabilities (2002). Hammel, J., Lai, J, & Heller, T. Disability and Rehabilitation, 24(1-3), 93-105.

Reasons For Device Use Among Caregivers of the Frail Elderly

Reasons For Device Use Among Caregivers of the Frail Elderly (2002). Kane, C., Mann, W.C., Tomita, M. & Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, 20(1).

Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers

Educating Scholars of Practice: An Approach to Preparing Tomorrow's Researchers (2002). Hammel, J., Finlayson, M., Kielhofner, G., Helfrich, C. & Peterson, E. Occupational Therapy & Health Care.

Using Assistive Technology to Maximize Function in Older Adults With Developmental Disabilities

Using Assistive Technology to Maximize Function in Older Adults With Developmental Disabilities (2002), Alvarez, T., Desi-Thalji, M., Wang, J., Budraja, S., Sundar, V., & Malik, C.

This training curriculum provides information and resources on how assistive technologies (AT) and environmental interventions (EI) can address age related changes in function for older adults with I/DD in every day contexts of the home, workplace, and community. The curriculum's seven modules cover: basic AT-EI products and terminologies; seating, positioning, and mobility; sensory issues; gross and fine motor functioning; communication, cognition, and learning; and the AT_EI delivery process and funding. The training package contains a scripted instructor's guide and power point slides for the seven modules. It was designed for professionals, paraprofessionals, and families. The content can be tailored to a 2-hour workshop or multiple sessions.
         
COST PER UNIT: $65.00 (Softcover)+Shipping
         
COST PER UNIT: $25.00 (CD-ROM)

Leadership by People with Disabilities in Self-Determination Systems Change

Leadership by People with Disabilities in Self-Determination Systems Change (2002). Powers, L.E., Ward, N., Ferris, L., Nelis, T., Ward, M., Wieck, C. & Heller, T. Journal of Disability Policy Studies, 13(2), 125-133.

Aging and developmental disability: Special issue on current research, programming, and practice implications

Aging and developmental disability: Special issue on current research, programming, and practice implications (2001). Hammel, J., & Nochajski, S. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 1-4.

Risk factors for injuries and falls among adults with developmental disabilities

Risk factors for injuries and falls among adults with developmental disabilities (2001). Hsieh, K., Heller, T., & Miller, A.B. Journal of Intellectual Disability Research, 45, 76-82.

Effect of menopause on cognitive performance in women with Down syndrome

Effect of menopause on cognitive performance in women with Down syndrome (2001). Patel, B.N., Seltzer, G.B., Wu, H.S., & Schupf, N. Neuroreport, 12(12), 2659-62.

A Prospective Study of Menopause in Women with Down Syndrome

A Prospective Study of Menopause in Women with Down Syndrome (2001). Seltzer, G.B., Schupf, N. & Wu, H.S. Journal of Intellectual Disability Research, 45, 1-7.

Health status of mothers of adults with intellectual disability

Health status of mothers of adults with intellectual disability (2001). Chen, S.C., Ryan-Henry, S., Heller, T., & Chen, E.H. Journal of Intellectual Disability Research, 45(5), 439-449.

International association for the scientific study of intellectual disabilities (IASSID) papers

International association for the scientific study of intellectual disabilities (IASSID) papers (2001). Journal of Applied Research in Intellectual Disabilities, Vol. 14, No. 3. London: Blackwell Science.

This special issue contains the research reports developed by the IASSID Special Interest Group on Aging in collaboration with the World Health Organization to promote the healthy aging of adults with intellectual disabilities worldwide. The papers address age-related physical health changes, bio-behavioral and women's health issues, policy and practice recommendations and include a summative report. The issue has an introduction by Matthew Janicki plus papers on friendships and residential supports.

ISSN: 1360-2322 
COST PER UNIT: $31.00 (Individual); $89.00 (Institution)
Order directly from Wiley at http://www.wiley.com/WileyCDA/ or 1-800-216-2522

Families of adolescents and adults with autism: Uncharted territory

Families of adolescents and adults with autism: Uncharted territory (2001). Seltzer, M.M., Krauss, M.W., Orsmond, G.I., & Vestal, C. International Review of Research in Mental Retardation, 23, 267-294.

Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation

Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation (2001). Hong, J., Seltzer, M.M., & Krauss, M.W. Family Relations, 50, 154-164.

Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation

Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation (2001). Seltzer, M.M., Krauss, M.W., Hong, J., & Orsmond, G.I. Mental Retardation, 39, 181-194.

Innovative project supports later-life planning for adults and their aging family caregivers

Innovative project supports later-life planning for adults and their aging family caregivers (2001). Heller, T., & Caldwell, J. Maximizing Human Potential, 8(3), 4-5.

Quality of life of adults with mental retardation/ developmental disabilities who live with family

Quality of life of adults with mental retardation/ developmental disabilities who live with family (2001). Seltzer, M.M., and Krauss, M.W. Mental Retardation and Developmental Disabilities Research Review, 7, 105-114.

Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice

Assistive Technology and Environmental Intervention (AT-EI ) Impact On Activity and Life Roles of Aging Persons with Developmental Disabilities: Findings and Implications for Practice (2001). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, 18(1), 37-58.

Aging and Developmental Disability: Current Research, Programming, and Practice Implications

Aging and Developmental Disability: Current Research, Programming, and Practice Implications (2001). Hammel, J. & Nochajski, S. Binghamton: The Haworth Press

This book explores the research findings and practice implications pertaining to normative and disability-related aging. It discusses the effectiveness of specific interventions for aging adults with intellectual and related developmental disabilities, including assistive technology and environmental intervention. The book provides web site resources to disability organizations, databases, and other sites.

ISBN: 0-7890-1040-2 
COST PER UNIT: $22.95 (soft cover); $39.95 (hardcover)
Order directly from The Haworth Press at
www.haworthpress.com or 1-800-429-6784

Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach

Building Community Coalitions With People With Disabilities and Their Families: An Empowerment Approach (2001). Keys, C.B. & Factor, A.R. Journal of Prevention & Intervention in the Community, 21(2), 91-112.

Physical & Occupational Therapy in Geriatrics, Special Issue-Aging and Developmental Disabilities: Current Research, Programming and Practice Implications

Physical & Occupational Therapy in Geriatrics, Special Issue-Aging and Developmental Disabilities: Current Research, Programming and Practice Implications (2000). Hammel, Joy, & Nochajski, Susan M. The Haworth Press, Vol 18 (1).

ISBN: 0270-3181
COST PER UNIT: $60.00
Order directly from the publisher at: www.HaworthPress.com or call 1-800-429-6784.

Community supports for aging adults with lifelong disabilities

Community supports for aging adults with lifelong disabilities (2000). Janicki, M. & Ansello, E. (Eds.) Baltimore: Brookes Publishing.

This book provides practical approaches that enable older adults to remain in their homes and communities as they age. It draws on field-tested experiences and situations that can be applied to most settings. Topics include: financing services for older adults, collaboration between community agencies, health promotion, and designing age-related services.

ISBN: 1-55766-462-5 
COST PER UNIT: $58.00
Order directly from the publisher at: www.brookespublishing.com or 1-800-638-3775.

Value-based human resources management

Value-based human resources management (2000). Henry, D.B., Keys, C.B., & Factor, A.R., In M. Janicki & E. Ansello (Eds.), Community supports for aging adults with lifelong disabilities. (271-286) Baltimore: Brookes Publishing.

Staff in health care and human services organizations that serve the general population may not have the skills to communicate with older adults with intellectual disabilities. This may lead to an inaccurate assessment of the individual's needs and to an intervention which isn't appropriate to his/her situation. This chapter explains how organizations can develop and implement management standards based on the values of empowerment, independence, choice, and autonomy to better serve older adults with intellectual disabilities and their families.

ISBN: 1-55766-462-5 
COST PER UNIT: $58.00
Order directly from the publisher at: www.brookespublishing.com or 1-800-638-3775.

Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation

Effects of pacing vs. non-pacing on a one-mile walk test in adults with mental retardation (2000). Kunde, K. & Rimmer, J.H. Adapted Physical Activity Quarterly, 17, 413-420.

Disabilities and health limitations

Disabilities and health limitations (2000). Rimmer, J.H. In Group fitness instructor manual. ACE's guide for fitness professionals (226-246). San Diego: American Council on Exercise.

Overview of health issues of older women with intellectual disabilities

Overview of health issues of older women with intellectual disabilities (2000). Gill, C.J., & Brown, A.A. Aging and Developmental Disability: Current Research, Programming, and Practice Implications (Eds. Hammel, J. & Nochajski, S.) Haworth Press, Inc., 23-36.

Prevalence of dementia and impact on intellectual disability services

Prevalence of dementia and impact on intellectual disability services (2000). Janicki, M.P. & Dalton, A.J. Mental Retardation, 38, 277-289.

Healthy aging: Adults with intellectual disabilities: Women’s health and related issues

Healthy aging: Adults with intellectual disabilities: Women’s health and related issues (2000). Walsh, P. N., Heller, T., Schupf, N. & van Schrojenstein Lantman-de-Valk, H. Geneva, Switzerland: International Association for the Scientific Study of Intellectual Disabilities and the World Health Organization.

Aging and Intellectual Disabilities: Improving Longevity and Promoting Healthy Aging

Aging and Intellectual Disabilities: Improving Longevity and Promoting Healthy Aging (2000). Aging and Intellectual Disabilities Special Interest Research Group (SIRG) of The International Association for the Scientific Study of Intellectual Disability (IASSID).

This series of reports is the outcome of an international initiative to promote the longevity and healthy aging of adults with intellectual disabilities that was jointly organized by the IASSID and the World Health Organization. Work groups of international researchers in aging and intellectual disabilities synthesized the latest research and developed recommendations that produced five reports: Physical Health issues, Biobehavioral issues, Women's Health, Aging and Social Policy, and a Summative Report.

Achieving a Beneficial Fitness: A Program and a Philosophy in Mental Retardation: Contemporary Issues in Health

Achieving a Beneficial Fitness: A Program and a Philosophy in Mental Retardation: Contemporary Issues in Health, Vol.1, No. 1 (2000). Rimmer, J. American Association on Mental Retardation (AAMR).

This book discusses the benefits of health promotion activities for individuals with mental retardation. It includes guidelines on developing innovative health and fitness programs.

ISBN 0-940898-71-3 
COST PER UNIT: $11.95 ($8.95 AAMR members)
Order directly from AAMR at http://www.aamr.org/ or (301) 604-1340

Grandparent Caregivers II: Service needs and service provision issues

Grandparent Caregivers II: Service needs and service provision issues (2000). McCallion, P., Janicki, M.P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 63-90.

Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care

Grandparent Caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care (2000). Janicki, M.P., McCallion, P., Grant-Griffin, L., & Kolomer, S.R. Journal of Gerontological Social Work, 33(3), 35-55.

Grandparents as supports to mothers of persons with intellectual disability

Grandparents as supports to mothers of persons with intellectual disability (2000). Heller, T., Hsieh, K., & Rowitz, L. Journal of Gerontological Social Work , 33, 23-34.

Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship

Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship (2000). Orsmond, G. & Seltzer, M.M. American Journal of Mental Retardation, 105(6), 486-508.

Supporting adults with intellectual disabilities and their families: A literature review

Supporting adults with intellectual disabilities and their families: A literature review (2000). Heller, T. Aging and Developmental Disability: Current Research, Programming, and Practice Implications, The Haworth Press, 59-73.

RRTC collaborates with Chicago Arc on family future planning project

RRTC collaborates with Chicago Arc on family future planning project (2000). Heller, T., Caldwell, J., & DeBrine, E. ADD/Vantage, 11(2), 1,12,13,15.

Aging family caregivers: Needs and policy concerns

Aging family caregivers: Needs and policy concerns (2000). Heller, T. Family Support Policy Brief #3. National Center for Family Support.

This policy brief discusses the needs of aging caregivers, including planning for the future of their relative with a developmental disability. It addresses cultural differences in family caregiving and trends in family support policies.

Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons

Caregiver Involvement in the Use of Assistive Devices by Frail Older Persons (2000). Chen, A., Mann, W.C., Tomita, M., & Nochajski, S. Occupational Therapy Journal of Research, 20(3), 179-199.

Impact of Aging on Persons With Developmental Disabilities

Impact of Aging on Persons With Developmental Disabilities (2000). Nochajski, S.M. Physical and Occupational Therapy in Geriatrics, Vol 18(1), 5-21.

Information Resources on Developmental Disability, Aging and Technology

Information Resources on Developmental Disability, Aging and Technology (2000). Hammel, J. Journal of Occupational and Physical Therapy in Geriatrics, Vol 18(1), 91-94.

Later-Life Planning: Promoting Knowledge of Options and Choice-Making

Later-Life Planning: Promoting Knowledge of Options and Choice-Making (2000). Heller, T., Miller, A., Hsieh, K. & Sterns, H. Mental Retardation, 38(5), 395-406.

Person-Centered Planning for Later Life: Death and Dying - A Curriculum for Adults with Mental Retardation

Person-Centered Planning for Later Life: Death and Dying - A Curriculum for Adults with Mental Retardation (2000). Sterns, H.L., Kennedy, E.A. & Sed, C.M.

This training curriculum helps adults with mental retardation understand death, dying and loss. It covers the concept of death; experiencing and coping with grief, mourning, comfort, and support; and death-related rituals (visitations and funerals). The curriculum consists of five in-class lessons and one field trip, which emphasize active participation through both verbal and visual presentation of materials. The instructor's guide provides a script for each lesson and includes guidelines for planning and administering each lesson. Each participant has a student notebook that accompanies the instructor's training curriculum. Each participant chooses a support person to help him/her review the lessons and complete assignments.

(Instructor's Guide) 
  COST PER UNIT: $35.00 for Guide and Notebook+Shipping
(Student Notebook) 
  (Additional Student Notebooks are $12.50 each)

Dementia and aging adults with intellectual disabilities: A handbook

Dementia and aging adults with intellectual disabilities: A handbook (1998). Janicki, M.P. & Dalton, A.J. (Eds.).

This text examines the impact of Alzheimer's disease and other dementias on people with mental retardation from an applied and practical perspective. It provides an up-to-date review of current knowledge on the diagnosis, assessment, treatment, care management, and care practices of dementias for people with mental retardation.

ISBN: 0-87630-916-3 
COST PER UNIT: $39.95 + Shipping (Paperback)
Order directly from Taylor and Francis at http://www.taylorandfrancis.com or 1-800-634-7064

Aging With Intellectual Disabilities and Later-Life Family Caregiving

Aging With Intellectual Disabilities and Later-Life Family Caregiving (1998). Heller, T., In Edelstein, C.A. (Ed.), Comprehensive Clinical Psychology Volume 7, Clinical Geropsychology. Oxford: Pergamon/Elsevier.

Dr. Heller examines later-life caregiving for adults with intellectual disabilities from a life-course perspective that takes into account the social trends and service patters that affect these families. It discusses demographic trends, cultural differences, interventions to support later-life transitions including planning for the future, and a future research agenda.

ISBN: 0-080427-07-3 
COST PER UNIT: $131.00 
Order directly from the publisher at
www.elsevier.com or (800) 545-2522 

Outcomes of Assistive Technology Services and Use by Adults with Developmental Disabilities

Outcomes of Assistive Technology Services and Use by Adults with Developmental Disabilities (1998). Hammel, J., Heller, T., & Ying, G.,  RESNA 1998 Annual Conference Proceedings, pp.14-16.

A report of an outcome study of AT service delivery, use, and relationship to functional status changes over time. The study was conducted among adults specifically with cerebral palsy and mental retardation living in the community.

Aftermath of Parental Death: Changes in the Content and Quality of Life

Aftermath of Parental Death: Changes in the Content and Quality of Life (1997). Gordon, R.M., Seltzer, M.M., & Krauss, M. W. In Robert Schalock (Ed.), Quality of Life: Its Application to Persons with Disability. Washington, DC: AAMR.

ISBN: 0-940898-41-1 
COST PER UNIT: $19.95 
Order directly from the American Association on Mental Retardation at 
www.aamr.org or 1-301-604-1340

Aging With Developmental Disabilities: An Information Packet on Understanding Age-Related Changes and Supporting Successful Aging

Aging With Developmental Disabilities: An Information Packet on Understanding Age-Related Changes and Supporting Successful Aging (1997). Factor, A.

This packet provides a basic understanding of age-related changes and their implications for adults with developmental disabilities and their families. Topics include: the aging process and its implications; supporting individual choice and community membership; and engaging and supporting older families in making future plans for their relative with a disability. It contains guidelines and practical suggestions for supporting individual choice and community membership, healthy aging and family future planning.

Assistive Technology and You: A Guide For Families and Persons With Disabilities

Assistive Technology and You: A Guide For Families and Persons With Disabilities (1997), Hedman, G., Hooyenga, K.,Politano, P. & Sposato, B.

This guidebook provides information about the various uses of assistive technology for accessibility, activities of daily living, augmentative communication, computer access, environmental control, seating, mobility, and work site modification. It contains photographs and descriptions of devices, their applications, and guidelines to help families and users become informed consumers in selecting equipment. The guide was written by assistive technology clinicians and reviewed by consumers, families and community agency professionals. It was developed by the Assistive Technology Unit at the Institute on Disability and Human Development in collaboration with the RRTC on Aging with Developmental Disabilities.

Older Adults With Mental Retardation and Their Families

Older Adults With Mental Retardation and Their Families (1997). Heller, T. A chapter in Bray, N. W. (Ed.) International Review of Research in Mental Retardation-Vol 20.

This chapter addresses the needs of older adults with mental retardation and their families from a psychosocial model that examines age-related changes and from the broader perspective of demographic and service trends affecting this population.

ISBN: 0-12366-2206 
COST PER UNIT: $104.95
Order directly from Academic Press, 525 B. Street, Suite 1900, San Diego, CA 92101-4495, USA;
www.apnet.com

Making Choices As We Age: A Peer Training Program

Making Choices As We Age: A Peer Training Program (1996). Heller, T., Preston, L., Nelis, T., Brown, A. & Pederson, E.

This is a curriculum for training persons with disabilities and their co-trainers how to teach other adults with mental retardation about: choice making, rights and responsibilities, how to make healthy choices, and things to do in their free time. The Trainer's Guide uses a "train-the-trainer" approach so the persons with disabilities who are trainers and their co-trainers can learn how to teach effectively and how to administer each module. The Coordinator's Guide provides guidelines for administering the training program and for building support for peer trainers and the other participants who they, in turn, train.

COST PER UNIT: $55.00 for Trainer's Guide and Coordinator's Guide+Shipping
(Additional Trainer's Guides are $25.00 each)

Getting Involved in Research and Training Projects: A Guide for Persons With Disabilities

Getting Involved in Research and Training Projects: A Guide for Persons With Disabilities (1996). Heller, T., Miller, A., & Nelis. 
This is a guide to help persons with disabilities get involved in research and training activities.

Person-Centered Planning for Later Life: A Curriculum for Adults with Mental Retardation

Person-Centered Planning for Later Life: A Curriculum for Adults with Mental Retardation (1993). Sutton, E., Heller, T., Sterns, H.L., Factor, A. & Miklos, S.

This research-based curriculum enables adults with mental retardation to actively plan for their later years by teaching aging concepts and choice making skills. The 20-week training, which includes a student notebook, provides classroom and community experiences for making choices regarding healthy aging, free-time activities, work and retirement, and improving living arrangements.

COST PER UNIT: $55.00 for Curriculum and Trainer's Guide+Shipping
(Available in English, Dutch and German)