Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities

Heller, T., Nelis, T., Collins, S. & Pederson, E.L. (2012)

This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and the National Gateway to Self-Determination.  It is also on the National Gateway to Self-Determination website http://www.aucd.org/ngsd/template/index.cfm. Read More...

Systematic Reviews for Informing Rehabilitation Practice: An Introduction

Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)
Archives of Physical Medicine and Rehabilitation, (93), 912-918.

Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices

Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices (2012). Factor, A., Heller, T. & Janicki, M.

This report identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks. Key policy initiatives addressed include the Aging and Disability Resource Centers, the Lifespan Respite Act, the National Alzheimer’s Project Act, and the Patient Protection and Affordable Care Act. Download in
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‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports

‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.

This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices.  It provides a summary of the challenges facing the nation as we observe an increasing rate of dementia found in older people with intellectual disabilities. The Report offers recommendations for the various stakeholders in the field of intellectual disabilities and anticipates that its findings and recommendations will be considered and integrated into the annual reports and plans developed by the federal Advisory Council on Alzheimer’s Research, Care, and Services.  The RRTCADD and the American Academy of Developmental Medicine and Dentistry organized the Task Group and co-authored the report.  Download in
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