Aging, Dementia, and Intellectual Disabilities Workshop
PowerPoint presentations:

• Overview of Basic issues in Aging and Dementia
• Normal Aging in the General and Intellectual Disabilities Populations
• Adverse Drug Reactions in Adults with Down Syndrome
• Social Care issue and Strategies, and Program Options

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Advancing a research agenda for bridging aging and disability (2012). Salvador-Carulla, L., Putnam, M., & Heller, T. International Journal Of Integrated Care, 12(8).
http://www.ijic.org/index.php/ijic/article/view/1085/1921
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International initiatives on bridging knowledge, policy and practice, (2012). Leonardi, M., Bickenbach, J., & LeRoy, B. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1084/1919
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Bringing stakeholders together across aging and disability: GOWD conference series, (2012). Spindel, A., Campbell, M., & Mendez, J. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1083/1917
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Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference, (2012). Naidoo, V., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1082/1915
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The Toronto declaration on bridging knowledge, policy and practice in aging and disability, (2012). Bickenbach, J., Bigby, C., Salvador-Carulla, L., Heller, T., Leonardi, M., LeRoy, B., Mendez, J., Putnam, M., & Spindel, A. International Journal Of Integrated Care, 12(8). http://www.ijic.org/index.php/ijic/article/view/1086/1923

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Self-directed support: Impact of hiring practices on adults with intellectual and developmental disabilities and families, (2012). Heller, T., Arnold, C.K., van Heumen, L., McBride, E.J., & Factor, A. American Journal on Intellectual and Developmental Disabilities, 117, 464-477.
http://www.aaiddjournals.org/doi/abs/10.1352/1944-7558-117.6.464 Read More...

Prevalence of falls and risk factors in adults with Intellectual Disability, (2012). Hsieh, K., Rimmer, J., & Heller, T. American Journal on Intellectual and Developmental Disabilities, 117, 442-454. Read More...

Self-Reported Health of People with Intellectual Disability (2012). Fujiura, G., T. Intellectual and Developmental Disabilities: August 2012, Vol. 50, No. 4, pp. 352-369. Read More...

The Special Olympics Community-Based Health Promotion Programs: Program Evaluation Report. (2012). Heller, T., Hsieh, K., Badetti, L., & Parker, H. (2012). Chicago: University of Illinois at Chicago. Special Olympics Collaborating Research Center, Institute on Disability and Human Development, University of Illinois at Chicago.To view report, click here.
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Preventing Health Problems among People with Intellectual and Developmental Disabilities: DSPs’ Role in Observing and Reporting Early Signs and Symptoms. Marks, B. & Sisirak, J. (2012). Frontline Initiative, 10(2).
http://rtc.umn.edu/docs/FI-Healthcare_FINAL_11-6-12.pdf Read More...

HealthMatters for People with Developmental Disabilities: Take Charge! Marks, B. & Sisirak, J. (2012). National Gateway to Self-Determination.
http://www.aucd.org/docs/issue3.pdf Read More...

Heller, T., Nelis, T., Collins, S. & Pederson, E.L. (2012)

This guide explains to people with disabilities how they can participate in research and training projects, describes what research and training is, and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and the National Gateway to Self-Determination.  It is also on the National Gateway to Self-Determination website http://www.aucd.org/ngsd/template/index.cfm.
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Dijkers, M.P., Bushnik, T., Allen W., Heinemann, A.W., Heller, T., Libin, A.V., Starks, J., Sherer, M. & Vandergoot, D. (2012)
Archives of Physical Medicine and Rehabilitation, (93), 912-918. Read More...

Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices (2012). Factor, A., Heller, T. & Janicki, M.

This report identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks. Key policy initiatives addressed include the Aging and Disability Resource Centers, the Lifespan Respite Act, the National Alzheimer’s Project Act, and the Patient Protection and Affordable Care Act.
Download in Word OR PDF format.
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‘My Thinker’s Not Working’: A National Strategy Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports (2012). Janicki, M. & Keller, S.

This report was an outcome of the National Task Group on Intellectual Disabilities and Dementia Practices.  It provides a summary of the challenges facing the nation as we observe an increasing rate of dementia found in older people with intellectual disabilities.The Report offers recommendations for the various stakeholders in the field of intellectual disabilities and anticipates that its findings and recommendations will be considered and integrated into the annual reports and plans developed by the federal Advisory Council on Alzheimer’s Research, Care, and Services. The RRTCADD and the American Academy of Developmental Medicine and Dentistry organized the Task Group and co-authored the report (Download in PDF).
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