Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We aim to give you information on health status, health access, and health behaviors of adults with intellectual and developmental disabilities (IDD), strategies to improve health and function among people with IDD through health promotion activities, and how to improve health care access through integrated care practices. In addition we have information on developmental disabilities across the lifespan, disability friendly environments, and caregiver support.
Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.
The experience of and outcomes for people with intellectual and developmental disabilities and their families in managed health care: Lessons learnedShow details
Presenters: Tamar Heller, PhD and Randall Owen, PhD
Tamar Heller, PhD, Distinguished Professor, heads the Department of Disability and Human Development, University of Illinois at Chicago (UIC) and its University Center of Excellence in Developmental Disabilities. She also directs the Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health, and is Co-PI of the RRTC on Community Living Disability Policy and the Family Support RTC. Her research focuses on health and long-term services and supports for individuals with disabilities and their families. She was President of the Association of University Centers on Disabilities (AUCD) board, and co-founder of the Sibling Leadership Network. Her awards include the 2009 Arc of Illinois Autism Ally for Public Policy Award; the 2008 Lifetime Research Achievement Award, International Association for the Scientific Study of Intellectual Disabilities, Interest Group on Aging; the 2009 Community Support Services Community Partner Award, the 2010 College of Applied Health Sciences, UIC Outstanding Researcher Award, and the AUCD 2012 International Award.
Randall Owen, PhD is a Research Assistant Professor in the Department of Disability and Human Development (DHD) at UIC where he coordinates evaluations and research projects related to people with disabilities and the transition to managed care. Randall earned a PhD in Disability Studies from DHD and his research and teaching interests are and disability policy, particularly relating to employment, healthcare and human rights.
With the growth of managed health care across the country for people with disabilities on Medicaid it is important to assess the experiences and outcomes for people with intellectual and developmental disabilities (IDD). This webinar will present results from a four year evaluation of an integrated care program in which people transferred from fee–for-service Medicaid to managed health care. It will include innovative ways to assess the views of people with IDD regarding their health and healthcare, outcomes of the transition, and strategies resulting in better health care outcomes. Lessons learned will address the role of continuity of care, care coordination, consumer choice, and family involvement in meeting the health care needs of people with IDD and ways to improve these aspects.
Keywords: Medicaid managed care, intellectual and developmental disabilities, health care, health experiences
PLAY RECORDING (1 hr)
- HealthMatters Program Scale-Up
- Impact of Managed Care
- Longitudinal Health and Intellectual and Developmental Disability Study
- National Health Outcomes Indicators
- Reducing Obesity through POWERS
Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
RRTCDD 2013-2018 Brochure
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)
Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-03