Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We aim to give you information on health status, health access, and health behaviors of adults with intellectual and developmental disabilities (IDD), strategies to improve health and function among people with IDD through health promotion activities, and how to improve health care access through integrated care practices. In addition we have information on developmental disabilities across the lifespan, disability friendly environments, and caregiver support.
Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.
Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals with I/DDShow details
Presenters: Corina R. Ronneberg, MS (email@example.com) and
Lisa Peters-Beumer, MPH (firstname.lastname@example.org)
Corina R. Ronneberg, MS, is a Doctoral Candidate in Gerontology from the University of Massachusetts Boston. She is also serving as Visiting Senior Research Specialist in the Department of Disability and Human Development at the University of Illinois at Chicago and is the Managing Editor of the Journal of Aging & Social Policy. Corina’s research focuses on older adults, physical and mental health, faith, as well as health promotion for underserved populations.
Lisa Peters-Beumer is the assistant vice president, Adult and Senior Services for Easter Seals headquarters where she advances innovative efforts across Easter Seals national network of home and community based services providers, such as the development and implementation of core outcome measures, bridging adult day services with end of life care and scaling up an evidence informed models of care. In her current role, Lisa collaborates across disciplines with researchers, providers, and policy advisors. She has been working in the aging field for more than two decades in the areas of senior transportation, dementia care, long-term care, end of life care and home and community based services, with a significant focus on bridging aging and disability. She received her Master in Public Health from Northwestern University and joined Easter Seals headquarters in 2001. Lisa is the current board chair of the National Adult Day Services Association.
While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double between 2000 and 2030. Furthermore, as policies continue shifting to reflect a preference for home and community-based services as an alternative to institutionalization, adult day services (ADS) have the potential of becoming ideal settings for receipt of end-of-life care, especially for individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings, for the general population, and have historically been less of a priority in ADS and residential services for people with IDD. This presentation discusses findings from a study around the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD. We will also explore how ADS may be a great pathway for delivering end-of-life care to the IDD population and provide guiding recommendations.
Play recording (54 min)
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- Longitudinal Health and Intellectual and Developmental Disability Study
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Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
RRTCDD 2013-2018 Brochure
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)
Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-03