Greetings

Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We aim to give you information on health status, health access, and health behaviors of adults with intellectual and developmental disabilities (IDD), strategies to improve health and function among people with IDD through health promotion activities, and how to improve health care access through integrated care practices. In addition we have information on developmental disabilities across the lifespan, disability friendly environments, and caregiver support.

RRTCDD (2013-2018) Brochure

Man with flowers

Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.


Upcoming Presentations and Conferences

  • Thu
    21
    Jan
    2016

     

    Presenter: Susan Parish, PhD, MSW

    Presenter bio:

    Susan Parish is the Nancy Lurie Marks Professor of Disability Policy, Director of the Lurie Institute for Disability Policy, and Associate Dean for Research at the Heller School, Brandeis University. Her research examines the health and financial well-being of children and adults with developmental disabilities.

    Abstract:

    The existing research on pregnancy outcomes for women with intellectual and developmental disabilities (IDD) is sparse. Susan Parish will present findings from a study that analyzed the 2010 Healthcare Cost and Utilization Project Nationwide Inpatient Sample and compared deliveries among women with IDD to the general obstetric population. Women with IDD had longer hospital stays and were more likely to have Caesarean deliveries in contrast to other women. Rates of adverse pregnancy outcomes were elevated for women with IDD across a range of measures, including early labor, preterm birth, and preeclampsia, and their infants were more likely to have low birth weight, even after adjusting for age, race, ethnicity, and insurance type. Dr. Parish will discuss the implications of these findings, as well as the targeted interventions needed to address these deleterious outcomes.

    Keywords:

    pregnancy, childbirth, mothers, intellectual disabilities

    PowerPoint Slides

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  • Thu
    18
    Feb
    2016

     

    Presenters: Tamar Heller, PhD and Randall Owen, PhD

    Presenter bios:

    Tamar Heller, PhD, Distinguished Professor, heads the Department of Disability and Human Development, University of Illinois at Chicago (UIC) and its University Center of Excellence in Developmental Disabilities. She also directs the Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health, and is Co-PI of the RRTC on Community Living Disability Policy and the Family Support RTC. Her research focuses on health and long-term services and supports for individuals with disabilities and their families. She was President of the Association of University Centers on Disabilities (AUCD) board, and co-founder of the Sibling Leadership Network. Her awards include the 2009 Arc of Illinois Autism Ally for Public Policy Award; the 2008 Lifetime Research Achievement Award, International Association for the Scientific Study of Intellectual Disabilities, Interest Group on Aging; the 2009 Community Support Services Community Partner Award, the 2010 College of Applied Health Sciences, UIC Outstanding Researcher Award, and the AUCD 2012 International Award.

    Randall Owen, PhD is a Research Assistant Professor in the Department of Disability and Human Development (DHD) at UIC where he coordinates evaluations and research projects related to people with disabilities and the transition to managed care. Randall earned a PhD in Disability Studies from DHD and his research and teaching interests are and disability policy, particularly relating to employment, healthcare and human rights.

    Abstract:

    With the growth of managed health care across the country for people with disabilities on Medicaid it is important to assess the experiences and outcomes for people with intellectual and developmental disabilities (IDD). This webinar will present results from a four year evaluation of an integrated care program in which people transferred from fee–for-service Medicaid to managed health care. It will include innovative ways to assess the views of people with IDD regarding their health and healthcare, outcomes of the transition, and  strategies resulting in better health care outcomes. Lessons learned will address the role of continuity of care, care coordination, consumer choice, and family involvement in meeting the health care needs of people with IDD and ways to improve these aspects.

    Keywords: Medicaid managed care, intellectual and developmental disabilities, health care, health experiences

    Webinar_2_Heller's PowerPoint Slides

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  • Thu
    17
    Mar
    2016

     

    Presenter: Glenn Fujiura, PhD

    Presenter bio:

    Glenn Fujiura is a Professor of Human Development in the Department of Disability and Human Development, College of Applied Health Sciences. His research includes studies of the fiscal structure and demographics of the disability service system, on family policy, evaluation of long-term care services, poverty and disability, ethnic and racial issues in disability, and on the statistical surveillance of disability. Dr. Fujiura currently serves as the editor-in-chief of the journal, Intellectual and Developmental Disabilities.

    Abstract:

    A summary of a nationally representative analysis of US data on the health care expenditures of Americans with IDD will be presented. Costs were derived from 10 years of linked data using the Medical Expenditure Panel Survey (MEPS) and the National Health Interviewer Survey (NHIS). Data implications are discussed in terms of changes in the health care insurance markets, movement to managed care, and health service priorities for Americans with IDD

    Keywords:

    Disability statistics, health care, costs, health utilization

    Webinar_3_Fujiura's PowerPoint Slides

    PLAY RECORDING (1 hr 3 min)

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  • Thu
    21
    Apr
    2016

     

    Presenter: Kelly Hsieh, PhD
    Presenter bio: Kelly Hsieh, PhD, is a Research Associate Professor in the Department of Disability and Human Development at the University of Illinois at Chicago, and Associate Director of Evaluation and Statistics for the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD).  Dr. Hsieh received her PhD of Public Health with emphasis in Community Health and Epidemiology. Her research interests explore the relationship between health risk behaviors and health outcomes including obesity, falls, cardiovascular disease, and dementia across lifespan among individuals with intellectual and developmental disabilities (IDD) using epidemiological approach. She also has an interest in investigating efficacy of interventions to improve well-being and quality of life for adults with IDD through group exercise, health education, and person centered technology approach. She is currently the principal investigator of the Longitudinal Health and Intellectual and Developmental Disabilities Study (LHIDDS).

    Abstract:

    In this presentation, we will give an overview of the fall-related studies in adults with IDD. Findings of our Longitudinal Health and Intellectual and Developmental Disabilities Study (LHIDDS) on the prevalence of falls and the associated factors for falls in adults with intellectual and developmental disabilities will be presented. Comparisons between our findings and other studies will be examined. Implications and fall prevention strategies will be further discussed.

    Keywords: Fall rates, intellectual and developmental disability, associated factors for falls, fall prevention

     

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  • Thu
    19
    May
    2016

     

    Presenter: Jim Rimmer, PhD, Carleton Rivers, MS, RDN, LD, and Justin D. Gentry

    Presenter bios:

    James H. Rimmer, Ph.D, is a Professor in the School of Health Professions and the first Lakeshore Foundation Endowed Chair in Health Promotion and Rehabilitation Sciences at the University of Alabama at Birmingham.  For over 30 years he has been developing and directing health promotion programs for people with intellectual/developmental disabilities aimed at reducing obesity, increasing physical activity and improving nutrition in youths, adults and seniors with disabilities. Since 1997 he has provided leadership in the development of interdisciplinary research programs in disability, physical activity and health promotion at the University of Illinois at Chicago and now at the University of Alabama at Birmingham (UAB). Dr. Rimmer directs two federally funded centers, the National Center on Health, Physical Activity and Disability (funded by CDC since 1999), and the Rehabilitation Engineering Research Center on Interactive Exercise Technologies and Exercise Physiology for People with Disabilities (funded by the National Institute on Disability, Independent Living, and Rehabilitation Research since 2002). He is the incoming Chair of the Science Board of the President’s Council on Fitness, Nutrition and Sports.

    Carleton Rivers, MS, RDN, LD, is the registered dietitian for the National Center on Health, Physical Activity and Disability (NCHPAD) as well as the UAB/Lakeshore Research Collaborative. Her work focuses on disseminating nutrition information to individuals with disabilities. Ms. Rivers is a project coordinator and telehealth coach for a number of studies within the UAB/Lakeshore Research Collaborative.

    Justin D. Gentry is the Research Coordinator at The Resource Exchange in Colorado Springs, CO. He coordinates projects the focus on developmental disability, health status, and technology. Justin is also a health coach at a clinic for people with IDD and aims to earn his PhD in psychology and disability studies.

    Abstract: POWERS (Personalized Online Weight and Exercise Response System) platform is a novel, multifocal-centered tailored intervention utilizing an innovative online tool designed to facilitate improvements in physical activity and nutritional behaviors. POWERSforID is a customized platform for obese individuals with intellectual disabilities (ID) and their caregivers. The POWERSforID intervention was designed to achieve weight loss and improve specific health markers while respecting and supporting the needs of the participants with ID as well as their caregivers.

    Keywords: intellectual disability, obesity, telehealth, weight management program

    Webinar 5_Rimmer's PowerPoint Slides

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  • Thu
    16
    Jun
    2016

     

    Presenters: Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN

    Presenter bios:

    Jasmina Sisirak, PhD, MPH is an Associate Director of Training and Dissemination at the RRTCDD and the Research Assistant Professor at the Department of Disability and Human Development, University of Illinois at Chicago (UIC). Jasmina received her PhD in Public Health with emphasis in Epidemiology and Community Health. Her research interests consist of nutrition, health literacy, health promotion and curriculum development for people with intellectual and developmental disabilities and their caregivers. Jasmina is also Associate Director of the HealthMatters Program.

     

    Beth Marks, RN, PhD is a Research Associate Professor at the Department of Disability and Human Development, UIC and the Associate Director for Research in the RRTCDD. Her research interests include the empowerment and advancement of persons with disabilities through health promotion, health advocacy, and primary health care. She has published numerous articles and books related to health promotion, health advocacy, and primary health care for people with disabilities. Dr. Marks is also the Director of the HealthMatters Program.

    Abstract:

    HealthMatters, Scale Up is a unique health promotion research Initiative aimed at improving health and health promotion of people with intellectual and developmental disabilities (IDD) throughout the states of Alaska, Illinois, Kentucky and Missouri. During the webinar we will present key elements of a community academic partnerships with provider organizations, the University Centers for Excellence in Developmental Disabilities (UCEDD), and the University of Illinois at Chicago HealthMatters Program Team. The goal of the Initiative is to assist provider organizations to developing a comprehensive health promotion programming plan aimed at promoting healthy lifestyles of people with IDD and their paid caregivers. We will discuss the preliminary results related to the training, implementation, and process evaluation of the Initiative.

    Keywords: health promotion program, physical activity, nutrition, training, staff, organizations

    Webinar 6_Marks' PowerPoint Slides

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  • Thu
    22
    Sep
    2016

    Presenter: Sandy Magaña, PhD, MSW (mailto:maganas@uic.edu)

    Presenter bio:

    Sandy Magaña, PhD, MSW, is a professor in Disability and Human Development at the University of Illinois at Chicago. She has been a leader in investigating racial and ethnic disparities among children with autism and developmental disabilities and among their family caregivers. uilding on this research, Magaña has developed culturally relevant interventions to address these disparities, bringing the Promotora de Salud (community health worker) model to the disability world. Once such project is aimed at addressing health behaviors and needs of caregivers of children and adults with developmental disabilities. She is also director of the newly established Family Support Research and Training Center (FSRTC).

    Abstract:

    The majority of adults with IDD live at home with their families, and this is particularly true for adults with IDD from diverse backgrounds.  Some research suggests that adults with IDD who live in the community face many health challenges compared to those in residential settings. In this webinar Dr. Magaña will present research on health outcomes of African American and Latino parental caregivers, and on racial and ethnic disparities on health outcomes among adults with IDD. She will discuss policy and community based interventions to address these disparities with a focus on how agencies serving IDD can address the health of families of persons with IDD.

    Webinar 1_Magana's PowerPoint Slides

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  • Thu
    20
    Oct
    2016

     

    Presenters: Corina R. Ronneberg, MS (corina@uic.edu) and

    Lisa Peters-Beumer, MPH (lpeters@easterseals.com)

    Presenter bio:

    Corina R. Ronneberg, MS, is a Doctoral Candidate in Gerontology from the University of Massachusetts Boston. She is also serving as Visiting Senior Research Specialist in the Department of Disability and Human Development at the University of Illinois at Chicago and is the Managing Editor of the Journal of Aging & Social Policy. Corina’s research focuses on older adults, physical and mental health, faith, as well as health promotion for underserved populations.

     

    Lisa Peters-Beumer is the assistant vice president, Adult and Senior Services for Easter Seals headquarters where she advances innovative efforts across Easter Seals national network of home and community based services providers, such as the development and implementation of core outcome measures, bridging adult day services with end of life care and scaling up an evidence informed models of care. In her current role, Lisa collaborates across disciplines with researchers, providers, and policy advisors. She has been working in the aging field for more than two decades in the areas of senior transportation, dementia care, long-term care, end of life care and home and community based services, with a significant focus on bridging aging and disability. She received her Master in Public Health from Northwestern University and joined Easter Seals headquarters in 2001. Lisa is the current board chair of the National Adult Day Services Association.

    Abstract:

    While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double between 2000 and 2030. Furthermore, as policies continue shifting to reflect a preference for home and community-based services as an alternative to institutionalization, adult day services (ADS) have the potential of becoming ideal settings for receipt of end-of-life care, especially for individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings, for the general population, and have historically been less of a priority in ADS and residential services for people with IDD. This presentation discusses findings from a study around the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD. We will also explore how ADS may be a great pathway for delivering end-of-life care to the IDD population and provide guiding recommendations.

    Webinar 2_Ronneberg

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  • Thu
    19
    Jan
    2017

    Presenter: Susan Kahan, MA, LCPC (skahan@uic.edu)

    Abstract

     Everyone desires to love and be loved. The myths and misconceptions about people with intellectual and developmental disability (IDD) often lead to rules and restrictions that make healthy relationships difficult to obtain. This webinar will explore the facts and myths around relationships and sexuality for people with IDD. We will discuss the importance of laying the foundation for healthy relations early on through social skills and sexuality education. Resources and strategies for teaching healthy sexuality will be presented. In addition, we will discuss the role of healthy sexuality education as a primary prevention tool for sexual abuse and other strategies to promote sexual abuse prevention.

    Learning Objectives

    1. Understand the myths and misperceptions about individuals with IDD and their impact access to education on healthy relationships and sexuality.
    2. Identify tools and strategies for teaching individuals with IDD about healthy relationships and sexuality.
    3. Understand the role of healthy relationship and sexuality education as a primary sexual abuse prevention strategy.

    Sexuality and Healthy Relationships Kahan' PPT Slides

    Play Recording (1 hr 4 min)

    Presenter Bio:

    Susan is the clinical staff at the University of Illinois at Chicago Developmental Disability Family Clinics, Susan, provides individual and group therapy for clients with a broad range of mental health and behavioral concerns, with a special focus on trauma and sexual abuse of individuals with disabilities.

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  • Tue
    31
    Jan
    2017
    4:00 p.m. - 5:00 p.m. ET

    Tuesday, January 31, 2017, 4:00 p.m. - 5:00 p.m. ET
    http://www.aucd.org/template/event.cfm?event_id=7932&id=16
    Learn about the current health care policy debate and what policies are important to children, youth, and adults with disabilities and their families. Strategies for successful health care advocacy will also be discussed. This webinar is specifically designed for AUCD network trainees

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  • Wed
    01
    Feb
    2017
    11:00 a.m. - 12:30 p.m. ET

    Wednesday, February 1, 2017, 11:00 a.m. - 12:30 p.m. ET
    http://bit.ly/2kLeTow
    HHS/Office of Adolescent Health (OAH), in partnership with the American Public Health Association, the Partnership for Maternal, Newborn & Child Health, and The Lancet's Commission on Adolescent Health and Wellbeing: Webinar. Health for All Adolescents. This webinar will provide a closer look at policies and other multi-sectoral factors that affect adolescents worldwide, and will discuss findings from The Lancet report, Our future: a Lancet commission on adolescent health and wellbeing.

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  • Mon
    13
    Feb
    2017
    Tue
    14
    Feb
    2017
    Washington, DC

    http://bit.ly/2jZju9R
    Registration is FREE. The State of the Science Conference is open for in-personattendance only. The Annual Disability Statistics Compendium offers both in-person and webcast participation options. Please register if you plan to attend in-person or via webcast. The agenda, presenters, and logon procedures (for web viewers) will be emailed to you as they become available.  For questions regarding your registration, please email or call 603-862-4320.

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  • Thu
    16
    Feb
    2017
    2pm - 3pm CSTWebinar

    REGISTER HERE

    Presented by: Matthew Janicki, PhD

    Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer's disease (and related dementias), affects a significant number of adults with Down syndrome (about 65% of adults age more than 60) and a proportional number of adults with other causes of intellectual disability (about 6% of adults age more than 60). Many at-risk adults live on their own or with friends, and many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of such affected adults. This webinar covers key elements of dementia and how it affects adults with intellectual disabilities, provides a brief overview of screening and assessment strategies and methods, and examines ways that organizations can employ to adapt their current services to make them dementia capable. Specifically covered are the elements and types of dementia, as well its onset, duration and effect, and techniques for adapting environments, aiding with staff interactions and communication, as well as challenges to active and supportive programming. Models for supports depending on the stage of dementia are also discussed, as are training foci areas and community care models that provide for "dementia capable" supports and services. Special attention is given to the use of group homes as a viable community care model.

    Matthew P. Janicki, Ph.D. is the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, research associate professor in the Department of Disability and Human Development at the University of Illinois at Chicago and Director for Technical Assistance for the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) at the University.

     Play recording (1 hr 4 min)

    Webinar-4_Janicki

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  • Thu
    16
    Mar
    2017
    2pm - 3pm CSTWebinar

    REGISTER HERE

    Presented by: Kruti Acharya, MD

    Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.

    Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.

    Play recording (1 hr 1 min)

    PowerPoint Slides

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  • Thu
    06
    Apr
    2017
    2:00 to 3:00 pm CSTWebinar

    Small Steps, Big Leaps: Healthy Vending in Your Organization

    Small Steps, Big Leaps: Healthy Vending in Your Organization (PowerPoint Presentation)

    Transcript "Small Steps BIG LEAPS" Presentation (4-6-17)

    View Presentation

    ABSTRACT

    Healthier vending machine initiatives increase your staff and people with intellectual and developmental disabilities (IDD) choice by expanding access to healthier snack and drink options!

    This presentation will provide strategies for healthier vending options through the following: (i) steps to developing healthy vending machine initiative; (ii) using tools to survey vending machines and implementing new guidelines; and, (iii) integrating examples and links to resources related to healthy vending machine for your initiative.

    Audience: Providers who provide Supports for Community Living services to people with IDD and others seeking to increase healthy options in their organization's vending machines.

    Presenters: Jasmina Sisirak, PhD, MPH and Kristin Krok, CTRS

    CEUs: There will be no CEUs provided for this presentation.

    For more information: Please contact Jasmina Sisirak at info@healthmattersprogram.org.
    The webinars are funded through the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD), United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00.
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  • Fri
    07
    Apr
    2017
    Mon
    10
    Apr
    2017
    Dallas, TX

    2017 Conference Overview

    The 2017 conference theme is “Celebrating our Past, Shaping our Future!”  As the premiere resource for practicing I/DD nurses, DDNA is committed to providing quality education programs that include cutting edge content with practical application.

    CONFERENCE PROGRAM STRUCTURE It’s all about the CEs!

    DDNA’s 2017 annual conference will be structured a bit differently than in previous years – offering a longer conference program and more accredited continuing education courses and opportunities! The conference registration fee will include 3 ½ full days of conference program and continuing education, offering over 23 hours of continuing education.

    As we celebrate our silver anniversary, we would also like to offer our members an additional reason to celebrate with us!   With the longer conference program and additional continuing education, this year’s conference rate is 5% below the 2016 conference fees for comparable hours of continuing education.  The conference will also offer a pre-conference program, providing 6 additional hours of continuing education, available to all conference attendees as an additional purchase!

    The result – over 29 hours of continuing education are available with attendance at all conference and pre-conference programs!

    Target audience: Health care professionals working in the field of intellectual and developmental disabilities.

    Overall objectives: The goals and objectives of the conference are:

    • To present cutting-edge education on the most up-to-date practice issues and research regarding the specialty of developmental disabilities nursing.
    • To provide a forum for networking and to facilitate the sharing of information to improve nursing practice in the developmental disabilities field.
    • To bring together leaders and experts in developmental disabilities to engender consensus that improves the health and lives of persons with developmental disabilities.
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  • Thu
    20
    Apr
    2017
    2pm - 3pm CSTWebinar

    Download Presentation (PDF): Social Support Networks of Aging Persons with Intellectual Disabilities

    Play Recording

     

    Presented by: Lieke van Heumen, PhD

    This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.

    Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.

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  • Wed
    26
    Apr
    2017
    9:30am-11:00am CDTEquip for Equality, 20 N. Michigan, Suite 300, Chicago, IL 60602

    Equip for Equality Hosts Disability Rights Consortium Meeting on April 26th to Focus on Human Trafficking of People with Disabilities

    Download PPTX: Human Trafficking of People with Disabilities 4.26.17

    The next meeting of the Disability Rights Consortium will take place on Wednesday, April 26, 2017, from 9:30am-11:00am at Equip for Equality (20 N. Michigan, Suite 300, Chicago, IL 60602).​

    Topic:  The Intersection of Disability and Human Trafficking, April 26, 2017

    People with disabilities are especially vulnerable to human trafficking. This session will focus on defining human trafficking, discussing the intersection of disability and trafficking, and taking a look at the investigation and prosecution of these crimes in Cook County.

    Presenters

    Speakers will be Lydia Sharp, Equal Justice Works Fellow & Staff Attorney sponsored by Greenberg Traurig, LLP at Equip for Equality; Summar Ghias, Human Trafficking Task Force Coordinator at STOP-IT, The Salvation Army Family and Community Services; and ASA Lou Longhitano, Supervisor - Human Trafficking Unit at the Cook County State's Attorney.

    CLE Available

    1.5 hours of CLE credit will be provided to attorneys.

    Accommodations

    If you can't attend in person, you can participate via teleconference by calling 800-910-8278 and entering code: 1940990.  If you need other accommodations to participate in the meeting, please contact Barry Taylor at barryt@equipforequality.org by April 21st.

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  • Thu
    04
    May
    2017
    2:30 PM Eastern Time Zone

     

    Webinar Series: Accessibility Online from the Great Lakes ADA Center, ADA National Network in partnership with the U.S. Access Board

    More Information and Registration

    The 2010 ADA Accessibility Standard and the Architectural Barriers Act Accessibility Standard include provisions for exercise equipment and other elements typically found in a health club or fitness facility. This session will highlight provisions for exercise equipment along with a basic review of the building and facility elements such as toilet and bathing facilities, locker rooms, and other site amenities.

    The next webinar in the U.S. Access Boards free monthly series will take place May 4 from 2:30 – 4:00 (ET) and will cover requirements in the ADA and ABA Standards for exercise equipment and other features and amenities of health clubs and fitness facilities. This session will review provisions for exercise equipment, toilet and bathing facilities, locker rooms, and other elements and spaces.

    Speakers: Bill Botten and Seanna L.Kringen

    Deadline to Register - May 3, 2017 - Visit www.accessibilityonline.org for more information or to register for the webinar. Questions can be submitted in advance of the session or can be posed during the webinar. Webinar attendees can earn continuing education credits. The webinar series is hosted by the ADA National Network in cooperation with the Board. Archived copies of previous Board webinars are available on the site.

    For More Information Contact the US Access Board
    Phone: 800-872-2253 (voice) or 800-993-2822 (tty)
    Email: info@access-board.gov
    Web: Webinar Series: Accessibility Online
    (accessibilityonline.org/ao/schedule)

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  • Wed
    31
    May
    2017
    9:30-11:00am CDTEquip for Equality, 20 N. Michigan, Suite 300, Chicago, IL 60602

    More information to follow.

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  • Wed
    28
    Jun
    2017
    12:30pm – 1:30pm ET

    Wednesday, June 28, 2017, 12:30pm – 1:30pm ET
    http://bit.ly/2rMxeVv
    The words people and organizations use demonstrates their perspective on an issue and provides a frame of reference for discussions. However, different fields, populations and organizations have varying degrees of understanding and use of the terminologies used by those they may want to do business with. Community Based Organizations (CBO)  looking to work with new integrated care/service systems such as Managed Long-Term Services and Supports (MLTSS) need to understand the common terminology used in those systems.

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  • Wed
    28
    Jun
    2017
    3:00 - 4:00 PM EDT

    Wednesday, June 28, 2017, 3:00pm – 4:00pm ET
    http://bit.ly/2r1CqJs
    The APHA Disability Section will be conducting their first webinar in this series! The purpose of these webinars is to promote learning and to provide an opportunity for students and Disability Section members to share their research throughout the year!

    Webinar Descriptions:

    The APHA Disability Section will be conducting their first webinar in this series! The purpose of these webinars is to promote learning and to provide an opportunity for students and Disability Section members to share their research throughout the year!

    Destiny Singleton, is a doctoral student in the School Psychology Program at the University of South Florida. Her primary interests are in pediatric school psychology, as well as behavioral trainings for parents. She am currently working with Dr. Jennifer Marshall and Dr. Christopher Vatland on a project that focuses on developing educational modules for parents with intellectual disabilities to increase their knowledge on health, safety, and maintaining a routine for their child. With this project they hope to see an increase in health outcomes for parents, as well as for their child. This group also hopes that agencies who may work with parents with intellectual disabilities are able to adapt their current modules so they can be more effective for this population of parents.

    Yasmine Adem, MPH, RN, CHES, is currently pursuing her Doctorate of Nursing Practice with an emphasis in public health at the University of Colorado, Denver. Her doctoral project is addressing the issue of frequent emergency department use for primary care needs through improved community care coordination efforts. She earned her Bachelor of Science in Nursing from Nevada State College and her Master of Science in Public Health from the University of Nevada, Reno. She has worked in a variety of settings that span from acute care to public and community health. She currently works for the State of Nevada with the Department of Health and Human Services in the Aging and Disability Services Division. Her role is a care coordinator with the Medicaid Home and Community Based Waiver programs, where she provides case management and coordination of health services for the elderly and individuals with physical disabilities.

    Please Note:

    • There is NO cost for this webinar.
    • CEUs are not offered for this webinar.
    • For disability accommodations email Anna Costalas
      or call 301-588-8252.
    • This webinar will be archived.
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  • Wed
    05
    Jul
    2017
    5:00 pmOn the day of the broadcast, links to the audio and real-time captioning will be available under: On the Air Today.

    Episode 46: The History of Disability, Lessons from the Past

    On the day of the broadcast, links to the audio and real-time captioning will be available under: On the Air Today.

    Speaker(s): 
    Description: 

    The passage of the Americans with Disabilities Act (ADA) has often been called a turning point in the history of people with disabilities. In honor of the ADA Anniversary (July 26), this episode will explore significant turning points in the history of disability in America, including an examination of veterans of wars. Veterans are supposed to be outside the usual understanding of disability, but nonetheless, they have experienced distinctive psychological disorders and considerable racial/ethnic discrimination. What can the treatment and perceptions of veterans teach us about disability today?

    Join Larry Logue, senior fellow at the Burton Blatt Institute​ - Syracuse University and former professor of history at Mississippi College; and William Myhill, Director of Legal Research and Writing at the Burton Blatt Institute, as they discuss how the treatment of veterans has changed since wounded Civil War veterans camped in front of Lincoln's White House.

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  • Thu
    13
    Jul
    2017
    2-2:45pm ETWebcast

    The NIDILRR-funded Rehabilitation Research and Training Center on Employment of People with Physical Disabilities (VCU-RRTC) will host a webcast, Disclosing Disability in the Workplace, July 13th, 2-2:45pm ET. Presenters will review the provisions of the Americans with Disabilities Act Amendments Act (ADAAA) pertaining to disclosure of disability in the workplace, and examine the considerations that workers with disabilities must make in deciding whether to disclose. Registration is free and required.

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  • Tue
    22
    Aug
    2017
    4:00 p.m – 5:00 p.m. EDTAAIDD Webinar

    Erin Riehle RN, MSN, NEA-BC is the Senior Director of Disability Services and Project SEARCH. She will focus on describing Project SEARCH, which is an employment and transition program that has received national recognition for practices started under Erin’s leadership. This is an AAIDD webinar.

    Register: https://attendee.gotowebinar.com/register/9124309721588457729

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  • Thu
    28
    Sep
    2017
    2-3:00 pm EDTWebinar

    REGISTER: HealthMatters Program WebEx Event Center

    ABSTRACT

    The critical relationship between employment status and health is well established. Health education can enrich a Project SEARCH experience and increase the likelihood of sustained employment for Project SEARCH interns through better health. Join representatives from the Community Plan of Texas who will share how the Health Matters curriculum was implemented at their site. This session will encourage Project SEARCH on-site teams to understand the correlation between employment and health and wellness as well as best practices for implementing the health related curriculum.

    CEUs: There will be no CEUs provided for this presentation.

    PRESENTERS

    Patti Moore, Upper Valley Career Center Project SEARCH Coordinator of Upper Valley Medical Center, Sidney, OH. Patti coordinates a partnership between the Upper Valley Career Center, Upper Valley Medical Center, Koester Pavilion, Miami and Shelby County Boards of Developmental Disabilities, Capabilities Inc., and Opportunities for Ohioans with Disabilities. Currently in its eighth year locally, Upper Valley Project SEARCH is a high school transition program designed to provide training and education in a business setting, with the goal of competitive, community employment. This is Patti’s 25th year working in special education, 14th year as a Career Tech Special Needs Transition Coordinator, and 8th year as a Coordinator in Project SEARCH.

    Alexandra Needler, Project SEARCH Business Liaison, UnitedHealthcare, Houston, TX.

    Jessica Treybig, Fort Bend ISD Project SEARCH Instructor, UnitedHealthcare, Fort Bend, TX.

     

     

     

    PRESENTATION CONTRIBUTOR

    Jillian Hamblin, Chief Operating Officer, UnitedHealthcare Community and Plan of TX, Houston, TX.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Mon
    09
    Oct
    2017
    Wed
    11
    Oct
    2017
    Hilton Hawaiian Village Waikiki Beach Resort & the Modern Honolulu
    The Call for Proposals is NOW OPEN, so be sure to submit your ideas early! For more information, please visit us at www.pacrim.hawaii.edu, or feel free to e-mail prinfo@hawaii.edu, or call 1-808-956-7539.
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  • Thu
    12
    Oct
    2017
    2-3:00 pm EDTWebinar

    REGISTER: HealthMatters WebEx Event Center

    For people with intellectual/developmental disabilities, maintaining health and wellness is essential to achieving and maintaining independence, participating in society, and preventing the onset of secondary health conditions. Yet, people with disabilities (PWD) experience poorer health than the general population and alarmingly higher rates of obesity and related conditions. The University of Cincinnati UCEDD and Strong Center for Developmental Disabilities at University of Rochester implemented and evaluated the evidence - based HealthMessages Program curriculum with Project SEARCH students. HealthMessages Program is a 12-week health promotion program which uses peer-to-peer facilitation to learn about physical activity and hydration; as well as making healthy choices, lifestyle changes, and setting goals. This presentation will provide a summary of lessons learned from the pilot project.

    CEUs: There will be no CEUs provided for this presentation.

    PRESENTERS

    Julie Christensen, PhD, LMSW, Director, Center for Disabilities and Development (UCEDD), University of Iowa, Iowa. Julie is the Director of Iowa’s University Center for Excellence in Developmental Disabilities (UCEDD), Center for Disabilities and Development (CDD), at the University of Iowa. Prior to joining CDD in May 2016, Dr. Christensen served as the Director of Employment Programs at Strong Center for Developmental Disabilities (UCEDD), at the University of Rochester Medical Center. Dr. Christensen's background encompasses work in schools, not-for-profits, government and higher education. For the past 14 years, her career has centered around improving quality of life outcomes for at-risk youth, including youth with intellectual and development disabilities, through promoting employment and access to leisure and recreation opportunities in inclusive settings. She has considerable experience developing, administering, and evaluating federal, state and local grant-funded projects with an emphasis on cross-systems collaboration and systems change. She currently maintains a research faculty appointment in the Department of Psychiatry at the University of Iowa Hospitals and Clinics, and adjunct appointments in the Department of Pediatrics, Division of Developmental and Behavioral Pediatrics and the University of Iowa School of Social Work. Her research is in the areas of employment, quality of life, and leisure and recreation participation of adolescents and young adults with IDD.

     

    PRESENTATION CONTRIBUTOR

    Maryellen Daston, PhD, Program Specialist, Project SEARCH, Cincinnati Children's Hospital, Cincinnati, OH. Maryellen is is a technical writer with a background in biomedical research. Prior to her current position with Project SEARCH, she was involved with research in the field of developmental neuroscience. In her current position, Maryellen works with the Project SEARCH central administration team at Cincinnati Children’s Hospital Medical Center. Maryellen manages the Project SEARCH database and is responsible for editing and writing content for the Project SEARCH website, articles for professional journals, and other communications. She is also involved with researching funding opportunities, writing grant proposals, and overseeing research related to Project SEARCH. In addition, Maryellen co-authored the book on the history, philosophy, and practices that define the Project SEARCH model, “High School Transition that Works: Lessons Learned from Project SEARCH”, Paul H. Brookes Publishing Co.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Mon
    16
    Oct
    2017
    Tue
    17
    Oct
    2017
    Natcher Building’s Ruth L. Kirschstein Auditorium of the National Institutes of Health in Bethesda, Maryland

    2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers

    Source: 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers

    The National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers is two-day meeting of researchers, service providers, persons with dementia, family caregivers, and other stakeholder groups.

    Registration is free, but space is limited so please register as soon as possible if you want to attend in-person on the NIH campus. To register, click here. If you prefer to watch the videocast, please register and choose the “videocast” option. A link and additional details will be sent to you approximately one-week prior to the event.

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  • Wed
    18
    Oct
    2017
    4–5:00 pm ET

    Dates: 18 – 18 Oct, 2017
    Contact: Lindsey Polansky
    Email: lpolansky@aaidd.org
    Date: October 18, 2017
    Time: 4:00 p.m. EST

    Wellbeing of Individuals with IDD Through Research and HealthMatters, Maryland

    Registration for this webinar is complimentary. Please register here.

    Content Overview:

    Dr. Lynne Tomasa will focus on future planning for individuals with IDD, including integrating concepts of health and wellness into a future plan. She will also discuss the role of healthcare and service professionals in supporting the wishes of individuals with IDD and their families.

    Jennifer Eastman will then explain the HealthMatters Scale Up initiative, framework and goals. Jennifer will also discuss the MD Department of Disabilities and its unique position in MD government and the progress and success in implementing the Scale Up thus far. She will also explore some identified opportunities for future success and sustainability.

    Presenters:
    Lynne Tomasa, PhD, MSW, University of Arizona, Sonoran UCEDD
    Jennifer Eastman, MBA, Maryland Department of Disabilities

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  • Thu
    26
    Oct
    2017
    2-3:00 pm ETWebinar

    Source: HealthMatters Program WebEx Event Center

    In this webinar, we will share our success utilizing technology to improve student interns’ health, stamina, and independence. During our first year of our Project SEARCH program we have incorporated 6 Chromebooks, 2 iPads, and Fitbits for every intern. We will demonstrate how we created Google Accounts for each intern so they have access to their own G Suites to create an email address and Google Drive where they create resumes, letters, upload photos, create presentations, and share documents that they will have access to throughout their adult lives. We will also demonstrate how we utilize Google Drive to create a shared Project SEARCH Steering committee folder so all members can collaborate and have access to documents and resources at all times. We will also share how we incorporated Fitbits into daily lessons in combination with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. Interns record all food and water consumed during the day, plus their daily activity is tracked by logging active minutes throughout the day, calories burned, total steps, and miles traveled during the day. Project SEARCH instructor is able to make connections with intern Fitbit data and Health Matters curriculum for student interns to learn the importance of nutrition and physical activity. We were also able to identify how the Fitbit can be used to make adaptations for the Interns to improve time on task and their time management skills. With the access to two iPads we incorporated a time in and time out app that student interns utilize to sign in and out for their internship rotations and for their lunch breaks. This data is incorporated into real life math lessons.

     

    CEUs: There will be no CEUs provided for this presentation.

     

    PRESENTERS

    Mason Messinger, Project SEARCH Instructor, Kalahari Resort, Pocono Manor, PA.

    Dawn Diagnault, Director of Career Options and Opportunities, Human Resources Inc., Effort, PA.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Thu
    18
    Jan
    2018
    2-3:00 pm ETWebinar

    REGISTER: HealthMatters WebEx Event Center

     

    Project SEARCH is committed to supporting health and fitness education during the transition to employment. Accordingly, Project SEARCH partnered with UnitedHealthcare last year to provide Project SEARCH sites with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. More recently, we were awarded a grant from the Ohio DD Council to study the use of the Health Matters curriculum in the context of Project SEARCH. As a first step, we surveyed Project SEARCH Instructors on their experience with the Health Matters curriculum and other health and fitness activities. The purpose was to learn about both the successes and obstacles that instructors encountered. The results of that survey will be presented here, and we plan to gather additional information from members of the audience in an informal focus group discussion. Ultimately, we plan to create and test a clear set of guidelines for integrating the Health Matters curriculum into Project SEARCH in a manner that will optimize learning of health and fitness principles without interfering with the primary Project SEARCH goal of competitive employment.

     

    PRESENTER

    Maryellen Daston, PhD, Program Specialist, Cincinnati Children’s Hospital, Cincinnati, OH. Maryellen is a technical writer with a background in biomedical research. Prior to her current position with Project SEARCH, she was involved with research in the field of developmental neuroscience. In her current position, Maryellen works with the Project SEARCH central administration team at Cincinnati Children’s Hospital Medical Center. Maryellen manages the Project SEARCH database and is responsible for editing and writing content for the Project SEARCH website, articles for professional journals, and other communications. She is also involved with researching funding opportunities, writing grant proposals, and overseeing research related to Project SEARCH. In addition, Maryellen co-authored the book on the history, philosophy, and practices that define the Project SEARCH model, “High School Transition that Works: Lessons Learned from Project SEARCH”, Paul H. Brookes Publishing Co.

     

    PRESENTATION CONTRIBUTORS

    1. Julie Christensen, PhD, LMSW, Director, Center for Disabilities and Development (UCEDD), University of Iowa, Iowa City, IA. Julie is the Director of Iowa’s University Center for Excellence in Developmental Disabilities (UCEDD), Center for Disabilities and Development (CDD), at the University of Iowa. Prior to joining CDD in May 2016, Dr. Christensen served as the Director of Employment Programs at Strong Center for Developmental Disabilities (UCEDD), at the University of Rochester Medical Center. Dr. Christensen's background encompasses work in schools, not-for-profits, government and higher education. For the past 14 years, her career has centered around improving quality of life outcomes for at-risk youth, including youth with intellectual and development disabilities, through promoting employment and access to leisure and recreation opportunities in inclusive settings. She has considerable experience developing, administering, and evaluating federal, state and local grant-funded projects with an emphasis on cross-systems collaboration and systems change. She currently maintains a research faculty appointment in the Department of Psychiatry at the University of Iowa Hospitals and Clinics, and adjunct appointments in the Department of Pediatrics, Division of Developmental and Behavioral Pediatrics and the University of Iowa School of Social Work. Her research is in the areas of employment, quality of life, and leisure and recreation participation of adolescents and young adults with IDD.
    2. Dennis Cleary, Co-Director of the Transition, Employment, and Technology (TET) Lab, Columbus, OH. Dennis is an Assistant Professor of Occupational Therapy at The Ohio State University. His primary area of interest is transition services for young adults with disabilities and promoting their employment outcomes In partnership with the Transition group at the Nisonger Center, Dr. Cleary works to test and refine methods to support young adults in academic, social, and work environments through the use of technology, activity analysis, education, and job matching strategies. Dr. Cleary has received funding from the U.S. Department of Education.
    3. Karen Guo is an Occupational Therapy Doctoral Student at The Ohio State University in Columbus, OH.
    4. Beth Marks, RN, PhD, Research Associate Professor, University of Illinois, Chicago, IL. Beth is a Research Associate Professor in the Department of Disability and Human Development, University of Illinois at Chicago, Associate Director for Research in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, and President, National Organization of Nurses with Disabilities. Beth directs research programs on empowerment and advancement of persons with disabilities. She has published numerous articles and books related to health promotion, health advocacy, and primary health care for people with disabilities. She co-produced a film entitled “Open the Door, Get 'Em a Locker: Educating Nursing Students with Disabilities.” She has also authored two books published in 2010 entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilitiesand Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.
    5. Jasmina Sisirak, PhD, MPH, Research Assistant Professor, University of Illinois at Chicago; Chicago, IL. Jasmina is an Associate Director of Training and Dissemination in the Rehabilitation Research and Training Center on Developmental Disabilities and health (RRTCDD) in the Department of Disability and Human Development at University of Illinois at Chicago (UIC). Her research interests consist of nutrition, health literacy, and health promotion for persons with intellectual and developmental disabilities. She coordinates several health promotion projects in the RRTCDD; and has written publications and presented papers in the area of disability, health, and nutrition. Jasmina has co-authored two books entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities and Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Thu
    15
    Feb
    2018
    2-3:00 pm ETWebinar

    REGISTER: HealthMatters Program WebEx Event Center

    This webinar will discuss the use of mindfulness strategies for building success and wellness among people with intellectual and developmental disabilities (IDD) within their worksites. "Mindfulness tools" will be reviewed for participants to incorporate with their students and employees with IDD in the classroom or in the workplace.

     

    CEUs: There will be no CEUs provided for this presentation.

     

    PRESENTER

    Stefanie Patterson, Cape Cod, Riverview School's Project SEARCH Instructor. Stefanie is a certified English and special education teacher and has been in the field of education for over 20 years. She is also a life-long yoga practitioner and is licensed through Finding Inner Peace Yoga School and is a member of the National Yoga Alliance & the Cape Cod Yoga Association [CCYA] with specialty certifications in pre/post-natal yoga, children/teen yoga and Mindfulness Meditation.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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Research Studies

  1. HealthMatters Program Scale-Up
  2. Impact of Managed Care
  3. Longitudinal Health and Intellectual and Developmental Disability Study
  4. National Health Outcomes Indicators
  5. Reducing Obesity through POWERS

Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
Phone: 1-312-413-1520
Fax: 1-312-996-6942
TTY: 1-312-413-0453
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)

Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-03