Greetings

Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We aim to give you information on health status, health access, and health behaviors of adults with intellectual and developmental disabilities (IDD), strategies to improve health and function among people with IDD through health promotion activities, and how to improve health care access through integrated care practices. In addition we have information on developmental disabilities across the lifespan, disability friendly environments, and caregiver support.

RRTCDD (2013-2018) Brochure

Man with flowers

Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.


Upcoming Presentations and Conferences

  • Thu
    18
    Jan
    2018
    2-3:00 pm ETWebinar

    REGISTER: HealthMatters WebEx Event Center

     

    Project SEARCH is committed to supporting health and fitness education during the transition to employment. Accordingly, Project SEARCH partnered with UnitedHealthcare last year to provide Project SEARCH sites with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. More recently, we were awarded a grant from the Ohio DD Council to study the use of the Health Matters curriculum in the context of Project SEARCH. As a first step, we surveyed Project SEARCH Instructors on their experience with the Health Matters curriculum and other health and fitness activities. The purpose was to learn about both the successes and obstacles that instructors encountered. The results of that survey will be presented here, and we plan to gather additional information from members of the audience in an informal focus group discussion. Ultimately, we plan to create and test a clear set of guidelines for integrating the Health Matters curriculum into Project SEARCH in a manner that will optimize learning of health and fitness principles without interfering with the primary Project SEARCH goal of competitive employment.

     

    PRESENTER

    Maryellen Daston, PhD, Program Specialist, Cincinnati Children’s Hospital, Cincinnati, OH. Maryellen is a technical writer with a background in biomedical research. Prior to her current position with Project SEARCH, she was involved with research in the field of developmental neuroscience. In her current position, Maryellen works with the Project SEARCH central administration team at Cincinnati Children’s Hospital Medical Center. Maryellen manages the Project SEARCH database and is responsible for editing and writing content for the Project SEARCH website, articles for professional journals, and other communications. She is also involved with researching funding opportunities, writing grant proposals, and overseeing research related to Project SEARCH. In addition, Maryellen co-authored the book on the history, philosophy, and practices that define the Project SEARCH model, “High School Transition that Works: Lessons Learned from Project SEARCH”, Paul H. Brookes Publishing Co.

     

    PRESENTATION CONTRIBUTORS

    1. Julie Christensen, PhD, LMSW, Director, Center for Disabilities and Development (UCEDD), University of Iowa, Iowa City, IA. Julie is the Director of Iowa’s University Center for Excellence in Developmental Disabilities (UCEDD), Center for Disabilities and Development (CDD), at the University of Iowa. Prior to joining CDD in May 2016, Dr. Christensen served as the Director of Employment Programs at Strong Center for Developmental Disabilities (UCEDD), at the University of Rochester Medical Center. Dr. Christensen's background encompasses work in schools, not-for-profits, government and higher education. For the past 14 years, her career has centered around improving quality of life outcomes for at-risk youth, including youth with intellectual and development disabilities, through promoting employment and access to leisure and recreation opportunities in inclusive settings. She has considerable experience developing, administering, and evaluating federal, state and local grant-funded projects with an emphasis on cross-systems collaboration and systems change. She currently maintains a research faculty appointment in the Department of Psychiatry at the University of Iowa Hospitals and Clinics, and adjunct appointments in the Department of Pediatrics, Division of Developmental and Behavioral Pediatrics and the University of Iowa School of Social Work. Her research is in the areas of employment, quality of life, and leisure and recreation participation of adolescents and young adults with IDD.
    2. Dennis Cleary, Co-Director of the Transition, Employment, and Technology (TET) Lab, Columbus, OH. Dennis is an Assistant Professor of Occupational Therapy at The Ohio State University. His primary area of interest is transition services for young adults with disabilities and promoting their employment outcomes In partnership with the Transition group at the Nisonger Center, Dr. Cleary works to test and refine methods to support young adults in academic, social, and work environments through the use of technology, activity analysis, education, and job matching strategies. Dr. Cleary has received funding from the U.S. Department of Education.
    3. Karen Guo is an Occupational Therapy Doctoral Student at The Ohio State University in Columbus, OH.
    4. Beth Marks, RN, PhD, Research Associate Professor, University of Illinois, Chicago, IL. Beth is a Research Associate Professor in the Department of Disability and Human Development, University of Illinois at Chicago, Associate Director for Research in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, and President, National Organization of Nurses with Disabilities. Beth directs research programs on empowerment and advancement of persons with disabilities. She has published numerous articles and books related to health promotion, health advocacy, and primary health care for people with disabilities. She co-produced a film entitled “Open the Door, Get 'Em a Locker: Educating Nursing Students with Disabilities.” She has also authored two books published in 2010 entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilitiesand Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.
    5. Jasmina Sisirak, PhD, MPH, Research Assistant Professor, University of Illinois at Chicago; Chicago, IL. Jasmina is an Associate Director of Training and Dissemination in the Rehabilitation Research and Training Center on Developmental Disabilities and health (RRTCDD) in the Department of Disability and Human Development at University of Illinois at Chicago (UIC). Her research interests consist of nutrition, health literacy, and health promotion for persons with intellectual and developmental disabilities. She coordinates several health promotion projects in the RRTCDD; and has written publications and presented papers in the area of disability, health, and nutrition. Jasmina has co-authored two books entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities and Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.

     

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Thu
    18
    Jan
    2018
    3:00 pm, Eastern Daylight Time (New York, GMT-04:00)Webex

    RRTCDD and The Arc 2018 Health and Wellness Webinar Series

    Webinar 1: Health of Parents with Disabilities

    Susan Parish, PhD, MSW

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  • Thu
    15
    Feb
    2018
    2-3:00 pm ETWebinar

     

    Mindfulness: Strategies for Building Success and Wellness in the 21st Century Workforce-20180215 1900-1
    Thursday, February 15, 2018
    1:00 pm  |  Central Standard Time (Chicago, GMT-06:00)
    Play recording (58 min)

    Download Mindfulness Webinar PowerPoint Slides

    This webinar will discuss the use of mindfulness strategies for building success and wellness among people with intellectual and developmental disabilities (IDD) within their worksites. "Mindfulness tools" will be reviewed for participants to incorporate with their students and employees with IDD in the classroom or in the workplace.

    CEUs: There will be no CEUs provided for this presentation.

    PRESENTER

    Stefanie Patterson, Cape Cod, Riverview School's Project SEARCH Instructor. Stefanie is a certified English and special education teacher and has been in the field of education for over 20 years. She is also a life-long yoga practitioner and is licensed through Finding Inner Peace Yoga School and is a member of the National Yoga Alliance & the Cape Cod Yoga Association [CCYA] with specialty certifications in pre/post-natal yoga, children/teen yoga and Mindfulness Meditation.

    ACKNOWLEDGEMENT

    These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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  • Thu
    15
    Feb
    2018
    3:00 pm, Eastern Daylight Time (New York, GMT-04:00)Webex

    RRTCDD and The Arc 2018 Health and Wellness Webinar Series

    Webinar 2: Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD 

    Betty Geer, DNP, RN, CPNP · Brystal Karber, BA · Nichole Guerra, DBA

    Thursday, February 15, 2018 

    PLAY RECORDING (1 hr 6 min)

    Download Presentation Slides

    Nichole Guerra is a Research Coordinator at The Resource Exchange Research Center. Her educational background is in Health Science and Nonprofit Management in the Human Services industry.  Mrs. Guerra’s has worked in the field of intellectual and developmental disabilities since 2005. She has extensive experience in residential and day program settings, case management, and adapted physical activities.

    Betty Geer is the Research Center Director for The Resource Exchange in Colorado Spring. She has more than 30 years cumulative experience in a broad range of fields, including public health research, nursing, graphic design, economic development, and architecture. She holds five degrees from the University of Colorado: Bachelor of Fine Art, Bachelor of Science in Nursing, Master of Science in Nursing, Master of Architecture, and Doctor of Nursing Practice. She is currently PI for the Care Integration and Quality of Life study, the research portion of the collaborative project entitled Health Coordination for People with Intellectual and Developmental Disabilities (IDD).

    Brystal Karber, Bachelor of Arts in Cultural Anthropology and a Teaching Assistant at University of Colorado

     
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  • Thu
    15
    Mar
    2018
    3:00 pm, Eastern Daylight Time (New York, GMT-04:00)Webex

    RRTCDD and The Arc 2018 Health and Wellness Webinar Series

    Webinar 3: Partnering to Transform Healthcare with People with IDD

    Thursday, March 15, 2018

    3:00 pm | Eastern Daylight Time

    Play recording (1 hr 1 min)

    Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC

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  • Thu
    19
    Apr
    2018
    3:00 pm, Eastern Daylight Time (New York, GMT-04:00)Webex

    RRTCDD and The Arc 2018 Health and Wellness Webinar Series

    Webinar 4: Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications

    Kelly Hsieh, PhD and Haleigh Scott, PhD

     

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  • Thu
    10
    May
    2018
    Thu
    17
    May
    2018
    11:00 a.m. - 11:45 a.m. CTNational Center for Medical Home Implementation Webinar
    May 10, 2018, 11:00 a.m. - 11:45 a.m. CT 
    May 17, 2018, 11:00 a.m. - 11:45 a.m. CT 
    Presented by the National Center for Medical Home Implementation and the National Center for Care Coordination Technical Assistance, this 2-part webinar series will present real-world experiences from diverse health care providers with the common goal of capturing the value of care coordination using the Care Coordination Measurement Tool (CCMT)**. Webinar faculty will describe their objectives for measuring care coordination, experiences in implementing the tool, and the implications of capturing the value of care coordination.
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  • Tue
    15
    May
    2018
    12:30-1pm ETWebinar

    The NIDILRR-funded Mid-Atlantic ADA Regional Center will host a webinar, Project Sidewalk: Mapping Accessibility Through Google Street View,

    May 15th, 12:30-1pm ET

     Presenters will discuss Project Sidewalk, where volunteers reviewed the accessibility of streets and sidewalks in Washington, DC. The presenters will also discuss how the collected data is shared and used to develop new accessibility-friendly mapping tools, to train machine learning algorithms to automatically assess accessibility, and to create better transparency about accessible infrastructure. Registration is free and required.
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  • Thu
    17
    May
    2018
    3:00 pm, Eastern Daylight Time (New York, GMT-04:00)Webex

    RRTCDD and The Arc 2018 Health and Wellness Webinar Series

    Webinar 5: Health Promotion in Community Based Organizations: Understanding the Needs and Capacity

    Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN, FAAN

     

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  • Tue
    22
    May
    2018
    8:00 pmWebinar

    MAY 22, 2018  3 PM EST 

    Competency – Health and Wellness

    Astrid Berry, NHS Human Services, Harrisburg, PA

    People with an IDD/MI diagnosis are at risk for more health and wellness problems than people without. They often take many medications and have barriers in communication that affect their ability to plan or organize information. These issues can make it more difficult for the person to take an active role in his/her health. This webinar will review the implications and risk factors of co-occurring disorders as well as the role of the Direct Support Professional in supporting treatment, communication, medication management, wellness, and recovery.

    Registration is now open! 

    Registration – The cut-off for receipt of all registration forms will be five (5) business days prior to the Webinar.  Registrations received after this point will not be processed.   Once registered you will receive a confirmation email with detailed instructions of how to access and any handout information. 

    Click here for Online Registration

    Debit/Credit Cards are the only accepted payment methods available on-line: Mastercard, VISA and Discover.  

    Click here for Registration Form

    Debit/Credit Cards, checks and purchase orders with PO#’s are accepted methods from the download form.

    Please contact the NADD Office with any questions regarding registration, the webinar series, or if we can be of any assistance, at info@thenadd.org or 1-(845) 331-4336.

    If you have any technical difficulties accessing the links, feel free to contact our webinar technical support team at 800.974.2166 and follow the prompts to web technical support.

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  • Fri
    25
    May
    2018
    1:00 p.m. – 2:00 p.m. ETAUCD Webinar
    Friday, May 25, 2018, 1:00 p.m. – 2:00 p.m. ET
    https://bit.ly/2KwKKaj 
    Multnomah County, located in Oregon and includes the Portland Metro Area, developed the Sexual Health Equity for Individuals with Intellectual/Developmental Disabilities (SHEIDD) project in collaboration with several partners including the UCEDD at Oregon Health & Science University. The SHEIDD builds community capacity to provide holistic sexual health education and support to young people (age 14-21) experiencing I/DD so they can make informed decisions, stay safe, and experience healthy relationships.
     This webinar will provide information about the SHEIDD model and some of its activities, which have been developed and implemented through the Community Advisory Group, a collaborative of health educators, I/DD professionals, teachers, self-advocates, and other stakeholders.
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  • Mon
    04
    Jun
    2018
    Wed
    06
    Jun
    2018
    Springfield (June 4, 2018) and Chicago (June 6, 2018)
    FREE workshop 
    We are thrilled to announce this expert-led, FREE, 1-day workshop taking place on June 4th in Springfield and June 6th in Chicago! Please sign up as soon as possible as we will be opening registration to the public at the end of the week! Please see below for a brief overview and registration. See attached flyers for detailed information.
     
    VINCENT J. CARBONE, Ed.D, BCBA-D, LLC, CEO Carbone Clinic
    Dr. Vincent J. Carbone is a Board Certified Behavior Analyst-Doctoral with over 35 years of experience designing learning environments for persons with autism and development disabilities. He received his graduate training in applied behavior analysis (ABA) at Drake University, Des Moines, Iowa. He has served as an adjunct faculty member at Florida Institute of Technology (FIT) and Penn State University. He is visiting professor in the Behavioral Education doctoral program at Simmons College in Boston, MA. His teaching responsibilities include courses in Applied Behavior Analysis and Verbal Behavior. His behavior analytic research has been published in several peer-reviewed journals including The Journal of Applied Behavior Analysis, The Analysis of Verbal Behavior, Focus on Autism and Other Developmental Disabilities and others. Dr. Carbone currently serves on the editorial review board of several peer reviewed behavior analytic journals including Behavior Analysis in Practice.
     
    WORKSHOP
    Dr. Carbone will discuss methods for analyzing and treating disruptive and problem behavior using science-based methods. Video Illustrations of effective methods will be provided as clinical illustrations.
     
    REGISTRATION LINKS
     
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  • Tue
    05
    Jun
    2018
    12:00 - 1:00 ETW\

    Presenters:         Patricia A. Areán, PhD

    Stephen M. Schueller, PhD

    Register Here

    Thousands of mobile applications propose to be able to reduce stress, increase happiness, address anxiety, and decrease depression. This webinar reviews the current state of mental health apps in light of evidence-based treatment strategies, such as cognitive-behavioral therapy, mindfulness, and problem-solving therapy that have been translated into app formats.

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  • Tue
    05
    Jun
    2018
    2:00 p.m. - 3:00 p.m. ETAUCD Webinar
    Tuesday, June 5, 2018
    https://bit.ly/2FVGz4l 
    In this presentation, the nature and extent of anxiety related challenges that impact individuals with Autism Spectrum Disorders (ASD) and other Intellectual and Developmental Disabilities (IDD) will be briefly reviewed. How anxiety can be a major influence on the manifestation of externalizing behaviors will also be discussed. The relationship between atypical sensory profiles and anxiety, with a particular focus on over-arousal states, will be explored. Ways in which some simple and easy to use sensory modulation tactics and tools may be employed to help individuals with ASD and other IDD who present with significant anxiety and challenging behaviors will be shared.
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  • Tue
    05
    Jun
    2018
    Time: 4:00 p.m. - 5:00 p.m. ESTWebinar

    Trauma-informed behavior planning for people with IDD

    Date: June 5, 2018
    Time: 4:00 p.m. - 5:00 p.m. EST


    Trauma-informed behavior planning for people with IDD

    Please register for this free webinar here

    Content Overview:

    This webinar will be focused on how to take trauma-informed care principles and apply them to behavior planning. We will discuss basic trauma-informed care principles as well as positive behavior support principles and provide examples of how to adapt behavior plans taking into account a person's trauma history. This webinar will focus on practical application of the material.

    Speakers: 
    Haleigh Scott, PhD, University of Illinois at Chicago
    Susan Kahan, MA, University of Illinois at Chicago

    This webinar is being jointly sponsored by AAIDD and NADD.

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  • Wed
    06
    Jun
    2018
    12:00 - 1:00 ETWebinar

    Presenters:        Sheila Pires, MPA

    Elizabeth "Liz" Manley, MSW

    Sheamekah Williams, MSW

    Register Here

    This webinar explores how health homes can be customized for children and young adults with serious behavioral health challenges and offers successful examples from two states: New Jersey and Oklahoma. Participants will learn why this approach is useful to young people and their families, as well as how these programs can be successfully implemented and what technical assistance resources are available.

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  • Tue
    12
    Jun
    2018
    12:00 - 1:00 ETWebinar

    Presenters:        Rozemarijn "Rosie" Staal, PHD

    Karyn Harvey, PhD

    Register Here

    Individuals diagnosed with co-occurring intellectual / developmental disability and mental illness have complex needs which can challenge service systems. This webinar will deepen and expand participant's understanding about key issues when providing services to these individuals. Specific topics covered will include: information about the prevalence of serious mental illness in individuals with an intellectual disability, barriers and factors that can make accurate diagnosis difficult. Methods outlined by evidence-based research and expert consensus that can assist in overcoming these barriers will be discussed. The prevalence and impact of trauma will be addressed along with workforce development considerations.

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  • Fri
    15
    Jun
    2018
    11:00 AM -12:00 PM (Central Time)Webinar
    June 15, 2018
    11:00 AM -12:00 PM (Central Time)
    Registration link:
    Presenter: Bennett Leventhal, MD
    Professor, Department of Psychiatry, University of
    California, San Francisco
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  • Mon
    18
    Jun
    2018
    2:00 p.m. - 3:00 p.m. ETWebinar
    Monday, June 18, 2018
    https://bit.ly/2JbIeFo
    Please join us for our first Sex Talk for Self-Advocates webinar! Using real self-advocate questions from a survey, we will have three professional sexuality educators answering questions about sexual relationships. The sexuality educators will talk about questions from the survey like: How do I meet someone? How do you know if someone is your boyfriend or girlfriend? What exactly does consent mean? How do I talk with my partner? Is a non-disabled partner at risk for having sex with a disabled partner? How to be gay?
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  • Tue
    19
    Jun
    2018
    Tuesday, June 19, 2018, 2:00 p.m. - 3:00 p.m.Webinar
    Put simply, Knowledge Translation is taking research and sharing it with a broad audience (or multiple audiences) in ways that will be meaningful to them. So, to researchers, data and statistics and trends are critically important to finding answers. To a layperson, however, just looking at a data report not be very useful. If those data are reformatted into a graphic focused on one meaningful data point, or a practical document to guide practice, it becomes more important to specific audiences.
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  • Wed
    20
    Jun
    2018
    12:00 PM -1:00 PM (Central Time)Webinar
    June 20, 2018
    12:00 PM -1:00 PM (Central Time)
    Registration link:
    Individuals with Autism Spectrum Disorder (ASD) are at a significantly increased risk of victimization and are more likely to exhibit symptoms of trauma than typical peers. This
    webinar will discuss the factors that make individuals with ASD more vulnerable to traumatic events. Attendees will learn about the importance of considering trauma in the
    development of living and working environments, as well as in the development of behavior plans.
    Presenter: Susan Kahan, MA, LCPC
    UIC Developmental Disabilities Family Clinics
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  • Thu
    21
    Jun
    2018
    12:00 PM -1:00 PM (Central Time)Webinar
    Webinar: Improving Emotion Regulation for Individuals with Developmental Disability through Skills System
    June 21, 2018
    12:00 PM -1:00 PM (Central Time)
    Registration link:
    SkillsSystem (Brown, Brown & Dibiasio, 2013) is a curriculum developed for individuals with intellectual and developmental disability whose struggles with emotion regulation interfere with
    independence, relationships and well-being. SkillsSystem is based on Dialectical Behavioral Therapy (DBT) with a focus on emotion regulation skills that help move the individual toward clearly identified short and long term goals. We will discuss the system’s application in both individual and group settings, as well as its utility in CILAs and day programs.
    Presenter: Susan Kahan, MA, LCPC
    UIC Developmental Disabilities Family Clinics
    CEUs (1 CEU per webinar) are FREE via the Institute on Disability and Human Development (IDHD) at the University of Illinois at Chicago (UIC). If you need assistance with registering for these webinars, please contact Nelson Ayuyao, nayuyao@uic.edu.
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Research Studies

  1. HealthMatters Program Scale-Up
  2. Impact of Managed Care
  3. Longitudinal Health and Intellectual and Developmental Disability Study
  4. National Health Outcomes Indicators
  5. Reducing Obesity through POWERS

Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
Phone: 1-312-413-1520
Fax: 1-312-996-6942
TTY: 1-312-413-0453
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)

Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-03