Greetings

Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We aim to give you information on health status, health access, and health behaviors of adults with intellectual and developmental disabilities (IDD), strategies to improve health and function among people with IDD through health promotion activities, and how to improve health care access through integrated care practices. In addition we have information on developmental disabilities across the lifespan, disability friendly environments, and caregiver support.

RRTCDD (2013-2018) Brochure

Man with flowers

Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.


Upcoming Presentations

  • Thu
    19
    Jan
    2017

    Presenter: Susan Kahan, MA, LCPC (skahan@uic.edu)

    Abstract

     Everyone desires to love and be loved. The myths and misconceptions about people with intellectual and developmental disability (IDD) often lead to rules and restrictions that make healthy relationships difficult to obtain. This webinar will explore the facts and myths around relationships and sexuality for people with IDD. We will discuss the importance of laying the foundation for healthy relations early on through social skills and sexuality education. Resources and strategies for teaching healthy sexuality will be presented. In addition, we will discuss the role of healthy sexuality education as a primary prevention tool for sexual abuse and other strategies to promote sexual abuse prevention.

    Learning Objectives

    1. Understand the myths and misperceptions about individuals with IDD and their impact access to education on healthy relationships and sexuality.
    2. Identify tools and strategies for teaching individuals with IDD about healthy relationships and sexuality.
    3. Understand the role of healthy relationship and sexuality education as a primary sexual abuse prevention strategy.

    Sexuality and Healthy Relationships Kahan' PPT Slides

    Play Recording (1 hr 4 min)

    Presenter Bio:

    Susan is the clinical staff at the University of Illinois at Chicago Developmental Disability Family Clinics, Susan, provides individual and group therapy for clients with a broad range of mental health and behavioral concerns, with a special focus on trauma and sexual abuse of individuals with disabilities.

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  • Tue
    31
    Jan
    2017
    4:00 p.m. - 5:00 p.m. ET

    Tuesday, January 31, 2017, 4:00 p.m. - 5:00 p.m. ET
    http://www.aucd.org/template/event.cfm?event_id=7932&id=16
    Learn about the current health care policy debate and what policies are important to children, youth, and adults with disabilities and their families. Strategies for successful health care advocacy will also be discussed. This webinar is specifically designed for AUCD network trainees

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  • Wed
    01
    Feb
    2017
    11:00 a.m. - 12:30 p.m. ET

    Wednesday, February 1, 2017, 11:00 a.m. - 12:30 p.m. ET
    http://bit.ly/2kLeTow
    HHS/Office of Adolescent Health (OAH), in partnership with the American Public Health Association, the Partnership for Maternal, Newborn & Child Health, and The Lancet's Commission on Adolescent Health and Wellbeing: Webinar. Health for All Adolescents. This webinar will provide a closer look at policies and other multi-sectoral factors that affect adolescents worldwide, and will discuss findings from The Lancet report, Our future: a Lancet commission on adolescent health and wellbeing.

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  • Mon
    13
    Feb
    2017
    Tue
    14
    Feb
    2017
    Washington, DC

    http://bit.ly/2jZju9R
    Registration is FREE. The State of the Science Conference is open for in-personattendance only. The Annual Disability Statistics Compendium offers both in-person and webcast participation options. Please register if you plan to attend in-person or via webcast. The agenda, presenters, and logon procedures (for web viewers) will be emailed to you as they become available.  For questions regarding your registration, please email or call 603-862-4320.

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  • Thu
    16
    Feb
    2017
    2pm - 3pm CSTWebinar

    REGISTER HERE

    Presented by: Matthew Janicki, PhD

    Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer's disease (and related dementias), affects a significant number of adults with Down syndrome (about 65% of adults age more than 60) and a proportional number of adults with other causes of intellectual disability (about 6% of adults age more than 60). Many at-risk adults live on their own or with friends, and many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of such affected adults. This webinar covers key elements of dementia and how it affects adults with intellectual disabilities, provides a brief overview of screening and assessment strategies and methods, and examines ways that organizations can employ to adapt their current services to make them dementia capable. Specifically covered are the elements and types of dementia, as well its onset, duration and effect, and techniques for adapting environments, aiding with staff interactions and communication, as well as challenges to active and supportive programming. Models for supports depending on the stage of dementia are also discussed, as are training foci areas and community care models that provide for "dementia capable" supports and services. Special attention is given to the use of group homes as a viable community care model.

    Matthew P. Janicki, Ph.D. is the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, research associate professor in the Department of Disability and Human Development at the University of Illinois at Chicago and Director for Technical Assistance for the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) at the University.

     Play recording (1 hr 4 min)

    Webinar-4_Janicki

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  • Thu
    16
    Mar
    2017
    2pm - 3pm CSTWebinar

    REGISTER HERE

    Presented by: Kruti Acharya, MD

    Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.

    Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.

    Play recording (1 hr 1 min)

    PowerPoint Slides

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  • Thu
    06
    Apr
    2017
    2:00 to 3:00 pm CSTWebinar

    Small Steps, Big Leaps: Healthy Vending in Your Organization

    Small Steps, Big Leaps: Healthy Vending in Your Organization (PowerPoint Presentation)

    Transcript "Small Steps BIG LEAPS" Presentation (4-6-17)

    View Presentation

    ABSTRACT

    Healthier vending machine initiatives increase your staff and people with intellectual and developmental disabilities (IDD) choice by expanding access to healthier snack and drink options!

    This presentation will provide strategies for healthier vending options through the following: (i) steps to developing healthy vending machine initiative; (ii) using tools to survey vending machines and implementing new guidelines; and, (iii) integrating examples and links to resources related to healthy vending machine for your initiative.

    Audience: Providers who provide Supports for Community Living services to people with IDD and others seeking to increase healthy options in their organization's vending machines.

    Presenters: Jasmina Sisirak, PhD, MPH and Kristin Krok, CTRS

    CEUs: There will be no CEUs provided for this presentation.

    For more information: Please contact Jasmina Sisirak at info@healthmattersprogram.org.
    The webinars are funded through the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD), United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00.
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  • Fri
    07
    Apr
    2017
    Mon
    10
    Apr
    2017
    Dallas, TX

    2017 Conference Overview

    The 2017 conference theme is “Celebrating our Past, Shaping our Future!”  As the premiere resource for practicing I/DD nurses, DDNA is committed to providing quality education programs that include cutting edge content with practical application.

    CONFERENCE PROGRAM STRUCTURE It’s all about the CEs!

    DDNA’s 2017 annual conference will be structured a bit differently than in previous years – offering a longer conference program and more accredited continuing education courses and opportunities! The conference registration fee will include 3 ½ full days of conference program and continuing education, offering over 23 hours of continuing education.

    As we celebrate our silver anniversary, we would also like to offer our members an additional reason to celebrate with us!   With the longer conference program and additional continuing education, this year’s conference rate is 5% below the 2016 conference fees for comparable hours of continuing education.  The conference will also offer a pre-conference program, providing 6 additional hours of continuing education, available to all conference attendees as an additional purchase!

    The result – over 29 hours of continuing education are available with attendance at all conference and pre-conference programs!

    Target audience: Health care professionals working in the field of intellectual and developmental disabilities.

    Overall objectives: The goals and objectives of the conference are:

    • To present cutting-edge education on the most up-to-date practice issues and research regarding the specialty of developmental disabilities nursing.
    • To provide a forum for networking and to facilitate the sharing of information to improve nursing practice in the developmental disabilities field.
    • To bring together leaders and experts in developmental disabilities to engender consensus that improves the health and lives of persons with developmental disabilities.
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  • Thu
    20
    Apr
    2017
    2pm - 3pm CSTWebinar

    Download Presentation (PDF): Social Support Networks of Aging Persons with Intellectual Disabilities

    Play Recording

     

    Presented by: Lieke van Heumen, PhD

    This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.

    Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.

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  • Wed
    26
    Apr
    2017
    9:30am-11:00am CDTEquip for Equality, 20 N. Michigan, Suite 300, Chicago, IL 60602

    Equip for Equality Hosts Disability Rights Consortium Meeting on April 26th to Focus on Human Trafficking of People with Disabilities

    Download PPTX: Human Trafficking of People with Disabilities 4.26.17

    The next meeting of the Disability Rights Consortium will take place on Wednesday, April 26, 2017, from 9:30am-11:00am at Equip for Equality (20 N. Michigan, Suite 300, Chicago, IL 60602).​

    Topic:  The Intersection of Disability and Human Trafficking, April 26, 2017

    People with disabilities are especially vulnerable to human trafficking. This session will focus on defining human trafficking, discussing the intersection of disability and trafficking, and taking a look at the investigation and prosecution of these crimes in Cook County.

    Presenters

    Speakers will be Lydia Sharp, Equal Justice Works Fellow & Staff Attorney sponsored by Greenberg Traurig, LLP at Equip for Equality; Summar Ghias, Human Trafficking Task Force Coordinator at STOP-IT, The Salvation Army Family and Community Services; and ASA Lou Longhitano, Supervisor - Human Trafficking Unit at the Cook County State's Attorney.

    CLE Available

    1.5 hours of CLE credit will be provided to attorneys.

    Accommodations

    If you can't attend in person, you can participate via teleconference by calling 800-910-8278 and entering code: 1940990.  If you need other accommodations to participate in the meeting, please contact Barry Taylor at barryt@equipforequality.org by April 21st.

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  • Thu
    04
    May
    2017
    2:30 PM Eastern Time Zone

    More Information

    Register

    The 2010 ADA Accessibility Standard and the Architectural Barriers Act Accessibility Standard include provisions for exercise equipment and other elements typically found in a health club or fitness facility. This session will highlight provisions for exercise equipment along with a basic review of the building and facility elements such as toilet and bathing facilities, locker rooms, and other site amenities.

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  • Wed
    31
    May
    2017
    9:30-11:00am CDTEquip for Equality, 20 N. Michigan, Suite 300, Chicago, IL 60602

    More information to follow.

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  • Mon
    09
    Oct
    2017
    Wed
    11
    Oct
    2017
    Hilton Hawaiian Village Waikiki Beach Resort & the Modern Honolulu
    The Call for Proposals is NOW OPEN, so be sure to submit your ideas early! For more information, please visit us at www.pacrim.hawaii.edu, or feel free to e-mail prinfo@hawaii.edu, or call 1-808-956-7539.
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Research Studies

  1. HealthMatters Program Scale-Up
  2. Impact of Managed Care
  3. Longitudinal Health and Intellectual and Developmental Disability Study
  4. National Health Outcomes Indicators
  5. Reducing Obesity through POWERS

Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
Phone: 1-312-413-1520
Fax: 1-312-996-6942
TTY: 1-312-413-0453
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)

Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-03