2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers: Final Report

The final report from the 2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers has been released.

Download Summit Final Recommendations 5-17-18 and the Summit Final Report 5-17-18. The RRTCDD and the National Task Group on Intellectual Disabilities and Dementia Practice developed one of the pre-summit reports and presented and participated in this meeting.

The goals of the Summit were to identify what we know and what we need to know in order to accelerate the development, evaluation, translation, implementation, and scaling up of comprehensive, effective, dementia care, services, and supports to improve quality of care, quality of life, and the lived experience of dementia for people with the condition and their caregivers. One of the main objectives in planning the summit was to involve a wide array of stakeholders to build understanding about the many different dementia-related issues and topics that interest and concern them. Five hundred people attended the summit in person, and another 1,000 watched the videocast. The Summit received almost 700 research recommendations from many sources, including summit speakers, stakeholder groups that met before the summit, individuals who attended pre-summit meetings, individuals who attended the summit, and others who submitted recommendations to the Summit public website. Following the summit, the research recommendations were distilled into 12 broad themes. The final report includes 58 research recommendations that address topics ranging from clinical care and support for family caregivers, to engagement of persons with dementia and caregivers in the research process, and approaches for disseminating effective programs and services so they are available for persons with dementia and their families in communities across the country.

Some funding for research to address summit recommendations has already been announced, in particular by the National Institute on Aging. NIA has also decided to add the National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers to the regular 3-year rotation of the 2 other dementia-related national summits, the National Research Summits on Alzheimer’s Disease (NIA) and Alzheimer’s Disease Related Dementias (NINDS).

The following is the summit website, https://aspe.hhs.gov/national-research-summit-care-services-and-supports-persons-dementia-and-their-caregivers. The website includes all the power points, pre-summit and stakeholder group reports, recommendations from all sources, and a link to the videocasts for the two days of the summit.

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