Thank you for visiting the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). We hope this website will give you useful information on health status, health access, and health behaviors of adults with I/DD, strategies to improve health and function among people with I/DD through health promotion interventions, and how to improve health care access through integrated care practices. In addition we have information on aging with developmental disabilities, disability friendly environments, and caregiver support.
Improving health through health promotion and health care access. Impacting lives for a healthier tomorrow.
Thu20Oct20162pm - 3pm CSTShow details
Presented by: Corina Ronneberg, MS and Lisa Peters-Beumer, MPH
While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double between 2000 and 2030. Furthermore, as policies continue shifting to reflect a preference for home and community-based services as an alternative to institutionalization, adult day services (ADS) have the potential of becoming ideal settings for receipt of end-of-life care, especially for individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings, for the general population, and have historically been less of a priority in ADS and residential services for people with IDD. This presentation discusses findings from a study around the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD. We will also explore how ADS may be a great pathway for delivering end-of-life care to the IDD population and provide guiding recommendations.
Corina R. Ronneberg, MS, is a Doctoral Candidate in Gerontology from the University of Massachusetts Boston. She is also serving as Visiting Senior Research Specialist in the Department of Disability and Human Development at the University of Illinois at Chicago and is the Managing Editor of the Journal of Aging & Social Policy. Corina’s research focuses on older adults, physical and mental health, faith, as well as health promotion for underserved populations.
Lisa Peters-Beumer is the assistant VP,
Thu19Jan20172pm - 3pm CSTShow details
Presented by: Susan Kahan, MA, LCPC
Everyone desires to love and be loved. The myths and misconceptions about people with intellectual and developmental disability (IDD) often lead to rules and restrictions that make healthy relationships difficult to obtain. This webinar will explore the facts and myths around relationships and sexuality for people with IDD. We will discuss the importance of laying the foundation for healthy relations early on through social skills and sexuality education. Resources and strategies for teaching healthy sexuality will be presented. In addition, we will discuss the role of healthy sexuality education as a primary prevention tool for sexual abuse and other strategies to promote sexual abuse prevention.
1. Understand the myths and misconceptions about individuals with IDD and their impact access to education on healthy relationships and sexuality.
2. Identify tools and strategies for teaching individuals with IDD about healthy relationships and sexuality.
3. Understand the role of healthy relationship and sexuality education as a primary sexual abuse prevention strategy.
Susan Kahan is a member of the clinical staff at the University of Illinois at Chicago Developmental Disability Family Clinics, and provides individual and group therapy for clients with a broad range of mental health and behavioral concerns, with a special focus on trauma and sexual abuse of individuals with disabilities. As a member of the Coalition Against Sexual Abuse of Children with Disabilities, she provides consultation and training on trauma-focused intervention for children with disabilities to both trauma and disability agencies, and has spoken at national and international conferences on sexual abuse prevention and intervention for people with IDD. She also provides consultation on working with children with disabilities for law enforcement and child protection agencies. In addition, Susan conducts training on healthy sexuality and sexual abuse prevention for provider agencies, schools and parent groups.
Thu16Feb20172pm - 3pm CSTShow details
Presented by: Matthew Janicki, PhD
Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer's disease (and related dementias), affects a significant number of adults with Down syndrome (about 65% of adults age more than 60) and a proportional number of adults with other causes of intellectual disability (about 6% of adults age more than 60). Many at-risk adults live on their own or with friends, and many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of such affected adults. This webinar covers key elements of dementia and how it affects adults with intellectual disabilities, provides a brief overview of screening and assessment strategies and methods, and examines ways that organizations can employ to adapt their current services to make them dementia capable. Specifically covered are the elements and types of dementia, as well its onset, duration and effect, and techniques for adapting environments, aiding with staff interactions and communication, as well as challenges to active and supportive programming. Models for supports depending on the stage of dementia are also discussed, as are training foci areas and community care models that provide for "dementia capable" supports and services. Special attention is given to the use of group homes as a viable community care model.
Matthew P. Janicki, Ph.D. is the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, research associate professor in the Department of Disability and Human Development at the University of Illinois at Chicago and Director for Technical Assistance for the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) at the University.
Thu16Mar20172pm - 3pm CSTShow details
Presented by: Kruti Acharya, MD
Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.
Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.
Thu20Apr20172pm - 3pm CSTShow details
Presented by: Lieke van Heumen, PhD
This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.
Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.
- National Health Outcomes Indicators
- Reducing Obesity through POWERS
- HealthMatters Program Scale-Up
- Impact of Managed Caree
- Longitudinal Health and Intellectual and Developmental Disability Study
Recruiting for NEW RRTCDD Research Project
Participar para nuevo estudio Español
Department of Disability and Human Development (DHD)
College of Applied Health Sciences (CAHS)
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
800-996-8845 (V); 800-526-0844 (Chicago Relay Access)
Funded by the United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grant # 90RT5020-01-00